Search results

Was wondering if any of you had Aflac coverage? It is different by state, the rep I talked to told me they don’t cover a medical condition as much as they cover situations. If I would have had coverage last year I could have gotten money for each day I was in the hospital along with each MD...

My doc has decided to have me take it every 6 weeks. According to him this is my last med as I have failed everything else. I have been on it now for a year. Thanks for the info on checking to see if insurance will only give me so many doses a year. I hate this disease!

I have an appt with GI in February and will ask him about it. He will most likely be ok with me getting it every 6 weeks or so, the battle will be with insurance....coz they rule the world! I have the discount card, but it only pays up to $20,000 a year. So I still have to pay a good bit out of...

Been on Stelara now for almost a year. I also take imuran with it. Have any of you noticed that around week six you start to have symptoms? Week six I start getting fatigue. Week seven, it is all I can do to get through an 8 hr work day. I get increased bathroom visits, and abdominal pain...

I developed antibodies to humira and some other component to it. It took a seven day hospital stay, and 4 GI docs to figure it out. And some pretty expensive lab work too. Upping the Stelara would be an option I didn’t think about. I didn’t think about EEN thanks for the input. Definitely...

Thanks, me too. However, I have to be realistic and at least be researching other option. The Stelara could give me 10 more years, or 10 more days. I hate this disease!

Currently on Stelara & it has been working somewhat. I take imuran and probiotics along with it. My GI has told me that I have failed all other meds, and when I flair next it will either be experimental meds as surgery is not a good option for me. I developed antibodies to humira, so GI says...

Sometimes the never ending cycle that this disease causes can really mentally get to me. There were times this past year when I really did feel there was no end in sight. My family was a great support and my husband was the best. Sometimes I just needed to vent and cry, I know it didn't help my...

I want to get back to swimming after the worst flair and c-dif infection of my life. I am currently on Stelara & imuran and worry about the risk of infection. Does anyone else swim? How do you get around/ Handel the fear of infection? Whoops!

Welcome, glad you found this site. Prednisone is the drug many of us love to hate. When I take if I grow a pretty thick mustache.... not so nice for a girl! Stay connected, good luck.

During my last flair I had major brain fog. One thing that helped was to take mini naps during the day. Sometimes even just 10 min in the car would make a big difference. If you can cat nap, try that to see if it helps.

This happens to me a lot. My GI says I have IBS along with crohns. It's frustrating as I never feel like eating, and when I do eat it's usually a small amount. Other than that I just let it be. Doesn't cause any pain. So I don't stress over it much. I just eat small meals frequently

So I'm in a flair and currently going through my 4th round of c-diff this year... nice I know. my very funny elderly aunt calls me this evening. We are talking about this and that while I'm on the sofa when I feel.... THE CRAMP! So I tell her I have to go... it dose't register with her. Again...

It seems to be a lot here lately, worst year ever for me with crohns. What to wear, time of taking meds, bathroom schedule, toilets on the way to work, work schedule, what to eat or not eat for lunch.... treatments, meds, next GI appt, if current meds stop working then what.... I feel that it...

So I have C diff now for the fourth time this year! Doing a fecal transplant tomorrow. Does anyone have experience with how long after this will I have to wait until I have a neg stool? Thanks Woops!

Have you looked into Stelara? My GI has told me that it's about the only option left for me. It has been working well, just takes a while to work. My major side effect is hair loss. Starts with infusion and the injection every 8 weeks.

I've been taking my Stelara now for about 10 weeks. It did take a while to work, but so far the results have been good. My current problem is c-diff. I plan to talk to GI about some good probiotics. Thanks for all the responses.

I have had the infusion end now my first injection. I was very sick when I started it. I noticed some small improvements after the second week of the infusion, I am currently still dealing with diarrhea, but not as much and no blood in stool noted. So for me it has taken a while. I was told it...

It just slowed me down a little, I did have some blurred vision & a little dizziness with it. I didn't like the dizziness so stoped taking it.

Thank you guys for all your support. I'm sorry that everyone has to go through this horrible disease. My GI has mentioned doing the fecal transplant, honestly I would love to just do it now and be done. Would love to just go ahead and get a bag and be done. My insurance company dictates...