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Crohn's Disease Forum

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  1. PVail

    Intestinal Blockage / Obstruction Support Group

    Have this sensation for over a week now. Pretty tired of it and I know it will probably calm down eventually . Waking up with pain and feeling very sick in the night . Seeing stars so i must be low in blood or something like that . Never ending story sometimes . Hope you feel better soon and...
  2. PVail

    Trying to get a diagnosis

    Leemack. We have something in common. My problem started after getting a bug in Turkey. Ive every test under the sun and symptoms have never gone away . I now have constant LRQ or pain in the appendix area and to the right side of my naval all the time . Plus the constant running to the toilet...
  3. PVail

    Acid indigestion?

    Ok here is what happened to me with this . i went to the doc because i was having terrible acid reflux , cough and sore chest along with my usual symptoms. Got a few test done and turns out i have a Helicobactor infection in my stomach . Look this one up . So i had to take two antibiotics and a...
  4. PVail

    Light Headed - What could it mean?

    Hi Robin Lately i have been experiencing light headed sensation . This can happen even when im just sitting there in a chair. very weird feeling . I have been on Asacol for two years and have not had any side effects like this . recently I have been treated fro a helicobactor stomach infection...
  5. PVail

    Advice for crohns of the terminal illiem 😞

    Hi Chantelle. I have TI inflammation most of the time and my symptoms are constant pain and the feeling of a hard lump in that area. Bloating is constant and bowel movement are painful afterwards . I get bad joint pain also and only recently ive become very nauseous but my doc thinks this is due...
  6. PVail

    The Diagnosis

    Joe welcome and sorry you have been through all this . It is a all too common story of hospitals and doctors . You should still keep in contact with your doctor just so you a re being monitored from time to time . it certainly is a difficult disease to come to terms with but maybe if you start...
  7. PVail

    Relationships and CD - Your Experience

    Well for me it was life changing in that I was a musician and doing quite well but when this struck i had to give up everything almost right away. All the friends I had where musicians and they hadn't a clue what I was going through . After giving loads of excuses saying why I couldn't gig or go...
  8. PVail

    Accidents

    I bring a bag with me everywhere. Underwear , wipes but no imodium. Lately I've bought a pair of outdoor hiking trousers. They are extremely light fabric and fold up really small. I have had a few accidents at work and out shopping and even when on holiday . Really got me down and I lost a lot...
  9. PVail

    Help!?

    Hang in there Gabi, this is a step in the right direction . It took me three years to gets thsi and it made them look a little futhere and at least now i am on better treatment . Peter
  10. PVail

    Double Balloon Enteroscopy

    Hi . My cousin i n Spain has this done yearly . he was diagnosed with Crohn's ten years ago and his consultant recommended it . His small bowel almost closes near the TI for a couple of inches so he has this proceedure carried out . He says its more or less the same as a colonoscopy without all...
  11. PVail

    Helicobactor virus /infection.

    Well the upper stomach seems to have calmed down considerably so I am very pleased about that . I think they cant do another test for some time , but I will ask tomorrow. The LRQ appendix pain , i have this three years and they always do this . We are concerned in case it *(what ever it is )...
  12. PVail

    Helicobactor virus /infection.

    Ok so thats over . The drugs appeared to have cleared up the infection and my CT Scan showed thickening in the small intestine near the TI . Appendix area is bloody painfull and going back tomorrow to chat to consultant as he is concerned that this might not calm down so ,at least there going to...
  13. PVail

    Helicobactor virus /infection.

    Not sure if it started after the antibiotics or is just a progression of the initial problem. Anyway he rang and said that i was positive for the Helicobactor infection but I could also have a another GI tract problem ( no kidding ) , so going for a CT scan of abdomen tomorrow to see whats...
  14. PVail

    Joint/muscle pain with Asacol?

    Hi sdexter Ive been on Asacol now for two years and i find that when im flareing I get really painfull ankles and wrists. I also think that this is part of IBD in general . I take Amitriptyline for the pain and it helps a little . The pain is supposed to be a side effect of Asacol and i do...
  15. PVail

    What food best resembles your poop??

    Awe jeeez I just had pea soup for my lunch , suddenly I dont feel to hot lol
  16. PVail

    Helicobactor virus /infection.

    Im taking Clarithromycin, Amoxicillan and Omeprazole for the Helicobactor infection Along with Asacol and Amitrptyline for the IBD. Doctor was concerned about the rigid abdomen and is going to call me later . He took some bloods and poked me a lot . He concerned i might have a damaged appendix...
  17. PVail

    Scared - first GI appointment today

    Been here with this one so many times . It is so frustrating that you are having issues and they say they cant decide if its the prep or inflamation. I had the exact thing told to me and yet i was perscribed Asacol and Amitryptiline . Both worked well for a year or so but last colonoscopy saw...
  18. PVail

    What food best resembles your poop??

    I cant think of anything besides road kill !
  19. PVail

    Surgery or Drugs?

    Hi Starr. My father had this exact same issue and also had the surgery to fix it . I think he had his bladder repaired and about six inches removed from his small intestine . honestly i would say he has never looked back and has a new lease of life. Doesnt take any meds at all apart from being...
  20. PVail

    Finally joined, here's my story

    Hi Welcome to the Forum . Sorry to hear you have Crohns and Im sure like me you find a lot of help and support on this forum. Having a good employer is a godsend and it should ease your mind a little . deciding on drugs is never easy but i believe you are right to have a good read first as many...
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