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Hi there, and welcome, so sorry you and your wife are finding this illness difficult. Of course, it is! It is a very individual illness, what works for one may not work for another. Even meds may work for a while ,then a change is needed so understandable you feel low! Speak to your G.P...

Hi there, thank you for the info re Entyvio. It looks like that is not an option as it has never been suggested, only the other two. I shall certainly ask my Consultant whenever I need to see him. :rosette1::duh::rosette1:

Hi there, thank you. I shall ask about test for antibodies to both before I decide which one. At the moment, I am reasonably well and able to eat. I have been told I can wait until it becomes more imminent. However, if I start to feel uncomfortable on a daily basis then I will phone my...

Hi there, the hair loss , rather thinning was due to the Humira, I did not need to go to the hairdresser for a year. My hair stopped growing too! I have been off Remicade for over two years and have been well. Now I am beginning to have tummy pain, high Calprotectin results and very...

Hi there, feeling really upset. Asked to go back on Remicade infusions as Crohns is active again, after 2 and half years remission. Said no to Humira injections as my hair came out and I felt miserable, probably giving myself injections contributed to that! I ended up in hospital for three...

Hi there and welcome, Yes it is difficult dealing with new treatment but remember we are all individuals in fighting this illness. Remicade may be the treatment that works for you. There is also Humira injections which you give yourself. That worked for me for a while, only side effect was...

Hi there, interested to hear your side effect was tightness in the chest. I ended up in hospital for three weeks with a lung infection, on oxygen, very scary. I have been asked to go back on it as my inflammatory markers are sky high. Don't know what to do. Best of luck.

Hi there, I would try Humira and see how you get on and how effective it is. I too had a bad side effect to Remicade after some time so had to come off it. I was on Humira injections for some months but had one side effect with me, viz, thinning of hair which stopped growing. Wishing you well.

Hi there and welcome. I understand how you feel, Crohns is such a fickle illness and treatment varies from person to person. I was on Remicade for a year until I had to come off as I had bad side effects. I have been well for 2 and half years, but now have to consider going back on i. I am...

Hi and welcome, it is hard to deal with several health issues at once. I know, because I am dealing with Crohns and a problem with my muscles,the latter caused me severe pain. I have been on Steroids for some time and this has calmed down. So, discuss your difficulties and how you feel with...

Yes I know, that is the difficulty and uniquenesss of Crohn's treatment. Also, the severity of symptoms varies too!

Hi there, I ended up in hospital for three weeks with a lung infection because of it! They could not clear it with antibiotic drips, so I was taken into theatre for a scope. That is why I am so afraid to go back on it. I was on oxygen and in a lot of chest pain. Remicade does have strong...

Hi there, I was on that for about 5 months but it did not work well for me and left me feeling miserable and sick, with hair loss. I am glad it is o.k. for you. I love to go a long walk too especially out in the countryside, alongside a river, listening to the sounds. It is very therapeutic.

Hi there, it is like that, isn't it? I think we sometimes push ourselves too much when we feel o.k. then suffer for it the next day. I now know to go and rest when I tire. In the past , I would go on , find my balance going and that has resulted in me having accidents and broken legs from...

Hi there, thanks for the advice. However, in the U.K there are only two used viz Infliximab infusions or Methotrexate injections. The latter I did myself, hair came out, I felt miserable and it did not work well. I came off that after 5 months. Infliximab did work but I am afraid of side...

Hi there, I have an intolerance to many meds unfortunately. I am told there is nothing else, tried many. At the moment my symptoms are not affecting my life too much, but I believe when I come off Prednisolone things may change.... Pentasa is easing the constant sore tummy, for a while. Get...

Hi there, thank you for your quick reply. I was on a number of different meds which made me ill eg Pancreatitis. Also, methotrexate injections did not work for me" Hence, last resort was Remicade infusions. I was told Pentasa was really only for colitis and not Crohn's. Hence, I feel my...

Hi there, I have been in remission from the symptoms of Crohn's for over 2 years. However, I was on Remicade infusions before I ended up in hospital for three weeks with a lung infection which was difficult to clear! I have been on Prednisolone since for another problem with my muscles...

Hi there and welcome, You have certainly had a tough time of it, so sorry. It can be isolating when you deal with ill health on a daily basis, but sharing with others helps. It is good to be understood as I found in using this site. I hope you feel better soon. It takes time to get the right...

Hi there, sorry you are having so many difficulties just now. I hope things improve, take one day at a time. It helps to talk, so use this site when you feel like sharing. Wishing that all goes well for you. :welcome::rosette1::rosette1: