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  1. PVail

    New symptoms . Any advice or thoughts ?

    Thanks Joan. No asparagus nor sugar puffs . Urguency ,well I could pee for Ireland some days. Its a bit strange as my right arm has felt really powerless for about two weeks . I must be comming down with a bug I guess. Diabeties is a possibility as my brother and father are both diabetic.. I...
  2. PVail

    New symptoms . Any advice or thoughts ?

    So for about three weeks now Ive been gettin some new symptoms that I havent experienced before. I noticed that my pee was smelling quite sweet and sort of strong almost fruity . Now my pooh is also smelling like this. Im getting small lumps in my armpits and they are quite painfull and i have...
  3. PVail

    Recently Diagnosed

    Crabby good point about the use of "flare" . it has taken me a year or so to know which is food related and which is inflamation .Inflamation is very different and can ground you for weeks or longer and can only be treated by correct specific drugs. Another important point that my doctor told...
  4. PVail

    Recently Diagnosed

    Hi there , The Asacol may take a few weeks to really kick in . I have found this a great help .The pain and cramps etc.. dont go away ,as you eat you will probably feel these more as the you possibly have inflamation in your gut. You will have to reduce the size of your meals and start making a...
  5. PVail

    Newbie

    Hi There , Sorry your having a rough time of it . Its very frustrating not getting properly diagnosed. I have very similar symptoms to you as I suppose we all do . Fresh tests should shed some light on your situation. I find it hard to believe that doctors still diagnose IBS as this usualy mean...
  6. PVail

    Why cant my body go into FULL remission?

    I gave a music career because of the never ending need to pooh. I think its normal for IBD victims. There are a lot of trigger foods and I now try to avoid them all and i feel that it doesnt matter what i eat. Getting excited and stressed does make everything worse. Recently I was going to a...
  7. PVail

    Intense Eye Pain

    I mentioned this at my last appointment as i have been having sore eyes and sensitivity to light, the GI said yes the symptoms are connected to IBD. Inflammation in the body is not just in one place and thats why sometimes we have a lot of symptoms at once.
  8. PVail

    Have you had your appendix removed?

    Still have it and that is the area where all my pain started from.
  9. PVail

    Off the prednisone - wahoo!!

    Thanks AB , I already have problems with my joints and would not be keen on making this worse. But I suppose I have to way things up really. I know from the new GI he is intent on getting to the bottom of this ( parden the pun) and he did outline several ways forward so the results come through...
  10. PVail

    Off the prednisone - wahoo!!

    This sort off worries me , all I hear is people comming off Pred and I might be starting it soon according to the new GI . So is it that bad ? Angry bird if this means your improving then Im delighted for you and long may it last . Peter
  11. PVail

    Undiagnosed Club Support Group

    Yeah Sunshine less of the looking good dont you know we are sick ! You good lookin thing you ! hahaha
  12. PVail

    IBD Testing guidelines 2011

    Just read this and I thought It is just so relevant to all who are wondering and waiting on diagnosis. I suppose its a way of knowing if you are or are not being tested for IBD ,Its not my original post , its worth reading http://www.bsg.org.uk/images/stories...d/ibd_2011.pdf
  13. PVail

    UK Guidelines for the Management of IBD in adults

    This is a very interesting piece , I wish i had of seen this a couple of years ago. The one good thing is that my new GI is definetly aware of this as my consultation with him last week was like reading a section out of this. Testing was nearly text book similar.This should be made available in...
  14. PVail

    My experiment, 3 days of bliss.

    Archie thats great your doing the cycle. I have nt heard of it but Im sure there's a lot of these goin on around the country. Hopefully i catch one this year. I think its more of preparing the day before, so if you know your routine you will know what to eat. Personally since I started back on...
  15. PVail

    Are you overly nice by supressing your anger?

    Ok so for everyones sake I actualy practice staying calm . I find it helps suppress the rip your head off feelings and helps me stay in control when im having a bad day . Then again sometimes I have to tell it like it is. But always in the nicest possible way .
  16. PVail

    My experiment, 3 days of bliss.

    Jackie I cant believe how Ive adapted over the last years to this. It was only when i was out cycling a couple of days ago that i had a couple of hours when i felt normal . Strange sensation it almost made me nervous. Im goin to look into how to do this properly incase I do more harm than good...
  17. PVail

    My experiment, 3 days of bliss.

    Thanks David I know it wont be a long term solution but I do intend to look in to it. I did find that i had forgotten what its like to have a brief period of near normality in my daily life. Feel rough now but it was worth it . Peter
  18. PVail

    Diarrhoea worst in the morning?

    Hi Bld I am always at my worst with D in the mornings and after eating. Everyone is different and during flare this is always a bad time . I try to reduce my evening meals to try to help, doeswnt seem to matter what I eat except when I have rice. I find this is the only food that will change...
  19. PVail

    My experiment, 3 days of bliss.

    Hi Judith Well I suppose i had breakfast cereal ,tea and toast . usual stuff. Nothing out of the ordinary. I suppose i just wanted to see if taking the liquids would i get longer lasting relief with out having to increase medication.
  20. PVail

    My experiment, 3 days of bliss.

    So I decided this week that I was goin to try something new for me to see if i could help my self get out of this horrible mess. So I decided rightly or wrongly to only drink fluids for a couple of days. This was only water and a sports drink called High 5 which is 4- 1 carbs and protein. Its...
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