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  1. Catherine

    Stelara - Listed on PBS

    Stelara has been listed on PBS today. :dusty::dusty:Great news for Crohn's patients in Australia.:dusty::dusty: AUD$38.80 per script.
  2. Catherine

    Celiac son with possible gastric Crohns- how far do I pursue this?

    My middle daughter has dx of Asperger and anxiety disorder. She was dx late at 13 years. It may amazining how much anxiety improve with the dx. She alway felt she was different and the dx help understand herself. She still hates loud noises, bright lights and being touched. Watch where he...
  3. Catherine

    Tremors

    I wonder whether they are actually clearing the infection.
  4. Catherine

    Tremors

    Is a kidney infection?
  5. Catherine

    Does this sound like IBD/crohns

    Don't worry about iron panel as your haemoglobin went up when the ferritin went up. Ferritin sometimes acts as a marker inflammation. When ferritin is acting as a marker of inflammation the ferritin level go up and the haemoglobin either falls or stay the same.
  6. Catherine

    Does this sound like IBD/crohns

    You say ferritin level has gone up. Did the hemoglobin level increase as well? Have you had a iron panel or iron studies done?
  7. Catherine

    Extraintestinal sypmtoms only with Crohn's?

    Sarah is currently in a flare. Blood tests are normal. She has stomach pain. Her faecal calprotectin is over 600. This is very high for her. She went back to swimming but could never get the times she had prior to Crohn's but you have remember she was very sick prior to dx. She has found a...
  8. Catherine

    Extraintestinal sypmtoms only with Crohn's?

    My daughter is now 22 year old, she was dx with Crohn's at 16 years. She has never had bathroom issues.
  9. Catherine

    Constipation

    With Crohn's history in the family I would see a GI. My daughter has Crohn's no bowel symptoms and still has no bowel symptoms 6 years are dx.
  10. Catherine

    Update on my Sarah

    Sarah is on her way to her new job. She is current travelling across Queensland by mail plane. She employer will pick she up and drive her the job in outback South Australia. We managed to locate the nearest RFDS base, which is a nurse at mine operation. The base is less than 50 km away but...
  11. Catherine

    Humira - daughter working at Disneyworld for 1 year.

    We used Covermore as well for Sarah's for 12 month policy for U.K. And Europe. $700 for the year, using my discount The US is dearest place to get travel insurance for. For anyone with there own business I would look at whether a Corporate policy travel policy needs their needs. Corporate...
  12. Catherine

    Humira - daughter working at Disneyworld for 1 year.

    Last time I checked Covermove won't Crohn's if there has been surgery in the last 2 years. Suresafe wouldn't cover Crohn if there has been surgery in the last 12 months. Disclaimer: This advice is general in nature and should not consider personal advise.
  13. Catherine

    Outback Australia - RFDS

    Do we have any members living on the outback Australia using the RFDS for there medical care? How difficult is it obtain medications in the outback? How do you arrange blood tests? Does ambulanance cover transportation by the RFDS? Or do you need private health insurance? 22 years old days...
  14. Catherine

    Humira - daughter working at Disneyworld for 1 year.

    This is link we were directed to: https://www.humanservices.gov.au/customer/services/medicare/travelling-overseas-pbs-medicine
  15. Catherine

    Update on my Sarah

    It good to have Sarah home. Her flight from Brisbane has been arranged for Wednesday. She will fly out of Melbourne on Tuesday. She is moving in outback South Australia on a contract to until January. Lots of organise, medication and blood tests and finding somewhere for the three monthly...
  16. Catherine

    Humira - daughter working at Disneyworld for 1 year.

    Make sure you can legally take the prescribed medication out of the country for someone else. I can't remember what the issue was but know we couldn't buy prescription medication in Australia and send overseas.
  17. Catherine

    Update on my Sarah

    For those who don't know Sarah's story she was dx with Crohn's at 16.5 years is now 22. She has been imuran all that time. She has been home for 6 weeks after spending the last 2.5 years working and travelling around U.K. And Europe. She is currently in small flare and taking steriods. She...
  18. Catherine

    Humira - daughter working at Disneyworld for 1 year.

    Sorry I didn't see your tag, I have been on the forum for a long time. I wouldn't have been any help. I don't think you would be able to get a 6 month script for humira. You can get 6 months for low class medications eg imuran. I know we did.
  19. Catherine

    Shingles

    Have you tried Zostrix cream?
  20. Catherine

    A is 12 - Update!

    Are they sure the UTI has not caused a kidney infection? Low grade UTI can have no symptoms at least for my daughter. We did a twelve month course antibiotics due to UTIs
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