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  1. Kancer

    Dying of Fever

    I would not be able to get hold of my GI until Monday. I have taken steroids 2 years ago. My GI told me to stop at 10mg. When I did that, I have fever for a week. Then I decided to take 10mg for a week, then move to 5mg for a week and completely get off. Did the same this time but seems like...
  2. Kancer

    Dying of Fever

    I have recently tapered off prednisolone (10mg twice daily, then 10mg in the morning and 5mg in the afternoon, 5mg twice daily, finally 5mg in the morning) - Every taper was after 6-7 days. I have been on preds for about 6 weeks including taper. The last dose was 5 days ago. For the last 4...
  3. Kancer

    Dry Eyes & Eye Pain - Preds

    I won't be having an appointment with an Ophthalmologist till December. I am going to try rescheduling the appointment. Could I have eye pain from steroids? My eyes are extremely tired and dry from the second I get out of bed in the morning.
  4. Kancer

    Dry Eyes & Eye Pain - Preds

    I find my vision gets worse as I taper. Headaches the second I wake up, dry eyes and puffy eyes. I recently changed my glasses and it feels like I am in need of stronger prescription. I am on 15g now. Dropping 5mg a week right now. I get irritated when in lectures when I can't see what the...
  5. Kancer

    Dry Eyes & Eye Pain - Preds

    Is it normal to have extremely dry eyes, blurred vision and mild eye pain while on 15-20mg of prednisolone? I have taken this drug before and had the same side effect within 2 weeks of use. My GI refused to believe the preds caused and referred me to an eye specialist. They found I have high...
  6. Kancer

    Too much effort for a sub-par life

    I am on 500mg x 8 Mesalamine as my maintenance drug and have been on prednisolone for the last 3 weeks. I have 5 more weeks to go before the taper. I am extremely reluctant to use stronger drugs since they pose extra risks. I can't live with myself if I get something worse trying to fix Crohns...
  7. Kancer

    Too much effort for a sub-par life

    This is not my first time ranting about life but I feel that I need advise. I was diagnosed with Crohn's when I was 16. I didn't really care about that at that time and simply dismissed it as BS. At 19, I was put on 60mg Prednisolone as blood tests showed extreme inflammation despite me feeling...
  8. Kancer

    Need suggestion please

    Hi somnath, there is nothing to be afraid about abscess. Let me tell you my story but I may have been a lucky one. I was perfectly healthy until I was 16 when I noticed I had regular constipation. Then one day, I bled when having a BM. I went to the doctor and was told that I have haemorrhoids...
  9. Kancer

    Crohn's indians Support Group

    I am 19 right now and I have thought of all these already. I understand that one should disclose their disease before marriage but there are some insensitive people (potential spouse or their family) that leak the information if they choose to no longer proceed with the arranged marriage...
  10. Kancer

    Experiencing new things every day

    So guys, I have been on this forum for a while and it seems like this disease never stops surprising me. I never noticed this earlier until my sister pointed out so I would like to clarify if this is a symptom of crohns. I happen to get hungry frequently but only have small portions each time...
  11. Kancer

    22 and I don't know what to do

    Before going for the heavy drugs, I would heavily suggest that you try the low profile drugs for a while. Again, it is my opinion considering I have had some good experience. I was diagnosed at 16 and was prescribed Pentasa. Considering I didn't know the severity of Crohn's, I didn't take any...
  12. Kancer

    Crohns causing hair loss?

    Nice to know it grows back. Hope thats the case for me too but is it normal for hair loss even after 3/4 months of stopping prednisone? It's just sad how people with Crohn's pretty much get a taste of every horrible things life has to offer. It gets frustrating :(
  13. Kancer

    Crohns causing hair loss?

    I have been losing hair recently. When I comb my hair or just shake my head, I see my hair on bed, couch, laptop.. literally everything. I am not sure if Crohn's cause hair loss or if its simply due to ageing. (I am 19 btw). I was on prednisone for 5 months and have stopped for the last 4...
  14. Kancer

    Why won't my rectal discharge stop?

    My last abscess and fistula was 2/3 years ago and I believe I do not have any fistulas now as my doctor has examined me multiple times and is certain that I do not have any fistula or abscess. It was also cross-referenced by 2 other doctors despite me having pain in my upper buttocks which is...
  15. Kancer

    Why won't my rectal discharge stop?

    I am currently on 500mg x 4 pentasa daily. There are daily i can do without any rectal discharge however some days I have the discharge :( I am not sure why this is happening. I had Mcdonalds and some junk food yesterday after a long time and this morning, I woke up and my garment had stains...
  16. Kancer

    Fever a sign of crohn's flare up?

    David, it has been 3.5 weeks since stopping steroids. Fever is not persistent but i get low-grade fever once or twice in a week
  17. Kancer

    Fever a sign of crohn's flare up?

    Hello guys, I was recently tapered of steroids from 10mg to 5mg to none. It has been a week since I last took steroids. My doctors said my ESR and CRP are not worrying anymore. So it has been a week since my last dose, and I believe I have a fever. My thermometer broke. Going to buy one...
  18. Kancer

    Might need to start MTX, what should I expect?

    What you would guys consider a high dose of MTX and what dose for maintenance. I am just afraid as my doc said I might need to be on it for life.
  19. Kancer

    Might need to start MTX, what should I expect?

    Hello guys, Looks like Prednisolone 10mg and Pentasa 2g/Day and antibiotics (flagyl & something else) isn't really helping me get into remission and since I have been on steroids for 4months from high dose to 10mg now, the doc thinks its time to move to chemotherapy drugs. I don't feel...
  20. Kancer

    Prednisolone Effect on Final Adult Height :(

    I started Ensure, Flagyl , Levofloxacin 1 week ago. The course for Flagyl and levofloxacin ended 2 days ago. I stopped ensure the very next day after taking it because I have a bit lose stool. Not watery but extremely small. I was scared Ensure might have caused this but I came across things...
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