Search results

My dad and I both have Crohn's. I feel terrible for my mother who has had to take on many roles in her life. She ultimately makes decisions and is the one who has had to work while my dad wasn't. My mother tells me all the time that back then when my dad was initially diagnosed early in their...

Been thinking more about my purpose now that a whole bunch of things are going wrong. 2 steps forward and a million backwards. It's just so hard to think about 'purpose' when your so fed up. Pretty sure the last thing anyone should think about is their life meaning when your defeated as can be...

I'm on the same vitamins and supplements as you are. Blood test checks out well. I go to bed pretty early lol too early to admit and I still am very tired. It takes me a couple of hours to fall asleep and then I'm awaken throughout the night by joint pains and bathroom visits. I don't drink...

it's hard finding people out there around us who understands what it's like if they aren't dealing with it themselves. We got you:dusty: My father has had Crohn's for decades now. I got diagnosed with Crohn's 3 years ago. You'd think my mother who is familiar with Crohn's now would recognize...

Back to back viruses have left me vulnerable and unable to take the Humira. 😑 It sucks being so heavily dependent on a single dose. On top of that I lost hours at work again for the 3rd time this year. My schedule seems to change overnight and messes with my pay. People don't know what's...

I live in BC as well. I've been on and off antidepressants. The journey to getting diagnosed was a pretty tramatic journey that left me having to take them. Doctors at one point thought telling a young kid, hey, this will make you magically healed was something appropriate to say. Or that it's...

I was turned down the first time because my diagnosis was not 'suffient enough. Their was no way to say yes my condition will continue to last more then 12 months etc. Finally got it with the same diagnosis but I had to go see an advocacy group who helped me reapply with more documents to...

I'm not coping well these days. The feeling of being unwell and dealing with those unwanted symptoms are just playing with my mind. Not to mention life not working out as I wished it would. As I work as a teacher I just was told yesterday that my hours got cut for the third time this school...

Though my scaring as healed nicely from being on the Humira I'm still having frequent bathroom trips, abdominal cramping etc. It is greatly reduced but the symptoms are still there. I remember reading somewhere that when doctors say remission it only means there is a reduced amount of symptoms...

if your hoping to start having children soon there is a forum somewhere on here where you can communicate with women trying to conceive etc. Definitely mention to your Gastrointestinal that your hoping to start trying for a family. There might be some changes to your Meds etc. I hope to be in...

I was diagnosed back in 2014 with Crohn's after a very painful 7 years of misdiagnoses myself. Soon as I was diagnosed they put me on entocort for about a year hoping to put me in remission but that itself didn't help. I was then put on Humira which in less then a year put me in remission. Im...

My dad has long battled a Crohn's--over 2 decades now and he's been on every medication. Recently my mother came up to me and asked me how we can approach the subject of body odor with him. He's always had bad BO which we contributed to his medications etc but it is very hard to talk to him...

Goodness seems like he has dealt with an incredible amount of stress in the last while. That too can really upset the Crohn's. I have Crohn's but my father has dealt with his own Crohn's battle for nearly 2 decades now. With the amount of various medications to treat the Crohn's--along with...

Newly 24 and I was diagnosed in my early twenties. Pretty difficult trying to adjust to adulthood dealing with all the feelings of unwellness. Beginning highschool I was sick---doctors couldn't figure out anything yet now that I look back the Crohn's made perfect sense. Quickly got an...

It's a tough battle trying to find balance between personal identity vs the identity with a sickness. There's often times I wish for that 'typical' life without barriers but I try to believe there is a purpose beyond all of this mayhem. Still trying to find mine. Be strong. Be kind to...

I read an article that talks about the metaphysics of illness. I don't know if I agree with what they explain as the reason many of us have gastro related issues. Thought I would share and open a conversation about what you may think has contributed to your illness SMALL INTESTINES...

Something I have been doing as of recent is listening to sounds on YouTube(rain, firewood noises, ocean). I've tried the whole meditation videos but I have a hard time focusing when someone is telling me to breath---and then knowing another instruction is coming I can't focus. Doesn't work all...

I'm 23 and I'm pretty much only existing---mine and my parents own words. I graduated highschool.. went to uni... started to work in schools and I'm now coming to the realization that I picked potentially the worst career for someone with Crohn's.. I choose it because I knew I needed to get to...

I so feel you. I was quickly diagnosed right after highschool and I had all sorts of plans prior. I wanted to start schooling to get into counselling--I didn't have to move---but I was told by my doctor that I should consider a less stressful career. Then I get into teaching and now I'm starting...

Unfortunately the only way doctors have been Able to determine the stage of my Crohn's is through scopes and elevated inflammation in my blood work. Everything else comes back a little elevated over normal but not as high as some with this disease. My gastrointestinal doctor said he has other...