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Crohn's Disease Forum

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  1. Honey

    I'm a newbie

    Hi there, and welcome, I hope all goes well for you at the doctors. It takes time to get the right meds that suit you, and of course the diagnosis first. Let us know how you are. Best wishes. :welcome:
  2. Honey

    Doctor wants Humira please help!

    Hi there, I was on humira , giving myself injections for three months, as Meds did not work for me. I have Crohns so if it is not that, then it seems to me there must me meds you can take rather than injections. My hair stopped growing and became thin. It did not work for me and I ended...
  3. Honey

    Doctor wants Humira please help!

    Hi there That is wise. It may be short term to reduce inflammation and then you will be o.k if it is not Crohns. Keep asking questions that helps. I hope you feel better soon. Let me know how things are. If you have a question please ask. Best wishes
  4. Honey

    Crohn's - Help

    Hi there, and welcome, Yes, I understand your concerns about side effects of meds , I had the same feelings. However, if the inflammation levels are high as shown by blood tests and Calprotectin test, then you do need to have treatment. I did have to agree to many different trials ...
  5. Honey

    Doctor wants Humira please help!

    Hi there, and welcome, I have been on many different treatments until the right one for me was found viz Remicade infusions. There have been times when I said I was doing fine and was told that I actually wasn't. Have you had a Calprotectin test? They go on the level of inflammation...
  6. Honey

    Swiching Remicade to Humira due to Psoriasis

    Hi there and welcome, I did the switch the other way: Humira injections, which had limited success then Remicade infusions. I am currently well. We are all individuals in our illness so what works for me may not work for you. To make your injection easier, do it on the tummy. I am not...
  7. Honey

    New here - patient of Prof. Borody

    Hi there and welcome, I hope all goes well for you in your treatment. It is interesting though I do not know about it. I was on Remicade infusions after I had tried many other meds which I reacted badly to, and did not work. The side effects were worse than my Crohns. I had to stop...
  8. Honey

    New member of forum

    Hi there and welcome, It is good you have improved with a change of diet and no longer the pressure of work. Keep in touch with your doctor though perhaps ask for a Calprotecten test as this shows the level of inflammation, which may require further medication.. Diet does not stop...
  9. Honey

    My boyfriend has had Crohns for 27 years, what can I do to support him?

    Hi there and welcome, You sound very understanding so I do not need to tell you the most important thing is to listen to how he feels, and empathize. The most annoying thing, I often, met with was being dismissed with how well I looked! Also, those who said they new someone else with...
  10. Honey

    Diagnosis: Crohn's (thought it was UC) - not taking it well at all.

    Hi there keep up the spirits, there will be better times ahead. Let me know how you are doing.:thumright:
  11. Honey

    Diagnosis: Crohn's (thought it was UC) - not taking it well at all.

    Hi there, PACEALOT, We are all individuals in our response to treatment but once the correct meds are found, it does get easier. I spent three years trying different meds until I went on Remicade infusions. I even had spoken to the Surgeon and like you, was scared stiff! Yes, I too cried...
  12. Honey

    Waiting is the hardest part

    Hi there and welcome, I hope all your tests go well and they diagnose soon, finding the right treatment for you. Yes, it is not easy when you feel so unwell and have to go through tests. I had poor digestive system for years and was only diagnosed with Crohns when it became acute, severe...
  13. Honey

    4 months of viral ileitis?

    Hi there and welcome, I suffered many episodes like that over the years and was diagnosed as having diverticulitis. I took meds but often put it down to what I ate when I was really unwell. Eventually suffering severe pain, I was diagnosed as having Crohns. Hopefully, it could be what you are...
  14. Honey

    Methotrexate

    Hi Mikey and welcome, I was on Methotrexate injections for 4 months which helped, but not enough. I then was on Remicade infusions over a year, and came off them as I had a reaction. However, I am now well and on a low doze of steroids for another problem. We are all individuals in our...
  15. Honey

    Feel pressured into getting Colonoscopy, Not sure if I want to do it.

    Hi there, I agree with all the advice given. Go for the Colonoscopy as scheduled and do not worry. Take the Prempak as instructed the day before, to clear the bowel. It is only a strong laxative. Add a cordial like Lime juice to it, to make it more palatable. Go for sedation too as it will...
  16. Honey

    Colonoscopy found ulcers

    Hi there and welcome, I am currently on Prednisolone, a small doze but have been on the others you mention. Weight gain is really the biggest problem for me and a bloated tummy. It is an individual thing ,what suits me may not help you. The main objective is to keep the inflammation down...
  17. Honey

    Bleeding after all these years

    Hi there and welcome, I am sorry this is happening to you. I cannot answer your question but I am sure someone else in this forum will be able to help. I wish you well. Best wishes,
  18. Honey

    Crohns since 1991

    Hi there, and welcome, You certainly have had a bad time. This forum is great for support. I was not diagnosed until three years ago as having Crohns, when it came to a head. I understand what you say about meds as I had a lot of bad side effects, including Pancreatitis. Eventually, I was...
  19. Honey

    Undiagnosed - looking for advice

    Hi there, and welcome, I hope all goes well for you, it takes time to get a diagnosis. Yes, it is normal to be sent for a colonoscopy and the results to go to your G.P. Your Doctor then will discuss the results with you and further treatment will be recommended. You will be referred to a...
  20. Honey

    New person story

    Hi there, I am sorry to hear of the difficult time your friend is having, so much suffering. What a wonderful carer you are! I do hope you get good support from someone, it may even be just sharing your thoughts and feelings about it on this site. Illness, and dealing with illness can be...
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