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Crohn's Disease Forum

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  1. rrhood1

    Is this a Humira or Crohns problem ? (its a lengthy read)

    Steph: I had problems with Humira and Imuran - nausea, fevers, joint pain (to the point where I could barely walk)! Finally my GI agreed and we stopped both and switched to Methotrexate and Remicade. What a difference! Don't write off all Crohns medications - a change may be all you need...
  2. rrhood1

    New to the forum

    Welcome - this is a great place for information and to ask questions. Glad you're doing so well!
  3. rrhood1

    First colonoscopy SOS

    If you have inflammation in your gut, it won't heal with a couple of days of feeling "not too bad". I had no symptoms when I was diagnosed and my gut looked like hamburger. I went from zero to severe Crohns in one hour. I'd never even suspected that I had a problem. Don't bother eating...
  4. rrhood1

    Sufferers of Multiple Illnesses & IBD Support Group

    Wow - what a list! Dx: I have Crohns, just diagnosed with thyroid cancer (waiting for surgery), spondylosis of C6 & 7 vertebrae (waiting for nerve blocks for pain & surgery), renal failure of right kidney caused by endometriosis. Also fibromyalgia and high blood pressure (at time). What a...
  5. rrhood1

    Hello and THANK YOU!

    Welcome Guy! We're here when you have any questions. Take care!
  6. rrhood1

    LDN covered by drug plan - Alberta, Canada

    I have Blue Cross as well as a private plan through my husband's work. They cover my Remicade and all my other drugs. Blue Cross pays everything except a $25 deductible and my husband's plan pays for that. The only thing I have to do is once a year, I get a letter stating that I'm going to...
  7. rrhood1

    Colonoscopy tips?

    My scope was at 2:30 pm. I was cleared out by 9:00 am and finished running to the bathroom before I had to leave for the hospital. We live an hour and a half away so there was no time for bathroom breaks. Good luck!
  8. rrhood1

    Methotrexate vs Imuran?

    I have to stop my Remicade but am able to stay on the Methotrexate and Sulfasalazine. Hopefully the Meth keeps me in remission. I hope the Imuran works for you. Take care!
  9. rrhood1

    Sore red skin on back of hands - related to UC?

    Could be psoriasis - I have it on my hands too and they eventually peel. Imfindmtheyre better in the summer but I find coconut oil helps a lot.
  10. rrhood1

    Almost every joint in my body just aches!

    You can also ask your doctor for a referral to a rheumatologist - preferably one that is knowledgable about Crohns. My rheum put me on Sulfasalazine after nearly 2 years of trying everything else. It works in conjunction with the Remicade and Methotrexate and has finally stopped the joint...
  11. rrhood1

    Job uncertainty stress!

    Don't go postal on us! That really sucks but I've been there. Now I'm looking for a basic job as my last career just about killed me. I had to train my replacement as well (but just found out that she was fired for never showing up to work). We seem to try so hard to keep healthy enough to...
  12. rrhood1

    Just diagnosed...don't know what to expect

    Welcome Shilpi! This forum has lots of information and resources. There are also a lot of people that have been through just about everything so don't be afraid to ask questions. I have learned so much about Crohns since starting on this forum and my GI and GP are both suggesting it to newly...
  13. rrhood1

    A possible procedure

    Well, at least they are doing something. I'm glad you got it investigated. It's probably best that you don't start a biologic with an infection. With Remicade I was warned to report all infections immediately. Take care Ron!
  14. rrhood1

    Blister on gums??!

    I get sores in my mouth periodically and was told by my dentist that if they became a problem to come and see him for treatment. I was impressed that a dentist was up on Crohn's disease. I usually just use a mouthwash to keep my mouth clean. If they hurt I gargle with salt water.
  15. rrhood1

    Where/when do you get your Remicade?

    I just checked the site and they have a support group that you can contact about locations for infusion. Remicade.com. Hope this helps.
  16. rrhood1

    Where/when do you get your Remicade?

    In Canada we can get our infusions either at the hospital or a private infusion clinic. I love the clinic I go to - large lazyboy chairs, TV, movies, snacks. I spend 3 hours just relaxing, sleeping with no phones, no worries. I hope you can find something like that - maybe the Remicade site...
  17. rrhood1

    Poo question - sorry I don't have anyone else to ask

    Periodic constipation seems to be a problem that all of us have to deal with. I'm sorry it's bothering you at this time. Talk to you doctor - they may suggest a stool softener or some fibre supplements to soften your bowel movements. Prednisone may make you more constipated so you should...
  18. rrhood1

    Methotrexate vs Imuran?

    The fevers, joint pain and general sickness started about 6 months after I started the Imuran. The worst part was joint pain but I have a Rheumatologist that put me on Sulfasalazine which is like a miracle drug! I have no joint pain and haven't for 6 months now. According to my GI, the Imuran...
  19. rrhood1

    Methotrexate vs Imuran?

    Hi sr! I've been on both Methotrexate and Imuran. The Imuran, with me (remember it can be different with everyone), gave me high fevers, joint pain and general not feeling well. I was on it with Humira. My GI stopped both Imuran and Humira as she didn't feel they were working well for me...
  20. rrhood1

    Nathalia's Diagnosis

    Welcome! This is a great forum with loads of information and very knowledgable people. It sounds like Nathalia has had a really hard time - I hope the Prednisone helps and she gets back on her feet soon. Take care!
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