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We have not been on this forum for a while. My daughter had a second colonoscopy and EGD done in May which was negative for celiac and crohns. They were going to monitor as if having IBD. Her pain never went away. She has been in the hospital since Wednesday. One doctor said it was terminal...

They are saying its impetigo, so now on more antibiotics. They are going to wean her off the meds to see if her symptoms get worse and rescope her.

Thank you

update My daughter had a repeat EGD and colonoscopy 2 weeks ago. I was in the room and watched the procedure. Everything looked normal. Dr took biopsies. So far, she is positive for H pylori (after being treated 2 months ago). He sent the other slides to Hopkins so we are waiting for the...

follow up appointment SO today, I took my daughter back to see her GI doctor. Small bowel series was negative for inflammation, but positive for hypersecretiion and malabsorptive state (Celiac) and her blood work was positive for Crohn's. We are looking at having another colonoscopy and EGD...

Thank you! Kind of helped the stress go down. I am thankful for this forum :)

coverage I am researching the meds that my daughter's doctor wants to start and am shocked at the prices! I have Blue cross blue shield federal ppo. would like to know if anyone knows how much they cover remicade and humira?

Colonoscopy and egd already done. That showed inflammation of terminal ileium. He gave ultram so she can go to school, she has missed a week :( he said she does not need to take the Cymbalta. CT scan was negative last week. He says she has "fullness" in right lower quadrant.

So we went to a new GI today. He actually listened to her! He started her on Ultram, which is a start. He was surprised to hear that they had not done a small bowel series. One is going to be done in the next couple weeks. He also informed her that he is going to see her every week until her...

The other thing I am considering is going to National Institutes of Health since that is closer than Hopkins.

The one I am going to today starts seeing them as young as 14, as do some of the other internists I work with. I just wish I lived closer to Hopkins.

Wow- Looking at your daughter's medication list-it looks just like my daughter's list right now! During her admission, the pharmacist told her "you are not getting Dilaudid or a pain patch. So don't ask again!" After talking to my cousins (one is a peds nurse in charge of a pain council and...

I agree. I am just upset that people are not listening to her. My own sister just called and "being devils advocate- could she be hurting from emotions?" is what she asked me. Then I had to go on and explain the extraintestinal manifestations of crohns to her. I am hoping that today's...

Her doctors are so set on the Cymbalta and steroids and nothing else. SO she has to wait the 10-14 days for the Cymbalta to kick in to get relief from her pain. I feel really bad for her because of the elbow/ankle pain and the discomfort in her lower back.

Hopkins is 2 hours away from me, as is Washington Hospital Center. I am at the point that I may end up going up there for another opinion. The doctor that we are going to today has a doctor in DC that he sends his patients to if he feels that he can't help them. The main issue here is she is...

The next hospital is in Washington DC. I am taking her to a GI doctor tomorrow who I work with. Hoping he can figure something out or decide to send her to another person who can help her.

No complaints of depression. I just feel bad that she's not eating or sleeping

Never complained of depression before. Her elbows and ankles hurt in addition to lower back and fought lower quadrant pain.

Its emotional pain and we need to let the cymbalta kick in

They are not doing a single thing for her!