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  1. dreamintwilight

    Has Anyone Been Told That They Have Refractory Crohn’s disease of the Vulva? Or Might This be a Medication Side Effect?

    Hmm, I don't have any experience with this, Jen. :( But I found this interesting article about it, in case it's helpful to anyone else. I hadn't heard of this before... http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2658576/
  2. dreamintwilight

    Is it my crohns... or ob/gyn related pain???

    Just wanted to put my 2 cents in... Prior to being diagnosed, I suffered for about 9 months with what I thought were gynecological issues. I had lots of cramping, bloating, and fullness in my lower right side very similar to what you describe. I mentioned it twice to my gyno and told her the...
  3. dreamintwilight

    Girls Only!

    I took BC pills (Seasonique) up until I was diagnosed with Crohn's. Afterward I did some research and was concerned that there could be some extra risk with digesting the pill properly and not receiving the full dosage of medication, which I wasn't willing to risk getting pregnant on. I also...
  4. dreamintwilight

    Does anybody take humira every week?

    After I was diagnosed, I took Humira every 2 weeks for about 3 months before I was back in the hospital with a partial blockage again. At that point, my doctor moved me to weekly shots and added azathioprine on top of it. I have been taking that combination now for over 3 years and haven't had a...
  5. dreamintwilight

    Contact lenses and dry eye

    Hi Judith! Visiting one of my old posts (about to head to the eye doctor tomorrow to get some new glasses) and saw your reply from a year+ ago. That makes very much sense about being allergic to the additive. My eyes didn't goo up like that, but it's still possible I could have been having some...
  6. dreamintwilight

    Weight based dosing of Azathioprine and 6-MP

    Thanks, Dusty. It doesn't surprise me to read of the difference between generics and branded formulas of a drug just because I've heard things in the past about how some patients are more sensitive to generics than brands (not Crohn's-specific). I wonder if there is a price difference with the...
  7. dreamintwilight

    Manufacturer's supply on backorder?

    Erika - Wow, only 15 days worth? That would freak me out. That was an interesting article. For some reason I never thought about having to deal with drug shortages, even though I've definitely heard about them. The nasal spray I had from my allergist recently was out of stock for an unspecified...
  8. dreamintwilight

    Manufacturer's supply on backorder?

    Has anyone tried to refill their azathioprine prescriptions lately and been told there was a delay in receiving it due to a back order with the manufacturer? This just recently happened to me this week and I went into a bit of a panic because I run out of my medication after Monday and I wasn't...
  9. dreamintwilight

    Weight based dosing of Azathioprine and 6-MP

    I had been on azathioprine for about a year on 75mg. Before starting it, my doc ordered the TPMT Enzyme test to make sure I could metabolize this drug properly and I got the green light. Last fall he had me get the test again to check my drug levels because I had mentioned the possibility that...
  10. dreamintwilight

    Abnormal Pap Smear...

    Well, I just got the results back from my biopsy. The biopsy came back normal, but I also tested positive for HPV??? I am so confused. I had 2 pap smears that were tested for high-risk HOW and both came back negative and now it comes back positive? All the PA said I needed was a follow-up in 6...
  11. dreamintwilight

    Abnormal Pap Smear...

    Thanks Bushy! The exam went well. I wouldn't describe it as painful at all. Just uncomfortable and lots of pressure. They took a small biopsy though she said everything looked basically normally. There was a small portion of my cervix that looked inflamed so that was where she took the biopsy...
  12. dreamintwilight

    Abnormal Pap Smear...

    Take 2 on my colposcopy tomorrow! Hopefully this time it doesn't get canceled. Hopefully everything goes as planned because Thursday morning we're flying to New York for a short va-cay!
  13. dreamintwilight

    Abnormal Pap Smear...

    Thanks, Bushy! I Googled CIN grading on the way to dinner. Some of it put my mind at ease a bit. It's nice to know at least that if I have to get any precancerous cells removed (if they find any) it's not too bad of a procedure to go through.
  14. dreamintwilight

    Abnormal Pap Smear...

    Well, poo! I am home now. I left work about 45 minutes ago to head to my appointment and got a call from the doctor's office. My doc got called into emergency surgery (she's a high-risk OB) and they had to reschedule my appointment. They offered to get me in for the same time at a different...
  15. dreamintwilight

    Abnormal Pap Smear...

    Well, today is the day for me. I go in for my colposcopy at 3pm (Central time). I am very nervous. I'm not sure how I will be able to concentrate at work until I have to leave. Had a bit of a freak out last night and had a good cry. Hope everything turns out alright! Please send prayers...
  16. dreamintwilight

    Abnormal Pap Smear...

    Hey Bushy - How did things go? Hope you are doing well!
  17. dreamintwilight

    Abnormal Pap Smear...

    head_above_water - That's crazy! So glad you got another opinion and didn't have to get a hysterectomy!! I am 27 too and haven't had any children yet. I can't imagine being told that. Thanks for the advice (hopefully it won't come to that). Bushy - I agree with others about getting you in...
  18. dreamintwilight

    Abnormal Pap Smear...

    TwinkleToes - Glad to hear the actual colposcopy wasn't too bad. How long did it take? Was it painful? I am trying not to read too many horror stories online that might freak me out. I'm just confused as to what my "abnormal" results mean. They specified it was both times from "atypical squamous...
  19. dreamintwilight

    Abnormal Pap Smear...

    TwinkleToes - What happened as a result of the biopsy?? Hope things turned out well for you. I resurrected this thread because I just got word back from my gyno today that my 2nd pap smear came back abnormal again. Both times my results came back for atypical squamous cells which could be...
  20. dreamintwilight

    My panproctocolectomy

    I think this thread and others like it are just amazing. Prior to being diagnosed with Crohn's, I had no idea it was possible for people to live with these types of procedures and surgeries. It really is amazing and I think it's great that there is a place out there where people can learn about...
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