- Joined
- May 23, 2011
- Messages
- 1,554
Izzi's much ado about nothing
So she is still doing fab. She is down to a month between labs (she asked last week when she was going again...said she missed the phlebotomist :ylol
Again, this makes me SUPER reluctant to concur that surgery is necessary. Her local GI offered to scope her (I have concerns that we are taking out a healthy looking colon) and I am waiting on a date-late July or the second week in August.
He agrees that the surgery may not be necessary yet while admitting that her Boston docs are more experienced with Tacro/surgery.
I just spoke to the mom of the 7 yo that had the surgery this spring...and she is on 6mp post op-as we all know surgery is not an end all to Crohn's...so what is the point of removing a healthy kids colon and them still needing drugs??
So we are enjoying our summer...hitting the beach and every park we can find...while I am in denial about her disease......because I can be while she is practically asymptomatic!!
So she is still doing fab. She is down to a month between labs (she asked last week when she was going again...said she missed the phlebotomist :ylol
Again, this makes me SUPER reluctant to concur that surgery is necessary. Her local GI offered to scope her (I have concerns that we are taking out a healthy looking colon) and I am waiting on a date-late July or the second week in August.
He agrees that the surgery may not be necessary yet while admitting that her Boston docs are more experienced with Tacro/surgery.
I just spoke to the mom of the 7 yo that had the surgery this spring...and she is on 6mp post op-as we all know surgery is not an end all to Crohn's...so what is the point of removing a healthy kids colon and them still needing drugs??
So we are enjoying our summer...hitting the beach and every park we can find...while I am in denial about her disease......because I can be while she is practically asymptomatic!!
Last edited: