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  1. Luciana

    Kratom - More Energy, Less Pain - A Guide

    I actually understand you, a lot. As soon as i find something that doesn't trigger me, I stay on that and refuse to eat anything else. I don't care how boring it is. At the moment i'm eating Chicken soup. All day every day. Which gives me lots of liquid. I do get some nutrients from all the...
  2. Luciana

    Pain killers

    I love cats they are like a cuddly hot water bottle with feelings!!! :love: I miss my cat so much i will try to find a new one I swear by Epson Salt Baths too! Thank you CatLover63 :D
  3. Luciana

    Kratom - More Energy, Less Pain - A Guide

    . When you say Salt and Beef? Do you mean Salt Beef? Or do you mean you have a high salt diet too? Can you eat other meats too? And you can't eat any vegetables of any kind?
  4. Luciana

    Pain killers

    I also used to take those dark yellow tablets ""Sulfasalazine" when i first got diagnosed and they did work!! :-) I think back in the days they were the first meds they would give to Ulcerative Colitis patients? But eventually i had to move on to something stronger, when they realised i had...
  5. Luciana

    Pain killers

    Oh wow!! Ok that makes me very hopeful. Thank you for sharing. I hope this is an option and that it will work for me too!!! All the best for you and your son 🥰
  6. Luciana

    Pain killers

    Thank you so much for your words. It's all about finding a balance. Wish you the best!!
  7. Luciana

    Pain killers

    When was your last scope /imaging ? - Last week. Colonoscopy. Definitely talk with your Gi As other have said pain killers are a bandaid for the bigger problem. Yes pain killers are definitely not the solution. Sometimes i just wonder how much pain you are suppose to withstand? I guess i'm...
  8. Luciana

    Pain killers

    Thank you so much for your replies!! I'm trying to make life as liveable and "normal" as possible, to keep functioning every day. But it's difficult. Last three years i'm flaring a lot and trying medications after medications to try to control the inflammation. Now i spend most my time in...
  9. Luciana

    Kratom - More Energy, Less Pain - A Guide

    You survive on salt and beef? I tried to go carnivore. It helped slightly, but i felt it was mostly cause i left all carbs behind. Red meat doesn't work so well for me. But chicken and salmon does. And limiting carbs. but i honestly don't know the answer. I try different things...
  10. Luciana

    Pain killers

    What kind of pain killers do you take for you Crohns??? And how do you deal with the stigma of pain killers? My fear is not being taken seriously by doctors if i ask for pain killers. That they might look at me like a drug addict. So i often rather suffer. Or take Kratom and Marijuana. Which...
  11. Luciana

    LDN & Stem Cells

    Thank you for your reply :-)
  12. Luciana

    Kratom - More Energy, Less Pain - A Guide

    Marijuana helps me so much for my pain and depression!! :-) Kratom helps me a lot when i have to leave the house and i'm scared of not finding a toilet. But if i use too much i start to feel nauseous so i only use it if i really really need to. It's so crazy that patients have to turn to...
  13. Luciana

    Ozanimod & Janus kinase (Trial)

    Hello Everybody! I'm just wondering if anyone here has tried Ozanimod or Janus kinase (JAK) inhibitor?? After other medications have failed. I'm at that point of the road right now. i've been unable to taper off prednisone, for 2 years now. And I'm not a candidate for surgery. Now it seems...
  14. Luciana

    Ozanimod

    Hello Dear! Hope you are well. How has it been going with Ozanimod? Stelara is not working so well on me either. And we're talking about trying a new medicine now. either Janus kinase (JAK) inhibitor or Ozanimod? Would love to hear from you All the best for you
  15. Luciana

    Stem Cell Therapy

    Good Luck!!! And thanks for the update. I pray that it goes well and that you will heal. All the best for you
  16. Luciana

    LDN & Stem Cells

    1/ What happened to the LDN Page??? Is it not considered a treatment anymore or did something else happened? Anyone has any updates? It seemed to have so much potential 2/ Anyone has any success stories for Crohns and Stem Cell Treatment?? When i google it i don't find much, but a few clinics...
  17. Luciana

    Low dose naltrexone is working for me.

    ANy updates on LDN? Is still working? Thank you so much!
  18. Luciana

    Stem Cell Therapy

    @DCCrohns Are there any updates on your Stem Cell Treatment?!? I might be getting such a treatment too and wanted to speak to someone who has been through it too! Thank you for your time All the best Luciana
  19. Luciana

    LDN & Prednisone

    I started Stelara in August!! We think its working, yes. because i am finally able to taper my prednisone! I had a few days in September where i even felt like a normal person. :-) But i have huge problems with prednisone, it doesnt work as quick as it used to. And my body also really...
  20. Luciana

    Vomiting Blood

    Hello Crohns Family! Im currently in the hospital, so i am in a safe place. But i feel alone and scared and have to write somebody who might be able to relate?? I started Stelara in August and since then i been tapering down my prednisone. I had managed to taper down my prednisone to 5mg...
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