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Yes,I hope all goes well GABoy.

No,the epi pen is for you to keep at home post infusion. They train you and a caretaker how to use it. I am not advertising,check it out yourselves. 'New England Life Care'. Personally,I feel safer in a hospital. I see my GI soon and am interested in what he thinks about it.

O.k.,I just got a call. They have an anaphylactic kit with them during the infusion and give an epi pen to the patient.

Yes,they would take BP. From the brief explanation I got today,they basically set you up at home as in the hospital. A nurse is with you the whole time. An infusion is,basically,a long boring IV. It is there ability to cope with a reaction I am curious to know about,like my little penguin noted...

Forum members have brought up the concerns of having a bad reaction while at home. Could they deal with it? I really don't know anything until they call me and we chat. I'll post new info when I find out. Even if I don't do it I feel I should check it out.

This is for remicade. Sorry,I originally posted this in the remicade support group. I did a cut/paste here to generate conversation. I literally was called this morning and asked if I would be interested in at home infusions. Just to make myself clear,I am not advocating for at home infusions...

I got an interesting call from my insurance company today. I was asked if I would be interested in taking part in a pilot program to have infusions at home. It is currently being used in the most rural parts of the state where hospitals are far and few. The at home service will be less expensive...

I got an interesting call from my insurance company today. I was asked if I would be interested in taking part in a pilot program to have infusions at home. It is currently being used in the most rural parts of the state where hospitals are far and few. The at home service will be less expensive...

Wow...read your story. You hang in there too.

Not to fuel the fire,but....in my itemized bill:Infliximab/Remicade is $15,000+ for each infusion.

Glad you do not have IBD. Stress can be a terrible thing to everyone,IBD,IBS...everyone.

O.k.. I hope this brings a smile. My colorectal specialist left and I had to find a new one(not the smile part).I was fortunate to find someone,granted he is an hour away.His name is Thomas Brady,get it? Tom Brady. :ylol:

Gram214,have you looked into the Remistart program?

I am approaching two years with draining setons. I do feel the fistulotomy was/is worth it,in my opinion. I went misdiagnosed for years and suffered the pain of abscesses and the damage to my rectum. In my case,surgery stopped the damage being done. You have to be careful the fistula does not...

I don't mean to be flippant,many have used nutrition/diet as a tool. Perhaps that may be an option.http://www.crohnsforum.com/showthread.php?t=48313. This link is just one,there are others to check out. We are all different and nutrition/diet is an important topic.

Sorry for the diagnosis. Like you say,it is good to know for sure so your GI and you can form a plan. Good luck to you.

In my opinion,you need to have the fistulas attended to.The potential damage they can do the longer they are not dealt with has to be considered.I agree with Starnett,communication is important.If you have three confirmed fistulas,your gastroenterologist and you need to get together and form a...

Yeah,stress is something that exacerbates IBD.It is also caused by the not knowing.A rock and a hard place situation.Don't dwell on the weight loss,or the opposite of;not everyone gets 'skinny'. It is a fine line between constant vigilance and paranoia,in my opinion.I have crossed it a few...

I can't say I have shared those symptoms,quite the way you have.I am glad you have an appointment with a specialist.You need someone more knowledgeable than a general practitioner.I think we all can relate to your nervousness,it is scary to confront our illness.To have the cold,hard facts of...

Welcome to the Forum Chris. I wish you luck in your search for a new GI. A good specialist is very important.Like you,many of us use nutrition as a tool to fight IBD. Do what we can,right?