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Hi Jo, Welcome to the forums. I hope we can be of some help to you. It seems like you have been through the ringer with this disease. It also seems like you are being under treated. Panritits? pancreantitis or something else? Gall stones I have been through as well, they took my gall bladder a...

yes you are prolly right! As usual! Hehe how is it I can stay calm and give advice but get sooo frustrated with my own docs?

That the thing though Endocrinologists are saying something else. Its just frustrating. Like I don't have enough wrong that I have to start telling my doc how to read my labs!?

Oh I remember that feeling. It surely isn't pleasant. I think it will get easier as you get used to Crohn's. You kinda have warning on most severe issues. At least thats how it has been for me.

LOL I have l33t google skillz! there is a huge controversy over what TSH levels are considered to high and mean you have thyroid disease. Some places say over 7 (I think) others say over 2. So meh the doctors dont even know what they are doing!! mine is 3.5.

I get lots of anxiety attacks. From things like "am I having a heart attack?" to driving when there are too many people on the road driving like idiots. Try to relax, I know easier said than done.

I am so glad to hear you are doing good! Congrats, you will be eating for the holidays!

Something else to bug my doc for. Along with my thyroid tests he keeps doing. I wish I knew what the numbers meant!

I have never heard of it, but wow that sounds good! I am afraid of popcorn, I avoid it like the plague usually. Every now and then I try it if I have been really good for a bit, but so many times that just ends up badly!

Did you sleep last night? I know not sleeping just makes everything worse for me.

Sure thing! If I can help at all please let me know.

I understand totally not being sure. Surgery in the guts is a very serious thing. I know it is awful when your kids are sick. My son does not have crohn's but I can only imagine. I would have a long, long talk with both the GI doc and Surgeon. From what I know surgery is a temporary fix for...

yep, prednisone stops allergic reactions. I was just put on a fast dose of pred for a hair dye reaction. its also used for asthma.

Sure can. Click on the top of the page where it says "crohns disease discussions" then a new page will load with the main forum. Treatment is a bit down the page, click on that and when the new page appears click on "new thread". You can also do a search for that medicine using the search at the...

Hi Welcome to the forums. So sorry you have gotten this lovely Diagnosis. I know a lot of the medicines for Crohn's are really, really scary. Take a look at the treatment area of the forums, there is a lot of really good information there about all the meds, pros and cons. Remember no...

Hi, Welcome to the forums. I am not familiar with that drug, but you might want to post this in the "treatment" section. Many old members rarely look on this part of the forum. Good Luck

Hi Kelly, I have had several severe strictures over the course of my disease. I am still without having any surgery and am pretty darn near close to remission at this point. I know I have A LOT of scar tissue in my colon, but at my last colonoscopy they did not mention strictures at all. So...

Hi Pat, I feel for you with this undiagnosed business. My doctors just misdiagnosed me with UC 2-3 years later a new GI did a scope and said oh no, thats Crohn's. I have Crohn's colitis (meaning it stays in the colon so far!) and your symptoms sound quite a bit like mine can. I am not sure...

I wish you the best of luck! If I can help in anyway please feel free to ask on here or PM me.

Hi Nicole, Pred has really, really bad long term side effects. I have had Crohn's for 12 years, so way back when remicade was a new drug. The doctors didn't put you on anything unless you had SEVERE disease. So I was left on high dosages of Pred for LONG periods of time. Now I can't take it at...