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Definitely no moon face with that course of pred. My son is in the middle of doing a course of pred that is similar. He is doing 40 mg (9 days), 30 mg (5 days), 20 mg (5 days) and hold at 10 mg for a while (how long is yet to be determined). This course of pred he is doing for some Crohn's...

Update: It took 9 days on 40 mg of pred but he finally can put his full weight on his foot. We have started a rather quick taper so we will see what happens. The sweaty/clammy/flushed/low grade fever stuff has stopped while on the pred. He has, however, been battling some extreme abdominal...

Never mind... just reached for a bagel and brie for breakfast...

I love this blog! Almost makes me want to try paleo again...

My kids had the vaccine years ago as toddlers. Neither of them had a reaction to it. Can you put off getting the vaccine for a week or so to make sure that any possible reaction doesn't coincide with the graduation?

Sorry to hear this. I hope the infliximab works wonders and he feels great on it. :hang:

This sounds very familiar! We have the same thing going on here minus the Remicade (my son is on Azathioprine and Sulfasalazine). We have CRP and fecal calprotectin repeatedly come back normal but the abdominal pain has never completely gone away, and at the moment it is completely...

As Tess said, here in Canada, the CT scans are more readily available. MRI wait lists are LONG. We could demand a MRI but we would still have to wait in line. I went to a talk a while back where a GI presented some info on a new low-dose CT scanning technique that produced images just as...

Pred, our frenemy. Got to love/hate it.

So glad to hear that today was a good day! I hope it continues for a good long time.

OMG!!!!!!!!!!!!! That would be classed as a heat wave here!!! How do people function in such heat?

Kids are so funny. I think he deserves some crutches. :) Although I'll warn you the allure of crutches wears off fast. :ybatty:

Day 5 of pred and walking is getting easier. Gotta love/hate that pred.

I too had to take a break on the whole logging of symptoms a while back. It was making me massively obsessed and depressed. After months of logging all food in take and symptoms I found NO correlation between food and symptoms. I also found that docs were not so interested in my notes, really...

The taping was more or less like this. http://youtu.be/WPsggcRP9EI

With everything else your son is having to put up with I certainly hope his heel pain goes away quickly. If it persists I would get him seen by a Rheumatologist. My son gets mild relief from putting ice on his heel, soaking his foot in a warm bath and on Monday the physiotherapist showed me...

Hi Jame's Mum, Sorry to hear about everything your son has had to endure. I do not have any experience with Imuran and Infliximab given together but I do know that at the large Children's Hospital we go to they have many kids on that combo of drugs. While the combo does carry with it some...

I feel the same way. It definitely helps me to know that we are not alone. Mallory's Mum I've re-read some of your past posts and I think that we might have the same kid. My son often gets loads of abdominal pain with no other signs of inflammation except for the enthesitis and an overall...

Peanut butter sandwich, bagels with cream cheese and strawberry yogurt. My favorite easy on the gut dinner for him is grilled salmon with rice and well steamed carrots.

Yay for the 4 lbs! Glad to hear she has had such a good week.