23andme - genetics & I

[cassimw]

https://www.23andme.com/ibd/

http://www.crohnsforum.com/showthread.php?t=67893

 

[cassimw]

Oops! Posted before I was done! I was wondering if anyone has participated in this project with their kids? If so, did you find the results interesting/useful/confusing/credible? Any thoughts are appreciated.

 

[my little penguin]

Ds participated
His was dead on for crohns and arthritis genes
He has lots of them
The gi and Rheumo appreciated the results
They would not use to dx anything
But after official medical dx it helps explain a lot about Ds
They did note in his chart things that were of interest that he was high risk for related to JSpA and IbD.

That said Ds is having full genome testing specifically for early onset Ibd
Since the Gi loved getting some ideas on Ds

Overall good to use to look back
But not so good to predict what is to come

 

[Maya142]

Our doctors say to take it with a grain of salt because it doesn't account for gene to gene interactions, or something like that.

It was very interesting though - they got her genes for AS and IBD right. They even predicted lactose intolerance. We thought it was pretty cool!

That said, it can be a bit scary because there are SO many diseases out there and sometimes you don't really want to know what all your kiddo might be at risk for (many kinds of cancer, other autoimmune diseases - Scleroderma, RA, Lupus).

 

[malorymug]

I did it! Actually we just got our $5.00 amazon gift card this week. I think this kind of data collection is an important tool in understanding ibd.

I found the information very interesting. Not only does my boy have many ibd markers, he also has the mutation mthfr (I have a bad word for this one), that messes with his ability to absorb nutrients and drugs.

There are also some fun trivial things like he is less likely to be affected by caffeine and has a genes (??) for a high pain tolerance which has been very helpful for us to know to take his complaints seriously.

 

[pdx]

We did it too. No real insights from the results, but it was interesting to do. And I do think it may help with IBD research.

 

[Jenn]

My son did it too, it was interesting to see, need to spend some time looking through it more, but also great to help with research.

 

[kimmidwife]

We did it as well. Our results were interesting as well.

 

[Jmrogers4]

We did as well, it was interesting almost more so because his father is adopted and we know nothing about his biologic parents.

 

[Crohnick]

Submitted our kid's maybe a year ago to get his information into the pool of data they're collecting and studying for IBD.

I got an email from them yesterday that they now are reporting information on whether you're a carrier of genes for Beta Thalassemia and Related Hemoglobinopathies. He's not and the condition has nothing to do with IBD, but I am hoping they'll discover something that they can one day report about his Crohn's.

 

[Mehita]

We did it for my son. Like the others have said, it was interesting, but take it with a grain of salt. Since it was free at the time, we figured why not?? Plus if his data along with all the other IBDer's can point to something scientifically significant, all the better.

He wasn't happy to know he's likely to be bald.