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  1. Muppetgirl

    Alendronic acid

    Sorry for late reply. Have been dealing with other health issues. Had to postpone MRI. Of course now it's worsened. Story of my life. I hope you have some good luck with your treatment.
  2. Muppetgirl

    Fusing intestines.

    Its a shame he did not come back and speak to you. Have you a copy of your surgery notes? Can you request an appointment to discuss it further? The fusion or matting that you describe is the result of scar tissue in the abdominal cavity itself (as opposed to inside the bowel lumen). Organs...
  3. Muppetgirl

    Alendronic acid

    Just to reiterate, alendronic has cautions listed against it for most upper GI diseases such as gastritis, so it's fine to take as long as the patient is educated about possible risks and responds should they occur. And many patients will find they are fine. Alendronic is contra-indicated...
  4. Muppetgirl

    Alendronic acid

    Bummer :thumbdown: that really is no good. There seem to be a few people with the two together. I hope it does not dissuade you from getting the osteoporosis treated though. I still do not know the origins of my tailbone pain, though I'm certain it's not good either.
  5. Muppetgirl

    Crohn's and Gastroparesis Support Group

    Glad you got the confirmation. I hope they give you some support with any changes you want to make. On the solids side I'm guessing you've been told before that avoiding fibre and fat is best for gastroparesis? Obviously the latter is difficult when your BMI is low. Which seems to be the...
  6. Muppetgirl

    Pre-op

    Oh joy! The secondary things often don't get remembered do they. You might be better off writing it on your back in marker pen! :lol2: Yeah prior painful experiences can have such a long term impact can't they. Fingers crossed all is smooth this time.
  7. Muppetgirl

    Pre-op

    It's funny the things that get to us. I spend all day everyday sticking tubes through my urethra (because I have to, not for fun :p). But I can only do colonoscopies under GA now. If you need to, just remember the urethra is short and mostly straight. But hey you will be under so yay! I hope...
  8. Muppetgirl

    Thoughts please

    I'm sorry to hear of the latest developments. :hug: The first surgeon I had when dealing with my rectal disease (complex rectal mass) did not have particular expertise, but he kept telling us he didn't need to refer on to a specialist, even going as far to say that if we could find a surgeon who...
  9. Muppetgirl

    One year after resection: localized abdominal pain, especially after workout (lifting)

    It's one of those things that needs a pair of eyes on it! A hernia is a possibility, does it bulge at all? Exercise can make hernias worse if thats what you have. Occasionally the intestines get stuck in a hernia. Adhesions can also cause pain which is exacerbated by movement and can constrict...
  10. Muppetgirl

    Any advice for crippling spasms?

    Hi Margaret. I'm sorry to hear of the situation you are in. I can thing of a few 'little' things that may help the pain, though I am mindful that you are dealing with a significant unknown at the moment in terms of the extent of disease in your small bowel. It is good that you have the...
  11. Muppetgirl

    Alendronic acid

    This article is quite long but it cites some research about increased risk post fracture at the end. http://emedicine.medscape.com/article/330598-overview#showall
  12. Muppetgirl

    Recently diagnosed

    It's also worth remembering that when they say nutrients they mean everything required for balanced nutritional intake. This includes all the main foodstuffs; protein, carbs and fats, as well as the vitamins and minerals we've come to associate nutrition with in popular culture. I only say that...
  13. Muppetgirl

    Alendronic acid

    Fingers crossed you get seen soon then. It does increase the risk of more several fold as the bone is already fragile (Perhaps why your GP has been so spurred into action). They do fracture risk assessments now, but I don't know how useful they are once it's severe. I just re read your original...
  14. Muppetgirl

    Alendronic acid

    I can sympathise with your reasons for prioritising other health problems. I think it's also difficult to prioritise a 'silent disease'. I don't know if that would be considered rapid. My rheumatologist did make a quip it would be ten years till I had fractures but I don't know if that was based...
  15. Muppetgirl

    Breast Calcifications

    I don't have specific ideas I'm afraid. I just wanted to send well wishes your way. I can appreciate the desire to avoid going under the knife again, but wondered if it's worth just having a chat with your docs to see what the opinion is? It would still be your choice at the end of the day. Hope...
  16. Muppetgirl

    Alendronic acid

    Some spinal fractures are not spotted on plain x-ray, but I'm sure that would have been my starting point if it had been flagged up. The MRI is a routine one, so it's just that it's handy for ruling it out entirely. It interests me that the tailbone runs parallel to the rectum and has pelvic...
  17. Muppetgirl

    Alendronic acid

    Yeah I think there are a lot options. It seems like alendronic is still the first line tx, but I really think that having a fracture is a game changer. I think it usually opens doors to more expensive treatments. My rheumatologist was almost blase about it "until your first fracture" despite my...
  18. Muppetgirl

    Alendronic acid

    It sounds like there are too many things that increase the odds of making things worse by taking it. I'm not sure if there may be other secondary concerns, but I think the main dental concern is the rare side effect of the jaw bone dying (osteonecrosis). I believe the risk is elevated where...
  19. Muppetgirl

    One year on, no further forward! Advice please!

    I'm sorry you are stuck Sazzle. I started out being treated by a CRS (for a different set of problems), but colonscopies were still carried out as a matter of course.I also saw my CRS in regular outpatient clinics as well as pre and post op. I was quite shocked to read that he only spoke to you...
  20. Muppetgirl

    Alendronic acid

    Sorry to hear about the fracture unxmas. I was given (but did not take) alendronic acid as my GI tract was (and still is) reacting strongly to less potent meds that can affect the GI tract. I have since found out I cannot take it at all thanks to gastroparesis. I believe this is something you...
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