Search results

As my Crohn's is in the small bowel, my calprotectin is always elevated so my doctor said it's not worth doing this any more.

I feel a lot luckier than some on here as I don't suffer from diarrhoea and have periods where I almost feel normal. However, the last couple of weeks the fatigue is back and I have been in a really bad mood. I am trying to work through it but wondered if it could go down as a flair? My guts are...

I loved it! Made me feel so good. Just wish i could have continued on it but my nurse said no!

I get occasional lower right pain, fatigue and joint pain but have never had loose stools. Sometimes it makes me feel a bit of Crohn's fraud! My colonoscopy came back clear. I was diagnosed by capsule endoscopy. If scope is clear don't give up. Del

I understand that. I was only on it for 8 weeks though. I'm now left in limbo until I have the results of my MRI scan and if that's clear another pill cam which could take months and months. It's sad that it makes you feel so much better and then they take it away from you!

I was on it and I love it! I was on it for 8 weeks and felt so good. I asked my IBD nurse if I could continue on it and she said no. I am now covered in a rash, exhausted, joint pain and feel like rubbish. I don't know why they wouldn't let me continue as it was so obviously working.

I have a Nationwide Bank account. Yes, its £13 per month and includes breakdown cover and worldwide travel insurance. I was on Humira and went to the US in May. Some of the quotes I got for travel insurance were ridiculous (£500-600). I paid an extra £100 with Nationwide. I found Nationwide good...

I had an MRI of my brain! They didn't tell me why but I am assuming it is for MS or something like that. They said it was unlikely they would find anything but due to the numbness/tingling after my loading dose they advised me to stop the humira and wait for the results. I have also read that...

So I took my loading dose 2 weeks ago and now have had to stop to wait for results of MRI scan due to my face, fingers and toea going numb. The numbing and tingling have subsided a lot but it has also made me feel much better! Typical! The results of the scan will be in about 6 weeks! I am...

Not helpful I know but my bloating seems quite random. However, and strangely it seems to get really bad after a bowel movement. (I'm lucky and don't get diarrhoea, I am more on the constipated side). My stomach always hurts just after I have been and the bloating just happens at any time. Such...

I have just joined a gym but unsure what I should or should not be doing. I don't want to do too much to cause a flair and/or fatigue but I want to make it worthwhile. I also have arthritis in my shoulder and not sure how far to push that either. I have been a few times so far doing cardio and...

I was diagnosed with the pill cam and apart from the prep it's the easiest test I've had. What are your symptoms? I think my Drs are also bored with me sometimes as I don't have 'typical' symptoms. My Dr wanted me to go on humira but I bottled it as my symptoms aren't too bad at the moment. Just...

I seem to think about it all the time. I don't always have many symptoms either but worry about it getting worse. I am always thinking things like should I go on to Humira? and every time I have a slight stomach pain or not a nice bm I think is this it? Is it going to get worse now?....Is this...

Where did you go for your massage as I am quite near you....I went to a chiropractor a few weeks back and it caused me to have such a bad migraine it's taken about 2 weeks to recover! I don't think I'll go back! I might also try reflexology!

Sorry it's taken me so long to reply to this. At the moment I generally feel OK. A bit of fatigue especially after BMs and stiff joints. That's why I don't know if I warrant starting Humira. I've had all the blood tests and a chest x ray and waiting for the results and then the doc will do the...

How mild is your disease? Pain? Bloody stools? CRP levels? And what has the doc seen on colonoscopy? I only really have some mild stomach pain, fatigue and joint pain. My calprotectin level was about 230 at last count. My colonoscopy was clear and I was diagnosed by Capsual endoscopy as it's...

Thanks for the replies. It looks really scary when I am reading about sight loss / nerve damage and as I don't feel that sick it worries me about taking such a 'hard-core' drug. Sorry if I sound a bit of a wuss!

Hi. I've said before that my Crohn's seems mild compared to many here. However, my GI still wants me to go on Humira to 'give it a blast' and try to avoid it getting worse. After Googling it (I know I shouldn't) I see law suits from people who have lost their sight or have irreversible nerve...

I know this an old thread but can I join.....in sunny Stockport but under Trafford hospital but my GI works in Wilmslow. I don't understand it either! I don't have access to an IBD nurse so have to save all my questions/worries for the 10 minutes I get to see her every 3 months!

The ulcers were found in my small bowel. I did have a colonoscopy but this was clear although it did put me in hospital for a week with bleeding. From all the reading I have done people with IBS will not have raised FC but you are right about anti-inflammatories. It's all so confusing!