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where did you get it and what brand?

There is a book on amazon called The Miraculous Results Of Extremely High Doses. Its a good book, obviously don't take it as medical advice. But there is a case in there of a person with crohns whose doctor prescribed 50000 iu of vitamin D once per week for a month and it put the person in...

I find this fascinating because adding a lot more fiber reduced by symptoms by 90% at least. I guess this goes to that crohns may be a catch all for several diseases with different pathologies.

Oddly enough, my wife is Hungarian and we have several friends that live in Hungary. Maybe I can ask them to check it out for the benefit of others. Hungary is a small country, and those that live in work in Budapest a much smaller population. You would be surprised how many people know each...

I am surprised how defensive people get about alternate forms of therapy. There is definitely this crowd in the Crohns community that are adamant that "pharma is the only thing that helps". Personally I think we have enough stories and medical literature showing us alternate therapies have a...

for some yes, for some no. I don't think there is definitive "medical" proof that it does. For me, it has worked pretty well. And by homeopathy I assume you mean vitamins, diet, fasting, etc.

great so they suppress the protein and you get cancer! So its either cancer or crohns! LOL

Anxiety is real, everyone gets it some worse then others. The important thing to focus on is what you can control. People get anxious about things that already have an outcome. As an example, you are going to the GI appointment right? Not going is not an option. Whatever the outcome of the...

Interesting discussion. My GI recommended fiber to me. Psyllium husk has dramatically improved my condition. Benefiber seemed to make me feel worse.

I am good, have had no symptoms for a long time. Just keep hoping it stays this was for as long as possible.

I was actually going to be in that trial, but I am in DC and couldn't make all the required trips to NY.

Hey all, I have mild crohns. I have been about 95% back to my normal self on supplementation and diet for the past ten years. I routinely try different supplements based on research/trials., For the past month I have been trying a NK cell activator and Cistanche, oddly, not for crohns but for...

As with all advice, you should talk to your doctor! This is the internet, tons of good information and tons of bad. Yes, everything is age/dose dependent. My advice is for adults. If I was going to do this for my child, I would likely go the spice route instead. LIke, instead of a tumeric...

What I do mostly for crohns is. Vitamin D, tumeric, Lglutamine, alfalfa, and fiber What I did in the past is almost too much to list. I have tried so many things. The things I think helped are this. worm wood 500 mg 3 times a day for a certain period. There is a medical research document...

Forgot, Lglutamine most mornings in my water.

ok, took me a bit to log all this. So here is what I do now. Some things I take for hypertension that started right before my stomach issues. Not sure if there is a connections. Am L lysine 500mg one a day multi krill oil 500mg (sometimes fish oil, I keep switching it) vitamin d 5000 iu k2...

ok, first, do you want to know what I am doing now or what I have done, or both. I have thought about making a list of everything I have tried, it would be large!

I couldn't do a lot of fiber in the beginning either, you have to work up to it, if it will work. The disease is different for everyone, Jo MOM is right also, benefiber is likely not great for you. Try Psyllium. I drink a lot more fluids also, water all day long. Again, fiber is a...

I don't really know your particular situation, but my GI recommended fiber for me. Fiber was one of the only things I noticed that helped me, but Psyllium husk not benefiber. Some people on here can't eat fiber at all, some diets recommend low fiber as a treatment. So all I can say is try it...

Yea, I am not sure on any of the probiotics. I would say if you are going to try one, try one of the big name brands and stay away from the no name stuff. Philips Colon health is a big name brand and is recommended by some GI's.