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MLP is right - it's the elemental iron amount that you need to look at. My daughter is on about 650mg of ferrous guconate (two tabs a day). I think the recommended dose of elemental iron is something like 100-200 (you should double check that ;-) and ferrous gluconate tab has like 37mg of...

Thanks Maya, pdx and Sascot! All very helpful and encouraging!

UPDATE: We got Remicade tests back... (1) There was no remicade in PAW's system when they drew her blood just before her last infusion. I guess that's why she started getting stomach aches about a week or two before her infusion. Guess that means it's helping her symptoms, so that's good...

We were told absolutely no popcorn for now, but maybe at some point in the distant future (maybe if my daughter gets to remission?). I'm totally checking into hull-less popcorn though! Interesting... Incidentally, I was unclear on whether cooked corn was okay or not -- is that a no? What...

Thanks, PDX! I'm not exactly frustrated. I'm pretty thrilled that things seem to be moving in the right direction and cautiously optimistic. I just want to keep things in the right perspective and try to make sure we're making all the right decisions (aren't we all?!). This group has so much...

Thanks so much, Tess! Your explanation of narrowing & dilation makes so much sense!

Hi everyone, My 15 y.o. daughter just had a repeat MRE after having had 4 Remicade doses (5th is tomorrow). She is also on 6-MP and partial EN diet. She had an intestinal fistula, which seems to have either resolved or has significantly reduced in size (they can see a shadow but aren't sure...

That's great news, and very encouraging! Thanks for posting.

I just read a post by someone who has been on it for 10 years! My daughter has only had 4 infusions. I'm interested to hear from folks who have been on it for a long time and what that's been like. If you eventually stopped taking it, I'm curious to know why and how that's gone?

My almost 15 year old was diagnosed in October with Crohn's and a fistula in October too, Voyager, so I closely relate to you. Our doctor strongly recommended Remicade from the start. We went for a second opinion at Johns Hopkins and the doctor there agreed for all of the reasons already...

Oops! Posted before I was done! I was wondering if anyone has participated in this project with their kids? If so, did you find the results interesting/useful/confusing/credible? Any thoughts are appreciated.

https://www.23andme.com/ibd/ http://www.crohnsforum.com/showthread.php?t=67893

Thanks pdx -- she went to school yesterday, although it was a rough day. She was pretty run down, weak and tired, but she made it. She hates missing school - all the catch up work... Today she's having a little pain, but doing better otherwise. It seems that when she overdoes it with food...

Thanks pdx -- she went to school yesterday, although it was a rough day. She was pretty run down, weak and tired, but she made it. She hates missing school - all the catch up work... Today she's having a little pain, but doing better otherwise. It seems that when she overdoes it with food...

Thanks pdx -- she went to school yesterday, although it was a rough day. She was pretty run down, weak and tired, but she made it. She hates missing school - all the catch up work... Today she's having a little pain, but doing better otherwise. It seems that when she overdoes it with food...

Looking for book suggestions that my recently diagnosed teen (15) can read. Nothing too technical, but something with some good info. Only 19 titles at our very large county library, and most are diet books.

I did email the doctor's nurse about 4-5 hours ago. I didn't say anything about refusing to drink though - because I didn't realize she wasn't really drinking that early (I'm at work and have been monitoring her by text/phone calls - which sucks. I'm going home soon). I was thinking about...

I'm so sorry about what happened with your daughter, PDX. That sucks. I think you are right about not forcing food - thanks for the advice. Just to distinguish though, she's been doing pretty good with drinking mostly Ensure and only eating a little bit of food. And normally she's pretty...

PAW (referring to my daughter by her initials), my (almost) 15 year old daughter, overdid it on food yesterday. She's been mostly on Ensure. But yesterday, she had 1 Ensure, and the rest of her calories were food - and not the healthiest, I might add. This is the 3rd time she's vomited since...