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Crohn's Disease Forum

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  1. K

    Chronic Diarrhea question

    I have been trying to adopt the paleo diet myself, have you been trying to get the fibre from other sources besides grain? See this about psllium husks, it says it is not a grain but provides the same benefits? http://www.livestrong.com/article/380995-is-psyllium-husk-a-whole-grain/
  2. K

    Anal or Rectal Spasms

    Sorry i can't really help you, I only have pains like that when I have been running to the toilet all the time with D and when I am having a BM. I think the best thing is to say to the GI like crabby said.
  3. K

    How much bleeding is too much

    Just told me to start taking a supplement, my hg came up to 10 from 9.5 so i guess it will come up on its own? Iron is 3, ferretin is still <1. I am having a blood test again next week for my next remicade infusion. So I am going to get them to check B12 levels as they have not done that yet.
  4. K

    How much bleeding is too much

    Hi Thermo Monday went very well, had not reaction at all to the Remicade and so far I have seen a huge improvement. Down to 1Bm a day now, still a little blood in it but i'm sure it will take a while for it to stop completely. I am including psyllium husks in my diet too and that has helped...
  5. K

    Prednisolone Isn't working

    Hi jackwhiting. I can relate to you with the prednisolone. i was put on a 40 mg dose of it too after getting a high dose in hospital a few weeks ago by drip. they sent me home on a tapering dose starting from 40mg and going down 5mg every 5 days. I am also taking pentasa. when they sent me...
  6. K

    Prednisone Taper and Side Effects

    Its good to vent! Prednisolone is definitely just a quick fix i think. and it works for the first few times. for me this time taking it had no effect, so i am still on a tapering dose. but i have started remicade and so far doing very well. i think maybe you need a medication for long term...
  7. K

    14th treatment today friday September 14th

    Great to see good news! I will be getting my second infusion of remicade on monday week and I definitely am doing much better too! Enjoy the thanksgiving!! :)
  8. K

    Pregnancy or crohns symptoms?

    Hi Kerry Sorry i can't help you with any of your symptoms but I was very interested to see that you are on infliximab during your pregnancy. Just wondering how you are getting on with it? I recently started remicade and am hoping to start a family soon as soon as i am healthy enough.
  9. K

    Chronic Diarrhea question

    I would definitely try the pysllium husks, i have been on them for nearly 2 weeks now and i am finding a huge difference. i shake them over my cereal in the morning. also research foods that take longer to go through your digestive system. But also you might need to go back to your doctor are...
  10. K

    Funny tummy!

    Hi I went to a doctor once when I was feeling sick and my stomach was grumbling a lot and I thought it was a bug but he said it was a 'busy' crohn's. Thought it was a funny way of putting it! But he was right as inflammation markers in bloods were up. have you had BMs as you normally do...
  11. K

    I need serious, grown up advice !

    Hi I am in a slightly different position to you in that I am 30 and i want to start a family. But like you I am very sick and tired at the moment and my doctor told me not to even dream of starting a family until my body is right. If your tired, ran down, and sick all the time well chances are...
  12. K

    Obstruction or me just over worrying?

    I agree with the others - prob better to go straight to the hospital. hope you get sorted out :)
  13. K

    Why won't my ibs shift?

    I guess it depends on the person? Are they going to do something with your meds? Or do you have to wait for the specialist. If your inflammation markers are up shouldn't they be putting you on something like prednisolone or some other drug. But I suppose it will be the specialist that...
  14. K

    Asacol medicine not working

    My doctor told me that Asacol is more for just the colon whereas pentasa is for small bowel and big bowel. but both really are only a maintenance drug. i started flaring while just taking pentasa. have started remicade now to get under control. like the others said it probably means you need...
  15. K

    Prednisolone and Salf Intake - moon face

    Hi All Just wanted to share something with ye. Those of us who have taken prednisolone from time to time will all be familiar with the dreaded moon face. I am currently on a tapering dose, but this time I won't be ever going back on it as it didn't work for me. But this time I notice my...
  16. K

    Why won't my ibs shift?

    Just read all of your posts I can't believe that your doctors are not sending you for investigations!!! gurgling and bloating can be caused by IBD too. I think they are being very careless!!!!! i was diagnosed with crohns in terminal illeum but of late mine has moved to large colon...
  17. K

    Seen gastro dr. for first time

    if she is going to give you extra sedation you will sleep right through it :). i know how you feel when they write urgent and you are saying to yourself 'hang on i don't feel im that sick'. i think like that all the time especially when they want to try new meds and stuff but you are better...
  18. K

    Weight.

    hopefully holly mine did but can't remember how long it took, but i know it was maybe a few months?
  19. K

    Crohns is a rich mans disease!!

    I'm in Ireland. We have a threshold on the amount you can spend on medications each month is 132 euro. My medications reach this threshold every month though. so: Meds 132 - a month Insurance VHI 68 euro a month- the insurance will cover me as a public patient over here we have a weird...
  20. K

    Bloated

    i usually find i bloat once i have eaten something to set it off. like even the other day i put a small bit of humus on a bit of spelt bread and that evening stomach swollen. looked back at the ingredients of the humus - sesame seeds!! i too on on prednisolone but am tapering off them, on 30mg...
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