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Pipmom, Does your daughter truly have peri-anal Crohn's disease? I am so confused about this. The GI doc told me he only has Crohn's in his ileum but having Crohns makes him more prone to abscesses and fistula development from an abscess. They said that if they get the ileum into...

Thanks for researching. He is on 9mg entocort but that is the highest dose and think the only therapeutic dose for bringing on remission. Thanks again.

If anyone knows about entocort and LDN, please let me know. I was hoping to ask for LDN for my on instead of remicade but he just started entocort 1 week ago. I thought we may need to wait for LDN for a few months but would prefer to start both if they don't interact poorly or cancel each...

My son who will turn 15 next week just had his 2nd perianal abscess drained and seton put in yesterday. He was diagnosed with Crohn's 16 months ago and at the time a very mild case. He had no symptoms of Crohn's but he stopped growing and was diagnosed with disease of the ileum. He developed...

There is no doubt that what we talk about regularly here is not common to most! You must insist your GI look at your bum. Skin tags are also signs of Crohns. I hope you get a new medication routine and some relief. My son has been sleeping most of the day after the seton placement and...

My son has the same issue and his GI was very concerned. He said it meant his ileum was likely in a flare and did a video capsule to confirm that it was. He will have a second drainage with a loose seton tomorrow to prevent it from abscessing again and they increased his pentasa and added...

Hi Everyone, My almost 15 year old son with ileal Crohns is in a flare. He maintained remission on Pentasa until about 2 months ago. He developed an abscess that was surgically drained but continued to drain and therefore developed a fistula. Video endoscopy revealed no strictures, bleeding...

They believe the abscess is from pus production due to an ileal flare. Gravity is just bringing to that area so putting it in remission will stop the pus production and we will also do a seton in his abscess because it keeps closing. They said the entocort may work but often stronger meds are...

They believe the abscess is from pus production due to an ileal flare. Gravity is just bringing to that area so putting it in remission will stop the pus production and we will also do a seton in his abscess because it keeps closing. They said the entocort may work but often stronger meds are...

Hi Everyone, My son's Crohn's was mild at first with only growth as an issue. He recently developed a perianal abscess that hey now believe is linked to his ileum being inflamed. He is increasing his pentasa to 2000 mg b.i.d. and adding in enotcort 9mb for the first time. Has anyone had...

Yes, we are thinking of you and hope things are going well.

That is why I don't understand why they are waiting to do an MRI or further investigation. Anal abscesses frequently (60% of the time) cause fitulas in people without Crohns so we need to look at his big picture to see if there is a fistula and if there is, if there are sign of crohn's outside...

I am so thrilled to hear your news!!! We will send good thoughts for a steady weight gain and more good news after your next surgery!

He may squirm a bit during the ultrasound but that will not hurt the testing...it just may take them a little longer. If you are at a place used to kids, I am sure they have tricks. I would bring something to distract him if you can. If you have a portable movie or tv player or a stuffed...

When that happened to you, did you require more treatment than continued drainage of the area? I wonder why the surgeon wants us to discuss with GI before further eval as well. It seems to me we should investigate more before we plan more treatment or at least give continued drainage and...

HELP!! My son had to come home early from school yesterday due to pain. I could see puss on the outside of his abscess area. We did sits and a lot of pus came out with gentle pressure. I sent photos to the doctor and he thinks there is a fistula. His surgical drainage was 2 weeks ago. He...

Thank yo! That makes sense. He is away so is showering a lot and it seems to be helping. His doctor's nurse sad to stop the vaseine/oinment too! It is a bit of a relief that this is normal healing!

Thanks so much for sharing with us. I think of you. This is one vital step towards your recovery. Hang in there. There is a brighter time ahead.

My son just called me. He is out of state at a tournament. Last night and today he has had pain in the same area of the abscess after having a large firm bowel movement. I ased my parents who are with him to by miralax and have him take a little to soften his bm's so it hopefully won't...

Gemma, Sorry for your struggles with them. I could see how painful a small one was on my son (only about an inch long) and can't imagine one as large as a golf ball. Hope you get relief soon. Ozboz, YOU CAN have one with NO FEVER! Most often you would only have a fever after it has been...