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Welcome It is rough getting the diagnosis but now you know. Now you and your GI can work out a plan to move forward. Keep us posted.

Have you checked out 'The Parents of Young Ones' support group? A place to ask all sorts of questions. http://www.crohnsforum.com/showthread.php?t=59511 My personal experience when I started Remicade...at age 51...is as follows. I napped pretty hard after my first few infusions,even a bit...

http://www.crohnsforum.com/wiki/remission This should help you.

I get Benedryl and Laratadine orally first. Once I'm hooked up they start with saline for a bit and then Remicade.

Hi This coming November will be two years since my diagnosis,the day after thanksgiving to be exact. I was diagnosed after a resection but I also have fistulas. I have five fistula. One year ago this week I had a fistulotomy and three of the five fistula had draining setons placed. My...

Interesting post. I agree with the positive attitude. We are all different and I wish you continuing success. Good luck.

Thanks for the update.It's good your doc got your flaring under control.Definitely keep him in the loop as to how you are doing.I keep a notebook and write down questions/concerns between appointments.I bring it with me to the appointments and I find it helps to reduce the 'Damn,I just got home...

Let your GI know what is going on if you have not done so already.

Glad things got moving again! :poop: My nurse gave me a high five after my first one post surgery. Take it slow,my first day home wacked on dilaudid,I moved something and a inguinal hernia was a result. I had to recover enough from the resection before it could be tended to. Just an FYI. Follow...

Wow,sorry to hear the cancer diagnosis. I am glad you now know and will be able to form a plan of treatment. Good luck!

I was diagnosed the day after Thanksgiving,2013. I had an emergency bowel resection due to a complete blockage. That was Monday and my surgeon came to me Friday saying the lab results were back and Crohn's was confirmed.I was 'doing laps' around the ward at the time and my surgeon was doing his...

The Prometheus test is the test for antibodies. It is basically blood work sent to a lab in California,they do there tests,and let you know if you are building up antibodies. I had it done recently.

This may bring a smile to a face or two. My first infusion was last July. I was answering all the first time questions while being hooked up and I was a bit nervous. Questions done,all hooked up and I start to read my book and I hear my name called. Hmmm,yeah this is Dave I reply. It was a...

Welcome I hope Humira works well for you.It may be a challenge at times,but a positive attitude can help.Good luck!

Hi ggk93 It can seem overwhelming after being diagnosed with IBD. There are many who attend University,it may seem daunting right now,but you can do it. Have you checked out this support group? http://www.crohnsforum.com/showthread.php?t=57196 for those with IBD in there twenties. Here is...

I call my weight in an hour before my infusion and they are ready for me when I get there.My last one was 2.5 hours from sit down to leave.

HI Is this something you were experiencing when you were prescribed your new meds? Let your specialist know of your current condition,if you haven't already.

Welcome Julief Have you checked out this support group? http://www.crohnsforum.com/showthread.php?t=47938 I agree with 24601 and urge you to keep your doctor updated,communication is a good thing.I personally do not have experience with what you are taking. Wrapping your head around a...

Hi I also had a resection,in my jejunum. Hopefully the walking will help,I believe it helped me. The wing I was in actually had maps of 'hiking trails' and the distance of each trail. When you get home don't push yourself too hard. We all recover at different rates. I encourage continuing...

POTTYTIME! I read through some posts and,in my opinion,a GI you can trust is important.Do you have the option of switching to a new GI? The GI is the one who,after consultation with us,forms the plan for fighting this disease.I switched GI's and am pleased I did so.Switching GI's may be easier...