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thanks guys. i have had my ana tested and it was normal. the only thing that was off pre-remicade was crp. allie, i'm so sorry for you hon! probably better you didn't go on the trip, it just would have been even more stressful.

the fistula's been ok the last couple days, thanks for asking. i've been trolling the net.. as you do... and i'm wondering if i should have my adrenals checked.. i had my hormones tested, and they came back normal, but i still feel like something is still way off with me, and i wonder if it...

sweet musky. that's exactly it. thanks.

smell? gross question - does fistula drainage have a distinct smell? my fistula comes out right next to my vagina. i don't think the smell is coming from the vagina, though. i get smelly down there, and not when i've pooped recently. this isn't stool smelling. i can't describe it. it doesn't...

(i'll preface this one by saying my husband is normally very supportive) - had been sick with perianal stuff and fistula for a few months, barely went anywhere out of the house if i could help it, day before i get my first remicade treatment, scared out of my mind. husband is taking kid to...

you poor thing!! hope you're doing better with it. i can't take flagyl. i had horrible nausea, diarrhea, extreme muscle cramps and a fever, and that was after 2 pills. i didn't take any more after that. hugs to you.

allie, hope your trip goes well and that you don't have problems. cat, sorry about your SIL - similar thing with my sil recently, although she was the one that left and the ex has been stalking and they're both throwing their 4 kids in the middle of everything. it really stinks. just got back...

good luck sunshine - i think you're doing close to the same test i did. it was like slightly sicky sweet gatorade. not too awful. and also, the contrast while you're in the scan, it will make you *feel* like you have to pee, but rest assured, you are not peeing on yourself.

whyclef - did they test for celiac? you could try doing a gluten free diet. have you been tested for food allergies? do certain things tend to get you going?

my pain threshold is pretty high, always has been. i've only had cd for less than a year, so i don't think its the pain all the time anyway theory. i had no drugs during childbirth, until right before the c-section because he wouldn't come out. full labor and pushing drug free. i do think i...

doesn't that sound ridiculous though? gee, we know you had to have part of your internal organs TAKEN OUT because they were so dieseased, but you don't have a disease. :ywow:

i'm not on humira, i'm on remicade, but i had metabolic panels done after 2 weeks of starting, then 6 weeks later, and next one in 3 months, at which they'll be doing inflammatory markers in addition to the others.

stephy - you poor thing. it really peeves me when doctors say eat more fiber! apparently it's the answer to everything right now. well obviously it isn't. lets think, who are the healthiest people in the world? probably asians. what do they eat? lots of rice, lean meat and vegetables. grrrrr...

i would totally do this. and it really makes sense, at least in my case. mine started only in my mouth during a round of antibiotics. then i started taking craploads of probiotics to counteract the antibiotics, and i think between the 2 it completely messed me up. i think the antibiotics wiped...

bsmom- i was going to suggest same as cat, maybe lupus? if ana was neg i'm not so sure. although all his symptoms can be those of many autoimmune disorders. my crohn's first made itself known during a round of antibiotics, and i also tested negative for crohn's twice! they can miss it during...

cat - blood in poo isn't good. call the doctor. however, i will say that when all my stuff was first starting, i was on a lot of antifungals, probiotics and yogurt! and they tore me up something awful, made me bleed. soon as i stopped i was fine. my body just can't handle foreign bacteria...

ever- a lot of times i get sinus stuff with pms/period, too. i read somewhere that progesterone is an immune suppressor. shoots up when you get pregnant so you don't reject the baby. tasha- thanks for the update. i'm glad she's getting help and someone's actually listening. that seems to be...

ugh. i'm full blown sick. hope you don't get it!!

yeah, i've been reading about your issues. that sucks. i was hoping the surgery would be a cure all for you, too. are you going back for a follow-up soon? course, i caught my kid's cold, so i'm sure that has a something to do with the fistula acting up. i'd say the remicade is doing a number on...

my first hole popped up in late june, the second hole in mid august. i started remicade in october. like i said, the second hole has closed up, and that one probably took 2 - 2 1/2 months, that's why i'm hopeful for eventual closure of the original hole. my dr said the same as you. as long as i...