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@my little penguin @Scipio @Guerrero Thanks for providing insight. @my little penguin - Allergies could be a possibility. Unfortunate thing is based on blood work we were thinking of moving to Humira (now Hymiroz) every 10 from currently every 7 days....Let's see what we find in the repeat tests.

The most recent lab results for my son (15yrs) were conflicting & even the doctor to an extent was surprised. Wanted to see if anyone here had similar experience and have recommendation for next steps Blood work - all numbers within normal range ESR - 4 CRP - 2 Hemoglobin - 13.5 CBC - all...

Thank you all for your insightful responses. We do not see the doctor for another month, but did speak to her. She believes Hyrimoz will work. From what I have been informed insurance companies generally do not approves Stelara (for kids) until something else fails. Either way...it's...

Got a letter from Insurance (Aetna + CVS Caremark) that they would no longer cover Humira starting April 2024 & had advised to use Biosimilars Here's what they are recommending as a biosimilar alternatives which they would cover: Adalimumab-adaz Hyrimoz Rinvoq Skyrizi (Sub Q) Stelara (Sub...

Not yet. It's with Insurance for approval. Thanks for checking.

Thanks all for your valuable insights. Decision making becomes easier when you hear back from people who have gone through this. Amazing community ! Just hope some day they find a permanent cure....hard to fathom that your little ones will need to deal with this life long.

Time to change the frequency. Should we? Wanted to share & see what others in the forum feel about it. 6 months on Humira 40ml every 14 days...The GI doctor now suggesting to move to every week based on the latest lab work (below) CRP = 1 ESR = 18 Calprotectin = 153 More than the inflammation...

Thanks for this one...It's easy to monitor weight...Height is little tricky...Manual measurement against the wall is always prone to errors. Maybe a good idea to get the growth plate tested...Don't remember the name of the test...will google up.

While on remission and blood tests being spaced out, what are some of the early signs of Crohn's coming back? - Weight loss - Stomach cramps - Change in Poop frequency - Tiredness Anything else to keep any eye on?

@Catherine His Ferritin level was 94ng/ml. Normal range is 24-336ng/ml, hence said it was in normal range. Anyways, we did blood work before starting the 3rd infusion today. Ferritin came back 233 ng/ml. How long does it take (after all 3 infusion sessions) for Hemoglobin to go up?

Anyone having cramp issues with Iron tablets should try "Iron-up" which is in liquid form. Can mix it with little bit of Orange juice especially for kids making it easier for them to take in. @Pilgrim he got Venofer mixed with Saline in 1:1.5 ratio. No side effects so far...Knock on wood !!

@Pilgrim. he is scheduled to get his first does of Venofer® (iron sucrose) tomorrow with additional two sessions later in the coming weeks. Will keep you posted on the progress.

Hi All, First time posting here though have been watching & reading threads for the past 3 months. Parent of 12 yr old diagnosed with Crohn's. Our hematologist is recommending Iron Infusion as his Iron levels are not going up...Hovering at around 9.2 (Hemoglobin) for the past 3&1/2 months...