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Crohn's Disease Forum

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  1. R

    Crohn's cause ANGER that nobody understands?

    When I'm in pain I get cranky and really hate anybody speaking to me during it. I have to be alone, in silence and curled up in a ball. I seem to be able to get myself into a trance where I can forget about the pain somewhat and then as soon as somebody speaks, I become aware again, so I'm just...
  2. R

    General lack of knowledge in the IBD community

    Since I'm still undiagnosed, I'm still don't know much about the disease really. I was a smoker and yes, my symptoms worsened after quitting, quite a lot actually. But, I still had symptoms when I was a smoker. I've read in a few places that if you're in a flare, you shouldn't quit until you...
  3. R

    Undiagnosed Club Support Group

    Feel awful today :( Constant pain and feel like I'm chained to the loo! Had my repeat bloods taken, not sure what more my doctor will achieve with those, I think it's mainly to keep an eye on my anemia. What worries me most is how concerned he looks/speaks when he sees me, tells me how pale...
  4. R

    Undiagnosed and Frustrated

    I feel you. Especially on the crazy person part. That's how I feel a lot of the time! IBS isn't a disease, it's a grey area of symptoms, which crohn's or UC could be causing. Often doctors use IBS as a diagnosis when they either can't find anything else or can't be bothered to investigate. As...
  5. R

    Undiagnosed Club Support Group

    Definitely see another doctor. He obviously doesn't want to help you get to the bottom of your problem. We all know being overweight increases your chances of diabetes, stoke and cardiovascular disease - what a cop out he was. Not every overweight person is overweight simply because they eat too...
  6. R

    Undiagnosed Club Support Group

    Mine is sometimes yellow or clear and sometimes mixed with blood too. I wouldn't say mine was a clump, it's more of a gel-like substance. About a year ago I went to the toilet and literally all that came out was thick clear mucus and I think that's when my symptoms first ever started, so I...
  7. R

    Undiagnosed Club Support Group

    Thanks Cat! He didn't give me anything for the cramps, his reponse was 'we need to know what is causing the pain first!' which is true and I'm happy that he has that attitude. Rather than pain meds, he's booked me in for another blood test tomorrow to see if anything has changed or...
  8. R

    Undiagnosed Club Support Group

    Back to the doctor today! My pains have increased in intensity, I have a mouth full of ulcers and passed blood yesterday. Not sure what he personally will be able to do, not being a specialist, but surely he can speed up my referral... :/
  9. R

    Undiagnosed Club Support Group

    @StarrGirrrrl - Thanks! Didn't know there were other types of scopes for that...region. Quick update. Pain, and lots of it. Trying to make a doctors appointment, but it's near impossible. I've been told to call in at 8AM tomorrow, but it's still not guaranteed that I'll get one because I might...
  10. R

    Undiagnosed Club Support Group

    Yesterday I was having a conversation with my sister about her bowel problems and apparently she has had two inconclusive colonoscopies. What confused me is that she didn't need to prep in the way I've read many do on this forum, she just had to give herself an enema 2 hours before which...
  11. R

    Questions for UK (un)diagnosed members

    I was exactly the same, thought I'd just be told I had IBS and to just live with it. But quite the opposite happened! Tell them your symptoms (I wrote mine down), he/she will probably do some physical examinations on your stomach (just a bit of prodding) and then they'll probably book some...
  12. R

    Undiagnosed Club Support Group

    Rosanna, that's such great news! Finally having someone take you seriously. A small update (rant) on myself. No letter yet from the hospital. The NHS waiting lists for bowel related problems must be huge! I'm tempted to just go into A&E and speak to a doctor there. At least then I might get...
  13. R

    Aren't you bored?

    Assuming he's at home prior to his nose surgery, he's got it easy. Hospitals are SO much more mentally draining. I spent a lot of time in hospital when I had pneumonia, it seemed fun on day 1 (being somewhere different, having my own little TV etc.) and by the end I was tearing my hair out. I...
  14. R

    Huge increase in Crohn's hospital admissions

    Reading through it now and I think it's certainly the type of article that people in this thread were hoping for. Very to the point and is from a girl that truly suffers from the condition and treatment hasn't worked for her.
  15. R

    Huge increase in Crohn's hospital admissions

    She's the one I mentioned from instagram! She's been posting about it all day. Really feel for the girl, her crohn's is really aggresive. Think in the article she says something like 'comparing crohn's to IBS is like comparing cancer to the common cold' - which I thought was a bit of an out...
  16. R

    Undiagnosed Club Support Group

    Quick question guys. Do any of you go for periods of having really mild symptoms? Like for a week or longer? I mean those not on medication too. I'm weirdly having barely any pain, still having loose stools, but more formed than normal. Maybe the iron is bulking it up...idk!
  17. R

    Huge increase in Crohn's hospital admissions

    Weird, maybe I've been fooled by Instagram. When you search crohn's it's a ton of people eating avocado, sauerkraut, oats and green juices with the hashtags #cleaneats #crohnie #paleo etc. and they're all posing in their gym kits showing off their scars and such. I certainly don't believe...
  18. R

    Huge increase in Crohn's hospital admissions

    For me personally, I do think it's the junk along with alcohol and smoking. As a kid I used to eat sandwiches for breakfast, lunch and dinner - all that gluten probably destroyed my gut! In my late teens I drank bottles of vodka mixed with redbull and smoked 10-15 cigarettes a day. So I do agree...
  19. R

    Undiagnosed Club Support Group

    Strangely this week I haven't felt too bad at all either. I've had no pain at all for a few days now. Had a bout of constipation (wow, only on this forum would you ever hear those words being spoken) and now back to the diarrhea - woo-hoo! My biggest complaint at the moment is mouth ulcers...and...
  20. R

    Undiagnosed Club Support Group

    Apologies for the tumour analogy, it was inappropriate. Yeah, she was taking pictures and I was just like, what the hell is that white blob?! I guess with the years of training they've had they can pretty much identify every little squiggle. I understand ultrasounds are necessary in a lot of...
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