Good results with LDN

[brahm]

Hi All,

In the last newsletter I read about LDN. I went to my Gastroenterologist and requested he look at the abstract I brought regarding the small 40 person study. He refused suggesting my Crohn's discomfort was in my head and I should just relax.

I fired him and got a referral to a specialist in London Ontario who was intrigued by the study and was willing to prescribe LDN. I've been on LDN for a couple of months and am experiencing good results. I am actually not experiencing any discomfort for the last week, regular bowl movements, etc.(Too much information?). I have never been in remission (My traditional meds is Pentasa Despite pain from the disease I didn't want to take immunosuppresssants but just before I read about LDN I was seriously considering changing my meds).

Anyway - I thought I would drop a line to this wonderful organization and express my deep appreciation for all your work!! and encourage mild to medium Crohn's disease sufferers to approach your gastroenterologist with study in hand and see what he/she has to say.

Best regards,

Brahm

 

[ctrl z]

Hello, Brahm!

Thanks for sharing your great results with LDN and please keep us updated on your progress :smile:

 

[Jmrogers4]

Hello Brahm, Thank you for sharing. Even people with severe Crohn's might think about looking into LDN, my son was classified as severe and we are in our 5th month on LDN and seeing fabulous results. As Ctrl Z says, keep us posted

 

[Jam300]

I won't find out what the deal is with my guts for a few months yet but if it is to be that i'm put on meds, i'm going to insist on LDN paired with Pentasa rather than the Imuran currently being suggested by my GI.

My mood fluctuates regularly on whether I want to take Aza, but i'm feeling less and less convinced by the day the more I think about it.

 

[Kev]

Hey brahms... (ooooh, why do I suddenly feel sleepy?). Glad to hear it. My best guess is that the improvement you noticed so far will continue, and escalate. That's the way LDN has treated (no pun intended, this time) me. Feel free to drop by with further updates when you have the chance. It seems a shame, but the only way to spread the news of this treatment is via word of mouth... or strikes of keyboard. You never know, something you post here about your experiences might save somebody elses life. Literally. Okay?

 

[Avw]

Great to hear another success story! I just took my first dose of LDN a few minutes ago and hoping to see similar results in the next few months. Cheers!

 

[Jmrogers4]

AVW,
Hope it works as well for you as it has for my son. Keep us posted please.

 

[ctrl z]

Hey, Avw...

That's awesome you got an Rx for LDN! :biggrin: But please keep in mind that it will not work well (or maybe at all) with prednisone in doses higher than 10mg.

 

[Avw]

Thanks, I thought about that. I'm on a prednisone taper, down to 20 mg and soon to be 17.5.. I think my doctor wants the LDN to build up while I taper off the prednisone. He's also switching me to entocort as I taper, would the entocort affect the LDN as well?

 

[ctrl z]

Hmmm.. I'm not sure about that one. There seems to be mixed opinions across the web on entocort and LDN but I don't want to step on your doctors toes. Hopefully someone with more knowledge of entocort and LDN can give you a better answer.

 

[Jmrogers4]

I think kimmidwife's daughter was on entocort with LDN she should be along shortly as I have tagged her.

 

[Avw]

Thanks guys, really appreciate the help!

 

[David]

Not only am I excited to hear someone actually reads the newsletter (I'm being melodramatic, I know ), but they benefited from it as well! Thank you so much for sharing and I pray your successes continue! It's the trailblazing members of this LDN subforum who deserve all of the credit. They're the heroes in this story. Oh, and kudos to your new GI for being willing to try.

 

[brahm]

Thank you all for your replies to the thread I started. I'm adding my doctors name to the doctor directory that David mentioned.
I'm still feeling good but have noticed that if I move too far from my usual diet I have a negative reaction. Not nearly as severe as before LDN but a reaction nevertheless.

Best wishes to all

Brahm

 

[BoyMama2000]

If anyone knows about entocort and LDN, please let me know. I was hoping to ask for LDN for my on instead of remicade but he just started entocort 1 week ago. I thought we may need to wait for LDN for a few months but would prefer to start both if they don't interact poorly or cancel each other out!

 

[Jmrogers4]

I would imagine it is like Pred and 10mg is recommended dose, heading out the door but will do some research for you when I get back. I know Jack's doctor was looking at putting Jack on entocort recently.

 

[BoyMama2000]

Thanks for researching. He is on 9mg entocort but that is the highest dose and think the only therapeutic dose for bringing on remission. Thanks again.

 

[Jmrogers4]

Haven't had a chance to look yet but I think kimmidwife daughter was on Entocort when she started LDN. She should hopefully see this tag.

 

[rollinstone]

Glad to hear you're doing well bud, long may it continue!

 

[ctrl z]

I'm on entocort and LDN. Entocort isn't systemic like prednisone so I assume taking it at normal dose is just fine.

 

[rollinstone]

How have you been doing ctrl z?

 

[ctrl z]

I've been doing pretty good. About the same as always. Thanks for asking :smile:

How about yourself?

 

[rollinstone]

That's good that you're doing well, I am pretty good crohn's wise, in "biochemical remission" but getting nauseated from the imuran which is a catch 22