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Crohn's Disease Forum

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  1. C

    What is it like being pregnant with Crohns?

    I know someone with colitis who felt super good during pregnancy and is already looking forward to getting pregnant again because she was in perfect remission.
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    Elemental diet

    Sorry to hear you are flaring again. a) Yes b) Yes ;-) I would recommend clicking on my profile and search for my posts on Elemental, I have written quite a lot about my experience with Elemental028. Hope things get better soon for you.
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    Back pain---Muscle or Joint???

    X-Ray will only show joint damage which is a result of long and ongoing aggressive joint inflammation (arthritis). Arthritis can not be diagnosed with X-Ray. MRI would be an option, best option is ultrasound for smaller joints and knees etc. (MRI for back). When joints are inflamed, tendisitis...
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    Mongersen

    According to research, this drug sounds very promising, taking into account that it addresses the TGF-β1 pathway which hasn't been targeted before. To be realistic, two professors that I consulted both are not convinced of that drug. In their studies the remission rate is quite low and they...
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    Colostrum again

    Thank you, my little penguin! Meanwhile I can definitely say that the bovine colostrum powder made me feel way worse, especially my joints but also my gut. So, at least for me, it is pro-inflammatory. This is also suggested from study results, as it helps improving Th1, which is even too strong...
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    What now after clear test results?

    You are welcome! :-)
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    What now after clear test results?

    Congrats on your marriage in July first :-) I agree on the above, second opinion could be one option. My Crohn's was detected in the second MRI which was done in an IBD specialist centre, also including the radiologist (so not that familiar with knees etc. but with the gut, that does seem to...
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    How do you manage pain?

    Buscopan is my saviour then, did not find any pain killer to be effective for me so I more thy to address the cause itself (cramping, muscle tightening --> buscopan)
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    Is my story Crohn's?

    Hi Koog, I'm not familiar with the findings you described (mesenteric edema etc.) but my Crohn's was diagnosed in the second MRI scan when a specialist had a look on the images, not a standard radiologist who investigates everything and sometimes a small intestine as well. Apart from that...
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    I feel very anxious and nervous every time when a medical appointment is coming.

    I can totally understand even though I myself don't struggle with that so much normally but a good friend of mine does with his colitis. I would recommend joining a self help group of people of the same age as you. Talking to someone who understands helps tremendously. At least for me it always...
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    Colostrum again

    I am aware that there are some old threats, so that's why I'm starting a new one: I have tried 3 teaspoons of bovine colostrum yesterday (still have plenty of it, wanted to try it in the past, bought a good quality one and spent toooo much money on it), didn't do anything for me in the past...
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    Adverse reaction to injectafer.. what now?

    Oops, I see. Not familiar with the US brands, sorry. Ferrlecit, Venofer and Jectofer would be 3 EU alternatives, no idea if they are available in the US as well. That would be another agent then.
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    Adverse reaction to injectafer.. what now?

    What about Ferinject instead of Injectafer?
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    Can antibiotics cause a flare?

    I would say yes. Both from personal experience and latest research. As antibiotics alter the microbiota, the "wrong" bacteria could find better surrounding for growing and beneficial, anti-inflammatory bacteria could be suppressed by the "wrong" bacteria. This also happens to healthy...
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    Salad eaters

    Same here. I can't even imagine chewing raw vegetables, because already after swallowing my pain would get unbearable. When someone eats raw carrot I asks me if I would like one as well, I explain that raw carrot would make me feel like eating small stones, that's the exact feeling I have then...
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    Talk to me about your naturopath experience.

    I'm visiting a naturopath currently, also using alternative treatment that he suggests. Is my saviour at the moment actually, no idea what I would do without that kind of treatments. The medication based section is anthroposophic / (homeopathy), the other section is eurythmie, autogenic...
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    7 Venofers & Hemoglobin Still 8.3

    There are also different iron formulations available. I receive Ferinject when my iron levels are too low; as far as I know there are differences between Ferinject and Venofer. Maybe for some reason your body can't handle Venofer? Have you been given Venofer successfully in the past?
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    Toxin Exposure prior to Diagnosis

    Thank you so much Ihurt! Very interesting, really makes sense! I agree on that genetic predisposition, also according to latest research on Crohn's. No idea if something else would have led to the breakout of symptoms later, if I haven't been exposed to these toxins back than. Sad thing is: Even...
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    What to expect with azathioprine?

    Every drug can cause adverse reactions but generally aza is a well-tolerated drug for many.
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    Caffeine - Any coffee drinkers?

    I tried some espresso with some whole-fat milk (just espresso isn't working either) a few days back again but... no way, felt super nauseous after, bloating issues and loss of appetite for the rest of the day. :-/
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