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We've done both. Both are metabolized by the liver, big time :). So, LFTs have to be monitored. There's a prometheus test to monitor 6-MP as well to see if you are within "therapeutic range" and how close you are coming to a level that can create liver toxicity. We give MTX at home. Per...

I second Dusty!!!! Keep us posted. J

Stool in the colon can interfere. Claire had some still present on hers. They were calling it secondary infarct or something of the sort....:).

M - I think you are exactly right. Our girls' weights are similar. He said because she's not an adult (I shouldn't have said weight!!!) and because she is "special". Lol. Do you think he meant her immune system is as stubborn as she is!?!?!? I'm nervous! J.

Hi friends - the promotion ceremony went without a hitch - Claire won the Art award for the whole 5th grade. Proud Mom! Talked to her doc today. All the folks on his "to call" list are in agreement that she is at no worse risk for side effects than the average joe. So the Stelara is a go...

As usual, MLP has great advice. Talk to the doc.....Ask about the Zofran. Work on the time interval. When Claire was taking it when she was 4, we'd give her one benadryl and one regular tylenol at dinner and then the shot about an hour later. That was on the advice of her Rheumatology...

Glad it worked out, Griffin123! It's hard to balance when to go to the ER and really, for a chronic health problem, it isn't the best place. I think your GI took good care of you all in this crisis! Hug! J.

We practiced with mini m&ms. I'm pretty sure Mommy needed chocolate too! Claire was 3 at the time!! J.

Well it's not a crisis but I cried today anyway. I think I'm obsessing! Anyway, talked to GI office who told me that AFTER the deitician, the company was coming with the pump, we'll pracitice the ng tube, etc, etc, etc. It was starting to sound like a LONG appt. When I asked, they said...

wouldn't it be GREAT if something could be simple?!?!?!? I hope she's feeling better by the minute! J.

jland25 - Our doc orders the "preservative free". There is more than one formulation. There has been times that the pharmacy couldn't get it but by and large, that's what we get. Maybe that's where the 28 day thing is coming from???? The preservative free formulation???? Here's the package...

Y'all will think I'm crazy :ybatty:. But when I got badly burned years ago a fisherman in Florida told me I should be using this. http://www.amazon.com/Blue-Lizard-Australian-SUNSCREEN-Regular/dp/B000AU15M2/ref=sr_1_14?ie=UTF8&qid=1400466484&sr=8-14&keywords=sunblock+blue+lizard It's only...

Thanks Tess. I'm sure I will!!! I'll be glad to meet the dietician this week and figure out what we are doing exactly. J.

Kathy - yes you can have them for other reasons. :). She's got a mouth full. I never worry if it's just a couple and there's no other symptoms. Found this for you, Kathy. http://dermnetnz.mobify.me/site-age-specific/aphthae.html And they can be virus & tooth brush stabbing related...

Here's Claire with her girlfriends last night (and brother less than thrilled to have to go to dinner with them). Claire got to pick where we went....this was a belated bday sleepover. Anyway what broke my heart was a good time was had by all but Claire. She couldn't eat because her mouth hurt...

Farmwife - nope. We see dietician Thursday to get the ball rolling. J.

Jackie1967 - we have done steroids. More than once. About to start our adventure with nightly EN feeding through an NG tube. My daughter is 11. My understanding is that we will put the tube in at night and take it out in the morning. J.

DanceMom - No swab. He was going to talk to ID. Has us alternating bacitracin and mupirocin until he calls back. Good news! Insurance approved Stelara!!!!!!! Ironically it was so fast we aren't ready yet. Her doc wants to have one more conversation with Immunology, her Neuro and the...

HIP HIP HOORAY!!!!!!!!!!!! :ghug::ghug::ghug:

NG tube and nighttime pump is the plan. I showed her pictures tonight. Oh yes, I'll let you all know about the Stelara. J.