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Crohn's Disease Forum

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  1. SarahBear

    Diarrhea, stomach pains, joint pain and skin after smoking

    Have you been diagnosed with IBD? Has it been suggested you have IBD, IBS, or both? NGNG is correct - smoking can cause an increase in symptoms in those with Crohn's (while those with ulcerative colitis often find relief from their symptoms from smoking). Do you smoke regularly? Do you have...
  2. SarahBear

    Hello!

    Hey there! :) First of all, it's very important for both you and your daughter to understand that Crohn's is not considered a fatal disease. There's a very small chance of that. Studies show that those with IBD actually have no higher chance of death than the general population - so it's...
  3. SarahBear

    The Miserable Prednisonites Club

    I didn't really get it. :p I did… but my insomnia was so severe that instead of just taking off, I kind of did a burnout instead.
  4. SarahBear

    Battling something that could be Crohn's?

    I'm glad you were able to resolve the insurance issues. :) Please update us on the endoscopy when you get a chance!
  5. SarahBear

    Symptoms at night?

    Do you mean that you have more frequent and severe symptoms at night?
  6. SarahBear

    First GI visit

    Side effects are really nothing to worry about. All in all, the effects of untreated Crohn's are worse than the side effects of the medications used to treat it. The side effects listed for each medication are potential side effects. You're unlikely to have more than a few, and even those few...
  7. SarahBear

    Mental Illness versus Psyshical Illness

    No, I wasn't. I didn't see you as acting that way at all!
  8. SarahBear

    First GI visit

    Most GI's do prefer to prescribe a maintenance med after surgery. This works to prevent future flares and keep you feeling well. Is there a reason you'd prefer to stay med-free? Do you have any alternative treatment plans to keep yourself in remission?
  9. SarahBear

    Mental Illness versus Psyshical Illness

    I think it depends on the particular illness, the severity, and the sufferer's life situation and coping abilities. I don't see any need to compare them, honestly. We're all unwell and we should all support each other rather than playing 'Who's Sicker.' I don't get why people love that game...
  10. SarahBear

    Annoyed at a Book

    I am very confused by the author's response. It makes no sense whatsoever. The appropriate thing for the author to do would have been to explain the thought process and apologize for offending you, whether or not she intends to change the book or her attitudes. I'll definitely be avoiding...
  11. SarahBear

    Flare up of Crohns

    You are flaring. You've been flaring all along, actually, if you've had blood in your stool. When in remission, your IBD is inactive. Tests done while in remission should show no active disease. You will feel normal. Ideally, you'll have no symptoms at all. However, it is common to have...
  12. SarahBear

    Annoyed at a Book

    Yeah, I'm a little confused by this as well. Was there any sort of lead-up, or did it really just come out of nowhere? It is pretty offensive and ridiculous. Unfortunately, these types of comments are pretty typical of any medical condition. Personally, I probably would stop reading the...
  13. SarahBear

    Flare or just ate the wrong thing?

    Have you been able to determine if it's the caffeine or the carbonation in soda that causes you problems? If it's caffeine, coffee would cause the same problems. Even if these things don't typically bother you, they may when you're already having an iffy day, or just for no reason at all. Are...
  14. SarahBear

    Endometriosis Overview

    Endometriosis usually does not show up on an MRI. It can only be seen that way if it's very severe - otherwise, the surgery is required to confirm the diagnosis. :) I hope things get better for you soon, lizbeth!
  15. SarahBear

    Looking for information about Crohn's and endometriosis.

    Thanks for the tag, Chicago! :) It does sound like you could have endometriosis. It has not been confirmed that I have it - unless the condition is severe enough to show up on a CT scan / MRI, surgery has to be done to definitively diagnose. However, my GYN is proceeding as if I do have it...
  16. SarahBear

    Anyone diagnosed via Pill Cam?

    I was diagnosed via pill cam. I was told all previous tests (colonoscopy, endoscopy, small bowel follow through) were normal, but after I looked over my medical records several years later, I realized that was entirely so. However, there was nothing that screamed "IBD!" Have you had a...
  17. SarahBear

    Flare or just ate the wrong thing?

    I wouldn't worry too much about it just yet. Coffee, subs, and pizza all definitely have a very good chance of upsetting your stomach. Are you usually sensitive to any foods/drinks?
  18. SarahBear

    Advice

    Welcome to the forum! I'm sorry to hear what you're dealing with. :( Have you been on Prednisone long-term, or only for short periods? If you don't start Remicade, what are your other options? You can read about Remicade and others' experiences on it in our Remicade section of the Treatment...
  19. SarahBear

    Come and Go Crohns??!!

    That doesn't sound unusual for Crohn's. You are sick, you're just not having constant symptoms. Are you currently taking anything for Crohn's?
  20. SarahBear

    Reconnection Surgery Dilema

    Would you be able to talk with a counselor or your teachers at school tomorrow and find out how accommodating they'll be if you take time off to have the surgery? That would be a deciding factor if I were in your situation. If you'll still be able to keep up with your school work and you'll be...
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