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Ok...so some positive labs this week for Matt ....but of course they come with the usual concerns....so Put on your thinking caps everyone as I'm seeking some knowledge again! So the labs.....we have had an issue with high liver enzymes and that has not changed...now the good news...

Thats awesome news! Good for you guys!

Hey all, it's Mike/Dutch's wife, Hayley, hijacking his log-in (hi honey!). I just wanted to pop in and second Angie's post that it was really nice meeting some other IBD families. It was funny because we didn't quite know how we'd spot everyone (for some reason I thought Izzi was 7 so I was...

We did notify the doc...waiting to hear from him...at this point I'm assuming it is unrelated to the meds....

Anyone else have an issue with sleepwalking children? Specifically those on 6mp? Matt was very grumpy....miserable for two days and then last night ended up in our bedroom at 4am...sitting next to our bed. I was sure he was going to tell us he was sick or his stomach hurt ...but instead he...

I know....I wish I was younger...I would go back to school to become a doctor. I am some of the knowledge rubs off on My son and he chooses to pursue medicine..then he can prescribe his own LDN! When we go to dr..we bring a bullet list of questions and concerns.....we go through each item...

Tiffany, I should add I don't want to worry you any......if I recall he Did say it has a purpose...just not a good fit for us.

Tiffany...I wish I could recall exactly...next time we speak I'll ask him again..it's so hard to recall everything when you're asking 20 plus questions! What I remember is he said it is often used for adults but he believes it too risky for peds because of a strong likelihood of cAusing some...

Ok....update time....things looking better! Liver enzymes returning to normal....alt is normal...ast is still a teeny bit elevated... Sed rate is now 10! And crp normal also....all this after dr raised the pentasa to 2500 mg per day. So ..for now....dr doesn't see a need to re scope or...

Miss.....your doctor said...no, don't use it? Or no, it doesn't affect puberty?

Ok...just researched reason....he stated that allupurinol would actually raise the amount of 6mp in his system and could cause further liver issue....he said that it also increases the risk of bone marrow issues and white blood cell loss I think.....he states it is not commonly used for peds

Thank you.....we have already asked about that and allupurinol is not a viable option for us.......I forget Why he said....but I believe he does not feel it is safe to use for Pediatric patients ..at least those with the same circumstances as my son?..

Ive heard that milk thistle helps reduce the effect of 6mp on the liver... We bought some today for 13 year old with elevated ast and alt......but then we saw that it may have an estrogenic effect.... Two questions: 1- Does anyone know the preferred form of milk thistle? We bought a freeze...

Ive heard that milk thistle helps reduce the effect of 6mp on the liver... We bought some today for 13 year old with elevated ast and alt......but then we saw that it may have an estrogenic effect.... Two questions: 1- Does anyone know the preferred form of milk thistle? We bought a freeze...

So sorry to hear about your son.....we are also dealing with a 13 year old boy here......imguess I take for granted that we have insurance to help.....I can't imagine struggling with this while worrying about ow to pay for it as well. Talk about being under pressure. 6'3" 185! Wow. Big...

:(. Ugh. Keep your chin up.

Appt was very positive! All things considered his progress seems very good. We started the ball rolling with LDN discussion......he didn't freak out....he's willing to look at the informTion we brought, however.....he says he has never prescribed anything experimental Nd would not unless...

Yeah .....I know that feeling also......Matt seems to be symptom free...looks good....active.....no vomit...no diarrhea.....yet ..labs are negative....dr talking about remicade!!?!? Grr... We go for appt today And were gonna drop the bomb that we have been researching LDN and see how he...

Oh great......keep me posted.

That is awesome to hear! Good for you guys! I wish we could have made the walk...we had so much going on that day and we could have made it but we would have had to rush there...leave quickly...and rush back. :(