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My GI referred me to a colorectal surgeon.

I saw my colorectal surgeon recently.I see him every three months since the fistulotomy/seton placement nine months ago.I have five fistula and three draining setons.There seems to be no worsening of the two fistula with no setons and the three with setons are looking good.I have not felt any...

Come on hugh. You can be passionate without the F-bombs.

Hi kimmykim There are many of us who have setons and have Remicade infusions. I have five fistula and three draining setons,my fistulotomy was last July. I understand your apprehension,I would rather not have infusions but feel I have benefited from them. Have you brought your concerns to...

Actually,it was a little over $13,000. That is what it cost per infusion. Insane.

I have similar issues ie Remicade. My GI needs to resubmit from time to time. I got a bill this week for $14000.Remicare is worth checking out and may be able to help.

Perhaps if you start a thread with Biolift operation in the title it may get more hits versus being in the support group section. Just a suggestion.

Here is a wiki link for fistulas http://www.crohnsforum.com/wiki/Fistulas.

Welcome Danbyn Glad you joined the Forum after checking it out. We all have our own stories and experiences that make the Forum work. Have you checked out the young adult support group?

Welcome Wanna tell us a bit about yourself? It would help with advice,etc..

I have been on Remicade since July '14 for fistulas. A short time but I have seen progress. I had undiagnosed fistula for years. I have had a fistulotomy/seton placement and feel it has helped me.

I wholeheartedly agree. :)

I hope the Humira is working for you.

I started July last year. I am now on the maintenance schedule. Helped me feel normal again,in my opinion. Fatigue is the lingering by product that seems to affect me. The fistulas are responding and setons are moving so I am happy. Feel free to contact me with specific questions.

The Prometheus test is to see if you have built up antibodies to Remicade. You need to be having infusions and have it in your system to be measured. Since you will be having your first infusion,4-1, this is a test you do not need to worry about at this time.

No,I asked 'the powers that be' on the Forum,aka higher up on the food chain than I am to move your post to a more visible spot. Your Story is one of my sections I monitor and along with welcoming New crohnies I try and direct traffic so folks will get information they seek. I think the support...

Hi all,been awhile since I've checked in. Saw my colorectal surgeon this week,seven months since the fistulotomy and seton placement. She was happy with how I was progressing and also reminded me it was a lengthy process. No kidding,doc. I am fortunate there are no new abscesses and the fistula...

Welcome Check out the Forum and you will see experiences. There are lots of places on the Forum to explore,places to hear stories as well as share your own.

I just noticed you are already a member of the support group. Hmmm...observant,aren't I.

I asked if there may be a place to get more hits...there are a lot of us on here with our own story. It may take a bit to have it moved. Hurry up and wait,right? I figure it can't hurt to see if there is a more appropriate place.