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Grapes are cool! Gardening is very rewarding. I really love to keep all our trees pruned and tend to crops and shrubs. It makes me feel like I still have purpose. Nature is awesome!
 
4ever,

You are a very talented artist. Have you ever thought of doing cartoons for the big newspapers? I think you could make a small fortune doing that. You could even do it from home!

Just my thoughts,

cmack
 
Thanks buddy's yeah that was my dream, but just stopped working at it. So now I try an encourage everyone to stick with what they love to do. Hey cmack bro I have a question you have IBD and I know it's different from crohns but how much different? You still get the cramps, and have to run to the bathroom right. Does it cause polyps in the colon to...
 
I love gardening too. It's so much harder now since my spinal cord injury but I'm still out there doing it just have to have sitting areas around everywhere which my cut up tree is working and looks good all the stumps. Finally figured out you need to stain the top and bottom the pileated woodpecker told me that lol. Just trimmed my rose and blueberry plants.
 
Hell yeah GI Jane I love it very much it's almost like meditation for the soul. But right now it's kinda hard to get out in about, Cause my legs still hurt like hell sometimes cause of that damn edema. Thank God they are back to normal.
 
crohns4ever said:
Thanks buddy's yeah that was my dream, but just stopped working at it. So now I try an encourage everyone to stick with what they love to do. Hey cmack bro I have a question you have IBD and I know it's different from crohns but how much different? You still get the cramps, and have to run to the bathroom right. Does it cause polyps in the colon to...
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I get the cramps sometimes if I eat the wrong thing(meat or GMO's). If I catch a cold it gets worse. I'm not sure what it really is that I have. It could be that it is Crohn's, the doctors suspect that is what it is. No tests have ever been conclusive for me. I had several polyps in my colon removed years ago when I had my first bad flare. I had everything going wrong all at once. Abscess, fistuals, (five I think),several hemi's and to top it off several fissures. I was heavily doped up, so some of it is a blur in my mind. No fun at all.

Yes, do stick to what you love to do. I think you should do the odd sketch and sharpen your skills. You can get back in the swing of things and still grow your grapes. That would be cool.

Just my thoughts
 
I had to ask my neighbors 14 year old son has IBD when we last talked before I got sick he made it sound similar to crohns. So I had to ask to see if what your thoughts on it was, just what my neighbor's son told me.
 
I cant use toilet paper! It irritates me as I have had my outer sphincter muscle severed due to fistula surgery. So now part of the the inside has become the outside, it is very tender. Toilet paper always irritated me especially when I had lots of bathroom trips. I wash in the shower and use a finger with a very short fingernail and a clean hand,(you gotta get right around the area gently). Use a fairly warm, medium spray from the shower head to reduce the irritation, soap is not recommended, it irritates the roughed up area. Maybe you should try the shower method before it bleeds more. It is such a vicious cycle.

Just my take on things
 
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crohns4ever said:
Yes I do, but I let something's slip through the cracks that I liked. I used to be a very good cartoonist and animator but now since I haven't done it in like four years plus it's hard you know. My avatar for this site was the last cartoon sketch I did bro..So don't stop what you like doing, it's hard to get it back.
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That's so cool! I'd love to see some of your art. c: I'm studying animation. :lol2::eek:
 
I will post some of my animation full body cartoons today CP. Just got to get them out of my sketch book. I think you will enjoy animation art. Keep up with your studies, and don't give up no matter how hard it gets. Your friend crohn's4ever..
 
cmack said:
GI Jane,

Don't you think those pileated woodpeckers look prehistoric? Almost like a baby pterodactyl. LOL We have them around here every day. So cool looking!
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They are they are so cool and not afraid of you at all....which was a problem when I tried to get them off my cedar siding which was weird they were banging on since it's new.
 
That's not very nice of them! There must be wasps or carpenter ants in there somewhere.
They usually only do that if there are bugs to be had. I took my pesticide dispensers license if you need any tips. I hope they leave the siding alone.
 
I am doing ok today bro, how about you? I just wanted to know about that woodpecker y'all were talkin about. Here we have some really big sized with a red top on it's head..them darn things drive you nuts ounce they get started...
 
I am pretty sure they are the same. I enjoy bird watching. Normally ravens scare all the birds away from the suet and seeds. Today old Woody the woodpecker stood his ground. The raven didn't wanna mess with that big beak! LOL
 
We have all of the the pileated the downy are the most common around our house. We also have a murder of crows that live in the same area so I guess they are ok with each other by our cabin. Recently found out that a flock of crows is called a murder weird.
 
Hope y'all my buddies will get well soon. Sucks when you're stomach hurts or cramps.. hope y'all get to feeling better soon.
 
Had a GI appointment today everything is going fine he was very happy about all of my progress from the time I was in the ER.. he took me off 6-MP and put on Imuran 100 mg a day..
 
crohns4ever said:
Had a GI appointment today everything is going fine he was very happy about all of my progress from the time I was in the ER.. he took me off 6-MP and put on Imuran 100 mg a day..
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I'm happy for you bud. That's great news! Keep it up, hopefully you will keep getting better and better. I think you are getting to be back on the right track. I'm proud of you for getting over your fear of eating. That is a tough thing to overcome. Good on you bro! :ysmile:
 
Ugh..... I'm getting ready for a plethora of blood work this coming Monday before my remicade infusion......I finally signed up for my doctor's on line patient portal and can now see all my results in one place! I can also track individual blood results, and have noticed a few things have been flagged since June of last year....I get blood done every four months. My right hip has really been bothering me, if I sit for any length of time it really starts to ache! Oh yeah, I have an upper scope on thursday, haven't had one in over 20 years, am hoping I'm not awake for it!
 
I don't think you'll be awake my GI always put me alsleep doing upper and lower. I feel your pain what your going through. Hope you get to feeling better. Your friend crohn's4ever....
 
Lisa said:
Ugh..... I'm getting ready for a plethora of blood work this coming Monday before my remicade infusion......I finally signed up for my doctor's on line patient portal and can now see all my results in one place! I can also track individual blood results, and have noticed a few things have been flagged since June of last year....I get blood done every four months. My right hip has really been bothering me, if I sit for any length of time it really starts to ache! Oh yeah, I have an upper scope on thursday, haven't had one in over 20 years, am hoping I'm not awake for it!
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I wasn't awake for mine which I had last month. I alway tell them make sure to give me enough to not wake me up since I did once. So the last few times they have done awesome keeping me asleep.
 
There were three fathers to be in a hospital waiting room, waiting for their babies to be born.

The first nurse comes out and tells the first father, "Congratulations you're the father of twins!" He says, “Great! I am the manager for the Minnesota Twins."

The second nurse comes out and tells the second father, "Congratulations you're the father of triplets"! He says, "That's cool! I work for 3M."

The third father opens the window and jumps out.

The third nurse comes out, and asks, “Where's the third father?"

One of the other fathers said, "Oh he jumped out the window."

The nurse asks, "Why?"

He replied, "He works for Seven Up!"
 
Oh, I forgot to add yesterday, the infusion clinic has gone under the auspices of the apheresis unit...... My last infusion was January 16, and it STILL did not show up in my insurance!!!!! I just found an "encounter" went in my record, but it has incomplete and incorrect information in it!!!!!!!!!!! Grrrrrr
 
cmack said:
That's not very nice of them! There must be wasps or carpenter ants in there somewhere.
They usually only do that if there are bugs to be had. I took my pesticide dispensers license if you need any tips. I hope they leave the siding alone.
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I have been fighting the wasps hummm.....grrrr
 
ronroush7 said:
I am sorry, Lisa. Hopefully, it gets straightened out.
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Looks like it is...after multiple phone calls, I found out that my Remicade is not being billed under my hospital benefit instead of my medical benefit.

Thankfully, it is still FULLY covered under the hospital benefit! (Blue Cross) Otherwise, I'd be on the warpath!
 
Hi! I just wanted to introduce myself. Maybe make some friends who understand this mess of a life if u want to call it that I am in. I'm just so sad and miserable lately sorry first post and already whining. Thanks for letting me vent❤Julie
 
Juulez said:
Hi! I just wanted to introduce myself. Maybe make some friends who understand this mess of a life if u want to call it that I am in. I'm just so sad and miserable lately sorry first post and already whining. Thanks for letting me vent❤Julie
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Welcome.
 
Juulez said:
Hi! I just wanted to introduce myself. Maybe make some friends who understand this mess of a life if u want to call it that I am in. I'm just so sad and miserable lately sorry first post and already whining. Thanks for letting me vent❤Julie
Click to expand...

We all totally know in one degree or another, you're among friends.
 
Warm Welcome Juulez...don't need to hold in your feelings here. We all understand .
What is it that has you feeling down my dear ? Can I help in any way ? rosette1:
 
Back to back viruses have left me vulnerable and unable to take the Humira. 😑 It sucks being so heavily dependent on a single dose. On top of that I lost hours at work again for the 3rd time this year. My schedule seems to change overnight and messes with my pay. People don't know what's happening with that and I'm just sitting back having to be like oh it's not a big deal that the computer systems are messing with my life. My blood tests and the specialist can't pin point why I don't fully recover from sickness. That is good that there is no other issues going on but my body can't fight infections like it use to. Doctors won't give me longer dose of antibiotics 😕😭

Rant over..
 
it's hard finding people out there around us who understands what it's like if they aren't dealing with it themselves. We got you:dusty: My father has had Crohn's for decades now. I got diagnosed with Crohn's 3 years ago. You'd think my mother who is familiar with Crohn's now would recognize that she can't compare what works for me to what works for him. Though she's seen the sickness and all the gross things associated with it--she herself has a hard time understanding and accepting what is.


Juulez said:
Hi! I just wanted to introduce myself. Maybe make some friends who understand this mess of a life if u want to call it that I am in. I'm just so sad and miserable lately sorry first post and already whining. Thanks for letting me vent❤Julie
Click to expand...
 
MizzSarah said:
it's hard finding people out there around us who understands what it's like if they aren't dealing with it themselves. We got you:dusty: My father has had Crohn's for decades now. I got diagnosed with Crohn's 3 years ago. You'd think my mother who is familiar with Crohn's now would recognize that she can't compare what works for me to what works for him. Though she's seen the sickness and all the gross things associated with it--she herself has a hard time understanding and accepting what is.
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Hi I'm sorry to hear abt your work and family. We are hear for u always u can ask questions,just vent, or whatever helps. 💜Julie
 
My family is like oh you're looking better today...hoping I'll agree. I do sometimes to just give them hope. When all I really did was find the strength to get our of my pajamas and take a shower lol.
 
GI Jane said:
My family is like oh you're looking better today...hoping I'll agree. I do sometimes to just give them hope. When all I really did was find the strength to get our of my pajamas and take a shower lol.
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oh my I so agree I got dressed brushed my hair and put on lipgloss you would think they thought I was cured. Just happened to have a tiny bit of energy to do it. Wish they understood😔Thanks for writing julie
 
That makes me think of when I had a bad abscess. One of the pastors​ at my church was encouraging me to shave​ and shower.
 
I know people usually mean well but....it's tiring at times to explain that nope Crohn's Disease is currently incurable.....and brushing my hair and getting dressed doesn't make me better....oh well people mean well.
 
They all mean well for the most part. Nobody really understands until it happens to them. I wouldn't wish this upon anybody, that's for sure. I have several people that I have known well that committed suicide over crohn's. I'm angry that they took that way out, but I miss them just the same. I choose to hang in there. I hope all of you do too.
 
:yfrown:sometimes it feels as if that's the only way out. The pain and lack of a life and friends just take over. I have talked with my therapist and we made promises and I just won't do that I may want to have something happen and never wake up but I know in the long run that's not what would make me or my family better off. Someday things will improve.. and I will find a purpose other than pain and I'll meet a wonderful man and great friends that understand me. I look forward to that time in my life.
 

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Sorry Ron, hugs and prayers. I'm on the flip side of this bizarre universe for once in my life and had a suppository, stool softener, miralax, stool softener tea and magnesium yep never thought i'd miss the runs. lol
 
I've been so busy doing the things which I wont be able to do for awhile and prepacking and and and aaahhh....any suggestions on what kind of top for the hospital?? buttons no buttons.... zippers.... not sure which will be easier?? then I pack both.... then dump it all back on the bed.....sigh.....help I want to close my suitcase!!
 
Hey Jane,

Yeah, I hate to say it but it's gonna hurt for a while, There is no way I could pull on a t-shirt after my surgeries. The pain will get better though, one day at a time. I cannot stress enough to ask for a pain specialist before surgery. It made things so much better once I learned about those pain experts. You deserve proper pain management.

Keep in touch my friend,

cmack
 
Sorry abt all you're going through JANE. I just found out I have to have 2surgeries soon. So I kinda think I know partially hoe you're feeling. I hope we both get to feeling better. 😊
 

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