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Crohn's Disease Forum

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  1. cookey

    Hello

    Hello Mrbrightside, Welcome to our Forums. We share a similiar situation, I was also 18 yrs old when Diagnosed with CC. I know it can be tough, but believe me, like most have said..for the most part it is managable with the right meds. I was a little frightened at your age as well, but as time...
  2. cookey

    New TO This Site

    Hi Renee...Welcome Aboard, keep up the faith great to meet you also. Do keep us informed. If you need anthing just holler, I'm sure anyone of us will be happy to help in any way.
  3. cookey

    Crohn's 'mistaken for anorexia' in children

    Interesting read Donna, Thanks for sharing. I can see why the would think that, I remember when I dropped down to 65 pounds..doctors thought I had some sort of eating disorder, of course I had to tell them otherwise. They knew nothing about Crohns way back when. I'm amazed that they would still...
  4. cookey

    My Crohns Blog

    Hey DeAnn, I tried that link...but it's not working for me. Is the site down that you know of? I've got it marked down..so I'll keep trying. Thanks!
  5. cookey

    Heating pad for car

    Hi Michel..I have one in our car, it's heaven for sure. It comes in real handy in the winter, being I'm Canadian and all...lol. I'ts exactly how Val described it to be..they can really get hot those little cushions, but they feel great on aching joints. ((Val)) ...How are you lady? I was...
  6. cookey

    Crohn's Lore and 10 Years Ago...

    Welcome Jason, nice to meet you also. Tha'ts quite the story. So glad to hear that you have had no surgeries. Keep up that great attitude, and I look forward to hearing of your progress.
  7. cookey

    Newbie here...just got through Hell!

    Hi Starbelly, Welcome..nice to meet you. I unfortunately cannot help with the Remicade question either, but I am glad to hear you are feeling a little bit better, good luck with the second infusion...do keep us posted.
  8. cookey

    Husband's Update

    SIS, this is the best news. I have been wondering about your husband. I take it he's finally off all prednisone as well? Thank God, I'm so happy for you and your family. I pray he maintains remission for a very long time. Hi to Kayln, I sent her a birthday card on her day..hope she had a fun...
  9. cookey

    This is Me

    Welcome Skins, glad to have you aboard hope to get to know you..quite the story. Enjoy your time here.
  10. cookey

    You think you are good at finding humour in your condition?

    I'm still fixing to design my own psychedelic pouches...Yep we have to find humor in this Disease somewhere. Why be drab..when we can look fab since we have to live this way...lol.
  11. cookey

    What Is Remission?

    I think everyone here has said it well...I know for most that have ostomies they go through remission stage, like myself. This does not mean in any way that I do not have Crohns anymore, as we all know.
  12. cookey

    How to cope with an ostomy

    It was definetly a life or death decision for me. I'm Sure glad I made the right one however. Not fun being 65 pounds of nothing. I am certainly coping well living this way, and if Doctors came to me tomorrow and said they could reverse it, I wouldn't bother. Why go through another surgery if...
  13. cookey

    Eating causes immediate trips to bathroom

    Hi Leah, I sure wish we could connect on messenger so we can chat for a bit. Hopefully we'll get to do that soon.
  14. cookey

    Hi EVERYONE *UpDATE*

    Hi Steve, great news on both counts. I hope they can find the answers soon, and Five weeks straight smoke free is certainly a task in itself. Good luck hun...all the best to you.
  15. cookey

    Have you contributed?

    I agree with Skins..I'm back and would love to also contribute in any way that I can, for the same reasons as Skins..lol. Sorry Skins, I don't mean to mock..but that's exactly my forte as well, living with an Ostomy. I guess it never hurts to have more then one input. Hi Ya Mike...miss you my...
  16. cookey

    Not sure I'll be welcomed here

    Hey Skeet, WOW I have been away a little to long. Welcome Welcome to our Crohns Forum. Of course you would be welcome here, anything bowel related plays a part here, right folks? Gosh Skeet you have certainly had your share. You sound like an amazing, and very strong individual...I"m happy you...
  17. cookey

    My story -

    Hi Leon, Great to meet you..and Welcome to Our Home. It sure is a great place to be. Good luck with the test, and keep us informed ok?
  18. cookey

    3 years and 18 doctors later

    Hi there Meghan, nice to have another Cookey around. I've heard of that Chinese method, I certainly hope it works out well for you. Nice to have you here, keep in touch. Biggest Hugs...Cookey. (Deb)
  19. cookey

    This has turned into a rant so I'm making a new topic

    I felt the same way you do GNC about living with a pouch. I thought no way in heck will I ever have that procedure done. Today I thank God that I did. I can do 50 times more today, then I ever could before the surgery. Not to mention all off meds (prednisone) for 19 yrs now. The best part is I...
  20. cookey

    Endless cylcle of steriods...

    Make that three of us, I was on and off the drug for 15 plus years. Well written GNC, welcome I don't believe we have met. I'm Cookie, better known as Deb, I believe the longest sufferer in the forums. Great to hear your tapering off the Prednisone..like I've said many times before on this site...
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