Good evening forum. I have had Crohn's Disease since 1991. Recently diagnosed with anal fistula. I'm terrified. I will be discussing the use of Remicade after my surgery. I am so nervous and scared. Is their anyone out their that can offer me words of advice or support. My friends and family are supportive, but they just don't understand. Any advice would be greatly appreciated.
Terrified of Seton placement surgery!
- Thread starter kimmykim
- Start date
Help Support Crohn's Disease Forum:
Hi kimmykim
There are many of us who have setons and have Remicade infusions. I have five fistula and three draining setons,my fistulotomy was last July. I understand your apprehension,I would rather not have infusions but feel I have benefited from them. Have you brought your concerns to your GI? You can ask 'what ifs' about infusions and not having infusions.
Here is the Remicade support group link http://www.crohnsforum.com/showthread.php?t=4544. Ask questions and share concerns.
Here is a link for fistulas,fissures and abscesses support http://www.crohnsforum.com/showthread.php?t=47942.
I was not pleased to find out I needed setons and I am pleased to say I am glad I did it. We are all different and react in our own way,but it helped me. Any procedure needs recovery and setons are no different.I am eight or so months post fistulotomy and am getting use to them(reluctantly).Getting in and out of vehicles is still a bit rough,you don't want to drag the setons.You can have your life back,you just need to give yourself time to recover.Perhaps it is a new normal but it is one you can still participate in,give yourself time.Feel free to pm me or ask me any questions in your thread.
There are many of us who have setons and have Remicade infusions. I have five fistula and three draining setons,my fistulotomy was last July. I understand your apprehension,I would rather not have infusions but feel I have benefited from them. Have you brought your concerns to your GI? You can ask 'what ifs' about infusions and not having infusions.
Here is the Remicade support group link http://www.crohnsforum.com/showthread.php?t=4544. Ask questions and share concerns.
Here is a link for fistulas,fissures and abscesses support http://www.crohnsforum.com/showthread.php?t=47942.
I was not pleased to find out I needed setons and I am pleased to say I am glad I did it. We are all different and react in our own way,but it helped me. Any procedure needs recovery and setons are no different.I am eight or so months post fistulotomy and am getting use to them(reluctantly).Getting in and out of vehicles is still a bit rough,you don't want to drag the setons.You can have your life back,you just need to give yourself time to recover.Perhaps it is a new normal but it is one you can still participate in,give yourself time.Feel free to pm me or ask me any questions in your thread.
Hi Kim,
I had two setons placed in December of 2013, and while I was not on Remicade at the same time, I had been on it for quite a few years previously.
My recovery after my surgery was about 2 weeks and the first 5 days or so really sucked. I spent it on the couch on my side high in percocet. Okay, that actually doesn't sound too bad! Sitz baths helped to ease pain and and a squirt bottle after pooping instead wiping.
You'll find lots of us over on the fistulas forum that have had setons, so I recommend you go there and read some stories.
I had mine removed after 7 months, and while things aren't perfect, they are WAAAY better and I am glad I did the surgery.
About Remicade - it was a great drug for me. 10 years it basically kept my fistulas closed and healed one completely. I decided to go off to have a baby and was unable to go back on due to allergic reaction.
Let me know if you have any more specific questions.
I had two setons placed in December of 2013, and while I was not on Remicade at the same time, I had been on it for quite a few years previously.
My recovery after my surgery was about 2 weeks and the first 5 days or so really sucked. I spent it on the couch on my side high in percocet. Okay, that actually doesn't sound too bad! Sitz baths helped to ease pain and and a squirt bottle after pooping instead wiping.
You'll find lots of us over on the fistulas forum that have had setons, so I recommend you go there and read some stories.
I had mine removed after 7 months, and while things aren't perfect, they are WAAAY better and I am glad I did the surgery.
About Remicade - it was a great drug for me. 10 years it basically kept my fistulas closed and healed one completely. I decided to go off to have a baby and was unable to go back on due to allergic reaction.
Let me know if you have any more specific questions.
