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So sorry to hear your son isn't responding to LDN. I think after 5 months I would move on to something else, if I remember correctly the studies show most improve within the first 4 weeks, with another improvement sometimes at 4 months. My son is also on LDN and his CRP dropped within the...

my son's was 86 at his highest

My oldest son has Crohn's, and I worry about my other 2 boys also getting it, they are both lactose intolerant, and my 6 year old also complained about a sore tummy every once in a while. Hard not to worry about it. I started both my other boys on probiotics and regular Vitamin D, we already...

My son uses Absorb Plus, it is a whey protein isolate and even though he has issues with other dairy he can tolerate this one, http://www.imixnaturals.com/

My son has been on it for just over a year, I'm sure it helps that I do the cooking for him, all he has to do is eat what is put in front of him. There are still some things on it that he can't eat, pork and turkey are out, as well as raspberries and whole nuts - ground nuts are fine though...

Hi Blue Eyes, my son has been on LDN for just over a year now, as well as the specific carb diet, so there are no starches / sugar or complex carbs in his diet. He went through one bad stretch with Ldn about 4 months after he started taking it, but in talking with the pharmacist I found out...

Hi Stacy, Welcome and sorry to hear that your family has gone through so much. I have a 16 year old son with Crohn's as well, but as Dexky said, a much less dramatic journey! My son is on LDN and has been since August of last year, his Crohn's journey started with an abscess / fistula...

My son has coconut everyday, he could tolerate it fine while he was flaring also. Coconut milk goes in his shake in the morning, he's on SCD so all his baked goods are made with coconut flour, eggs etc are fried in coconut oil, flakes of coconut go in his cookies. Unfortunately he cannot...

Last year I asked for my son to have his DHEA checked and was told by the GI nurse that they actually have to write to the government here (in Canada) and request permission to do the blood test, DHEA supplementation is very strictly controlled. BUT when we went to our naturopath he does a...

http://www.skipspharmacy.com/home.php

I don't know how it works in the US either, but can you talk to the compounding pharmacy and ask them to fill the prescription with 1.5 mg capsules, and work yourself up to the 4.5 mg? That's what we were able to do here in Canada, as the GI just wrote the prescription for 4.5 mg, and I...

Hi AnneMarie sorry you are dealing with your fistula for so long, my son has Crohn's and one of his first symptoms was an abscess that turned into a fistula. We chose not to go the "heavy drug" route, instead we have done LDN with the Specific Carbohydrate diet, and also hyperbaric oxygen...

Sorry to say that we haven't found a great pasta alternative, have tried the noodles that are made from yams (google shiritake), they taste okay, but are not SCD legal, so we decided to pass on them for now, probably one of the first things we will add back in. Spaghetti squash noodles got...

My 16 year old son has been on SCD for a year now, I do most of the cooking for him (although he is learning), there are still some things on the SCD that do not work at all for him - like Pork, nectarines, raspberries, these are things we found out by trial and error. RE the dressing, lots of...

My 16 year old son has been on SCD and LDN for about a year now and is doing well on it, he had a flare when his LDN was compounded incorrectly last Jan/Feb, but has been basically in remission since May again (took that long for his CRP to come back down), also he had been in remission from...

MMS may be banned in Canada, but you can still get it as a water purifier, google sodiumchloritepowder, alberta.

Hi Ms C, my son is on LDN and has been since August 09. He started at 1.5 mg/day and worked up to 4.5 mg over the course of a month and did not have any side effects other than some strange dreams when ever he upped his dose. Has your husband been on a probiotic in the past? acidophilus...

I pay $42 / month in BC (Canada).

interesting, some of the blood work that the Pediatrician told me were within normal range were enough out that the Naturopath had a different interpretation, or maybe I should say, when the Naturopath looked at the whole picture of the bloodwork he didn't agree with the Ped. does that make sense?

Good luck Tamesis, I hope he can give you some answers, just remember you don't have to buy everything he recommends. If you have copies of any of your bloodwork I would highly recommend you take those with you (or just have them faxed directly to his office before your appointment). I...