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Crohn's Disease Forum

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  1. Rebecca85

    Do I quit my job to recover from flare up?

    You could speak to your boss, see if they can accomodate some changes to your schedule. Last year I went part time (mornings only) for a few months, and it made a huge difference. I was struggling with fatigue and depression at the time. Going part time meant I was able to rest each afternoon...
  2. Rebecca85

    Remission & immune system

    I always had the opposite effect- when I was 'almost' in remission, a cold or similar would give me a few days of being able to eat just about anything I wanted with no consequences. Now I am pregnant, the same has happened. I put it down to my immune system being 'distracted' by something else...
  3. Rebecca85

    Sleeping

    I go through phases of struggling to sleep. I will often listen to relaxing music in bed- it helps my mind switch off and even if I can't sleep at least it's restful.
  4. Rebecca85

    Constipation and ulcers questions

    I don't see where it says you have 2 types of ulcers. I read it as being "erythematous, hemorrhagic, ulcerated, and to show loss of vascular markings (and all of those things are) suggestive of stercoral ulcers due to constipation." But the biopsies should give more information as to the cause...
  5. Rebecca85

    Constipation and ulcers questions

    Basically, they are saying you got so constipated that you had a ball of stool blocking your colon. The constipation and hard stool has also given you stercoral ulcers, due to the hardness and pressure of the stool passing through (they are different kind of ulcers to IBD ulcers). Hopefully a...
  6. Rebecca85

    Crohn's and pregnancy tests

    I hadn't heard anything aput Crohn's and false negatives before. I don't really see how it would affect it, since the test measures hormones in the pee. For the record, I used a cheap Internet test (10ml sensitivity) and got a faint positive 2 or 3 days before my period was due.
  7. Rebecca85

    Gotta plan my flares apparently

    Personally, I would make the appointment while you still have plenty left, when they ask you be vague and say you have 'a couple of days worth' left. Not exactly lying, as in a flare you could take 20 in 3 days, right?
  8. Rebecca85

    Neurological Issues?

    I don't mean to scare you, but symptoms that become worse in heat are a classic sign of MS. if you haven't already, please beg for a neuro referral to rule MS out. (sensory symptoms that appear when you put your head down are classic MS too)
  9. Rebecca85

    Neurological Issues?

    My MRI was done without contrast- meaning the lesions found on my brain were essentially 'scars' rather than anything actively inflamed. To be honest, it was a relief to know what was going on, because I had been fobbed off for the best part of 2 years with 'it's Crohn's' 'you're anaemic'...
  10. Rebecca85

    Sweating and body smell

    You can try extra strong deodorants from a pharmacy, they come in a roll on or stick type, and usually say to apply at night and wash off in the morning (the active ingredient is absorbed under the skin and blocks the pores to stop you sweating). Other than that, just good hygiene! (I often...
  11. Rebecca85

    Neurological Issues?

    I have also had neurological problems that started alongside the Crohn's but never went away. I have constant pins and needles in my hands and feet (b12 levels are normal, and b12 supplements made no difference). I also have mild numbness and other sensory disturbances (feeling things that...
  12. Rebecca85

    How do you know?

    I would say I have been in remission for 18 months or so, meaning inflammation markers normal, and no daily symptoms provided I didn't eat any trigger foods. Eating trigger foods would give me an uncomfortable day but then my guts would soon settle down.
  13. Rebecca85

    Anxiety/depression

    Me too. But in my case the anxiety and depression have been in my life (albeit intermittently) before the Crohn's.
  14. Rebecca85

    Sweating and body smell

    I don't know- but I sweat a lot and smell (like a chemically smell) whenever I am in a flare or ill with something else like flu.
  15. Rebecca85

    Diarrhea after CT prep

    Was it the aniseed/liquorice tasting stuff? I had that for my CT and yes, it gave me diarrhoea for a couple of days afterwards. I can't remember the colour though!
  16. Rebecca85

    Angry bottom!

    Ditto- I managed to get myself a fungal infection due to a fissure that wouldn't heal. A few days of Canesten Hydrocortizone cream and the fissure finally went.
  17. Rebecca85

    Periods have completely stopped :(

    Well done for putting the weight back on! I guess your Crohn's must be under control now? Firstly, I would be asking your doctor to check you for any vitamin or mineral deficiencies or anaemia, just in case. How tall are you? Or do you know your BMI? And can you remember what you weighed when...
  18. Rebecca85

    When in an active flare, how comfortable are you traveling?

    I would not want to fly when in a flare- even in remission the pressure change messes up my bowels! On my last two plane trips, I spent one in the bathroom because I was petrified of having an accident, and the other one in the bathroom puking. Going in a car and staying in a hotel probably...
  19. Rebecca85

    Iud?

    I don't think there's anything specific about an IUD that is incompatible with Crohn's. Just the usual risks involved. However, you may want to consider a non hormonal one, as some people can be affected by the hormones and make them flare, also there is a small increase in the risk of blood...
  20. Rebecca85

    Survey for a UK Health Student

    Done. Slightly OT, but she is attending the same uni I did, and is probably studying via the hospital I go to.
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