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Crohn's Disease Forum

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  1. M

    Has anyone who failed biologics went on to Imuran with success?

    Octobergirl (my dear one) You have said the magic word for all of us with IBD ---- "hopeful". From your lips to God's ears. Thanks for reminding me, and may those little yellow Imuran tabs do the trick for you. Best, Miles
  2. M

    BCBS (of IL) is jacking me around, any advice?

    I take Humira.. My doctor's office set up the drug through Avella Pharmacy. The Dr. mentioned problems such as yours with other suppliers jacking you around. I am on COBRA, Blue Cross/Blue Shield. $5.00 copay per month's supply. Try Avella. Your Dr. office will need to get involved. phone...
  3. M

    FECAL TRANSPLANTS: A Guide

    Joshuaaa, Got my fingers crossed for you and prayers asked. Good luck and keep us posted! Best, Miles
  4. M

    The Miserable Prednisonites Club

    Hi all. I was on intravenous cortisol a month ago in the hospital. Have been tapering since release from 40 mg. Now down to 20 mg. I am so tired and fuzzy headed and usually have daily panic attacks. I am a Crohnie of over 40 years and have never had these effects from prednisone. Does age...
  5. M

    Humira and peripheral neuropathy

    Thanks Brian. From my experience, you will only "walk through the valley" for so long. One day you will be in the daylight and this will be a memory. Stay strong! Miles
  6. M

    Humira and peripheral neuropathy

    Sorry to hear that you are still having problems Kotite. You look like a fairly young man so maybe relative youth will work in your favor. I hope so! I am 63 and have been a Crohnie for over 40 years. I decided to use Humira after much contemplation. If I rolled snake eyes with Humira, it...
  7. M

    Humira and peripheral neuropathy

    Kotite, I feel my case of PN may be like yours. I have begun Humira every week and wonder if the side effects will be permanent. Side effects include dizziness, extreme fatigue, foggy headedness and numb feet. I am also taking Aza (100mg per day), and am tapering Pred (down to 25 Mg per...
  8. M

    Humira and peripheral neuropathy

    I can deal with neuopathy as long as the gut goes into remission. Both, however are hard to handle. have a good week. Miles
  9. M

    Humira and peripheral neuropathy

    Mine started right away. Small stabbing pains in both feet and now general numbness in both feet. Miles
  10. M

    Humira and peripheral neuropathy

    Neuropathy in both feet I,m starting a regime of amitriptyline today as supported therapeutic benefits help with neuropathy in some cases. I'll let you know how it goes. Best Miles
  11. M

    Weekly Humira or a round of pred?

    Moving to weekly Humira this week. Daily 50 mg Aza with dose to be upped to 150mg shortly. Currently on 40mg Pred until begin taper next week. I am 64 and have been inremission for 32 years. I believe that age has slowed my body down and my systems are weakened to fight Crohn's attacks. At...
  12. M

    Has anything good come from your illness?

    Most definitely! My wife, 4 children, and now 6 grandchildren! Happy 4th fellow travelers. Miles
  13. M

    So tired, all the time?

    I fear also that I am depressed. My wife of 38 years has announced she is leaving and going to "start a new life". Can't say as I blame her since the things we used to do together are no longer possible because my health keeps me semi confined. I am not on psyche drugs at present so maybe...
  14. M

    So tired, all the time?

    Buttercup, Don't feel alone with your fatigue. I have been hospitalized 4 times since Feb and I am also fatigued constantly. Went to buy groceries yesterday and had to sit down on a stack of Cokes to catch my breath and gather myself. Brain fog-- I've got that too. Very frustrating. I think...
  15. M

    Hard to get a card in Canada?

    I live in NC. We can legally make "likker" as long as the state gets their cut. We can now legally gamble as long as the state gets their cut (for education of course). MM will be next as long as the state gets their cut. Drs. are reluctant to prescribe because they can lose their license...
  16. M

    My Crohn's Saga

    Hello Margaret. I was diagnosed with CD in 1970. 9 resections, fistulas etc. Then it went away. It's back now and I fear with a vengeance. I started Humira 8 weeks ago. I have had some improvement so I hope for more in the days ahead. I wish you well with your treatments. Hope you and me...
  17. M

    Really bad dehydration...

    I am coherent when dehydrated. A sure signal a dehydrated body needs replentishment is dizziness when moving from a sitting to standing position. Please don't wait too long to seek fluid and electrolyte replacement at a hospital or clinic. Don't wait on a loved one to diagnose. Despite their...
  18. M

    Really bad dehydration...

    Horselover, Sorry to hear of your struggles. Do you have short bowel syndrome as well as CD? I drink Pedialyte when getting dehydrated. Try to drink it at room temperature. Cold fluids push my trigger and increase my D. Coconut water is good also. In my case, once my electrolyte level...
  19. M

    Humira?

    I started Humira 2 months ago. Just now beginning to notice changes. Others I've spoken to on the drug notice fairly immediate results. I have noticed no serious side effects from the drug. I use the syringe. Quick and almost painless (to me anyway). Good luck if you decide Humira is for...
  20. M

    Looking for a better drink for upcoming scope

    Vegan, Let us know how your walk goes also. Miles
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