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Eh, the colorectal surgeon wanted to do a colonoscopy to do a sort of double check for crohns, because he's skeptical whether I actually have it, which I agree with. But I feel like I need to figure out what else is going on first, as he wants to get me off remicade, on a temp bag, and do major...

Birth control always made my vag issues worse. It's amazing how much your hormones can mess with you.

More venting! Now my grandmother is in the hospital! She lives with my uncle who is maybe very mildly autistic or something else undiagnosed, but really he's just horrifically lazy and has been taken care of in every way by his mother for his entire adult life. Now she's 86 and is going...

Awesome. I think we need some more researchers out there.

Not totally sure. My son was pulling something heavy out of the microwave and the oven is directly across from it and he either ran into it or slammed something into it. I'm just glad he wasn't hurt. He's 4. Those little ones sure are resilient aren't they?

I ended up with a fistula after my first colonoscopy. I don't think it's as rare as they say. Not to scare anyone. Sorry.

More lab results are trickling in. No antibodies for lupus, celiac, mctd. My tsh was a very low normal and my t4 was a very high normal. That trends towards hyperthyroidism, but who knows if they'll look into it further since technically was normal range. ANA was negative. It always has been for...

Goodness. Maybe it's something in the air here.

Oh no. I know you had some insurance things, I didnt realize you had physical business goin on too. Are you ok? Yeah I thought 2013 might be my year. So far, not so much.

so they're just running a bunch of labs right now. i've seen some of the results online. of the few things that are coming up abnormal, they all seem to be indicating anemia and some sort of inflammatory process (duh). still waiting for the more complicated labs to come back. they want to do...

My son had a prometheus test, insurance did not cover it (blue cross) and we ended up paying around $450.

I've read about bechets. I don't fit a lot of those symptoms. I'm thinking it's adrenal or thyroid related.

I love your username. Nogutsnoglory. Lol. :)

Well, I do think something is messed up with my mucous membranes anyway, but I've had 2 colonoscopies with biopsies, one before and one after the fistula, and both were negative, with no real indication of disease, aside from the fistula sight. I got diagnosed with crohns based on the fistula...

Isn't metho an immunosuppressant? I don't know, I've never been on it.

I would agree with your dr about the colonoscopy risks. I had mouth ulcers and a little bit of mucous in my stool, had an endo/colo and ended up with a rectovaginal fistula, that in hindsight I realize started immediately post-colonoscopy. Trust your gut instincts. No pun intended.

On a better note, they got me into internal medicine on Monday instead of next month...

i'm actually going for some internal medicine testing, as me and the dr feel there's something else going on and it may not even be crohn's, so i think i'm going to have to figure that out first and then get everything in the southland fixed. i had surgery 3 weeks ago and it made everything...

It's not just my bowels that flare. My joints go crazy and my mouth is like a war zone.

I totally understand the resting the bowels part, and I'm completely on board with that, tbh. I'm just worried that everything will flare up if I'm not on some kind of meds. And then if I flare up and everything falls apart... How did you do off meds?