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Crohn's Disease Forum

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  1. DougUte

    Inflectra

    It's All about $ to the insurance companies. I'm finally on Stelara but we had a huge battle with the insurance company before they approved it.
  2. DougUte

    Starting Stelara

    Today I have got things approved, including logistics. My loading dose infusion is finally scheduled for January 5th, 2023.
  3. DougUte

    Starting Stelara

    Well my ER visit ended with an admission to the Hospital. CT scan found a partial blockage at my old surgery site. They aren't sure if the blockage is due to scar tissue or current inflammation in the gut. Evidence of inflammation was also noted. I was on complete bowel rest for over 24 hours. I...
  4. DougUte

    Starting Stelara

    This morning I woke up with abdominal pain in the lower right quadrant. It was bad enough to visit the E.R.. I've been put on an iv with toradol and other meds. They are doing blood draws and an abdominal CT scan. It's definitely medical day today.
  5. DougUte

    Social Security Disability and Crohn's

    I have had Crohn's Disease, diagnosed in 2010. In 2018 I retired from my job of 32 years. In 2021 I started working part time for Doordash. I've been flaring for months and I really can't do deliveries with Crohns. It leaves me with urgent need for the bathroom. Not good when driving. For...
  6. DougUte

    Starting Stelara

    Latest update. The G.I. put me on another round of Prednisone, a 8 week course. I also have diabetes. The Prednisone causes very high blood sugars, so my primary care doctor prescribed insulin. The goal is to get the fasting blood sugar to 140, and I got a 121 yesterday. I'm taking 40 units a...
  7. DougUte

    Starting Stelara

    My provider is Utah Digestive Health Institute at Tanner Clinic in Layton. I'm a Utah alum though. I agree Stelara is pricing itself out of the market. Sorry your going to have to fight through appeals as well. I'm still on Renflexis at this time but it's not doing the job.
  8. DougUte

    Starting Stelara

    It's November now. The insurance required I try Renflexis. I've done that and it is not working. My G.I. sent in another prior authorization and on Nov 3rd it was again denied. I've been on Humira and Entyvio. Both worked for a few years and now have failed. Insurance refused to approve Stelara...
  9. DougUte

    Starting Stelara

    Believe me, I hope so. This flare is very bad.
  10. DougUte

    Starting Stelara

    The first biologic I was on was Humira. In 2018 it failed due to antibodies I built up. At that time my Dr told me he would not prescribe Remicade because it is also a TNF blocker and the antibodies would work against Remicade as well.
  11. DougUte

    Starting Reflexis.

    Well, I've had Humira, Entyvio,and now Renflexis, a Remicade biosimilar. It was suppose to be Stelara, but the insurance obviously knows more than my G.I. and is forcing Renflexis be next. We appealed and lost the appeal process. Has anyone been on Renflexis? How has it worked for you folks...
  12. DougUte

    Starting Stelara

    Well guess what? My insurance has denied Stelara. They are requiring that I go on Renalsis, a Remicade biosimilar. If after 8 weeks that hasn't worked they will approve Stelara. I hate insurance companies.
  13. DougUte

    Starting Stelara

    It's been a long time since posting here. I have been on Entyvio since February 2018. Entyvio is slowly failing me. I've had severe diarrhea. Including wearing depends. Had a CT scan. Which found inflammation in the colon. My GI's PA has started the process of getting Stelara approved. The...
  14. DougUte

    Crohn’s treatment with TWO biologics?

    I'm on Entyvio alone right now. I've had good results from that. I'm not familiar with Tremfya.
  15. DougUte

    Crohn’s treatment with TWO biologics?

    No. What biologics are involved? When Tysabri was being studied for use in Multiple Sclerosis, a study of use with another biologic resulted in 3 deaths. I would be very weary about taking 2 biologics at once.
  16. DougUte

    Covid vaccine 3rd dose?

    My wife has been told by her cardiologist to get the 3rd Pfizer vaccine when she can, hopefully very soon. She is afraid that, because of her Heart Failure and Pulmonary Hypertension, that if she gets covid she will die! Given her health condition, it is not a unwarranted fear. As far as the...
  17. DougUte

    Wife of newly diagnosed husband.

    Welcome to the forum! Sorry to hear about your husband. I was diagnosed with Crohns in 2010 at age 47. I ha d very intense stomach pains, so bad I told my wife I would rather die than livethe way I was. On Father's Day in 2010, I ended up in the ER. The ER doc performed, among other tests, a...
  18. DougUte

    Just diagnosed and looking for support - Help :(

    What Scipio said. Removal of the entire small intestine would cause death. Probably had the Large Intestine aka Colon, removed
  19. DougUte

    Just diagnosed and looking for support - Help :(

    You should give Pentasa some time to work. Diarrhea is the symptom I have most often. If that becomes an ongoing issue talk to your GI about Loperamide or Lomotil.
  20. DougUte

    Just diagnosed and looking for support - Help :(

    Welcome to the club! I had surgery right after diagnosis in 2010, but that does not mean that you will. It sounds to me that your case may not be headed to surgery. There are many IBD patients who have not had surgery. One thing I've learned about Crohn's Disease is all of us are different. You...
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