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Crohn's Disease Forum

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  1. KayleighMeek

    Protein tests?

    The most frequently tested is included in a liver functions screen they will test your albumin and total protein. Albumin will be low because of malnutrition but can also be low when Crohn's disease is active. Total protein is a general measure of albumin and other proteins in your blood and if...
  2. KayleighMeek

    Third time lucky - would seem not...

    I agree Chris sometimes you need to forget and enjoy life I have foods on occasion I know will cause problems but I don't want to give things up entirely. This disease already takes away so much, although when I am actively flaring I am more careful just because he pain is more intense. As for...
  3. KayleighMeek

    Severe back pain after BM

    For the past few days I have been having extreme back pain after a bowel movement and sometimes when I get those familiar stomach grumbles. It's to the point where I cannot move and I am starting to think I am going to have to phone someone to come and rescue me off the loo. It does go away...
  4. KayleighMeek

    Low protein level

    Was it albumin that was low? My albumin is quiet low at the minute it can be lower when disease is active and when not eating enough. I have just been put on budesonide to try and help things out a bit.
  5. KayleighMeek

    Conceiving with Crohns anyone to join me?

    Seems like there are a few of us trying this year I have been off methotrexate for 3 months at the end of this month so we then can start trying. I've just been put on budesonide to try and keep a few symptoms under control and hopefully keep me healthy. It's very exciting but also a scary time...
  6. KayleighMeek

    Merry Xmas you have crohns :)

    Welcome to the forum but sorry you have had a horrible time. I was on remicade and I worked really well for me after the loading doses I really started to notice the difference and I went back to being normal, well normal for me. I really hope it works for you and keeps you feeling well. There...
  7. KayleighMeek

    Methotrexate: Worked or not?

    I was on 25mg of methotrexate tablets for over two years. I started off with 10mg and slowly built up to try and minimise the side effects. I did for the first couple of months suffer from horrible indigestion and sickness from the tablets but the dr gave me omprazole and that helped to settle...
  8. KayleighMeek

    Cimzia working better than Humira

    Glad to hear its working well for you. I have been on it for 6 months now and it has improved things for me but still having a few issues. Hope it continues to work for you x
  9. KayleighMeek

    Why am I suddenly reacting to Remicade

    I was on remicade for a year when I had an anaphylactic reaction it started out with trouble breathing and by the time the nurses got to me I had passed out and was shaking. When I can round I was very hot and had awful back pain too. It could be that you have antibodies to the remicade and this...
  10. KayleighMeek

    Can I still take cimzia?

    That's ok I know the half asleep feeling pretty much constant at the moment lol. I thought it might come down to missing it I just don't want to miss to many as I didn't take it last week as I thought I was coming down with a bug but now I think it's just crohn's being a pain.
  11. KayleighMeek

    Can I still take cimzia?

    That makes sense but there isn't a plan to remove the tooth at this point. I was more concerned about taking cimzia whilst having an infection and on antibiotics, I don't want to make anything worse. It's good to know in the future if it comes to it I won't have to cause myself more pain...
  12. KayleighMeek

    Can I still take cimzia?

    Hello all Hope you have managed to enjoy some of Christmas. I will be speaking to my dr about this as I forgot to ask today and now I will have to wait until after the bank holiday but wanted to see if anyone had anything similar. I went to the dentist today as the left side of my face is...
  13. KayleighMeek

    Be very wary of side effects when starting azathioprine/increasing dosage!!!

    Active crohns could also give you that full feeling I get it when I am flaring it only takes a few bites and I can't have anymore. If you have any problems it's always best to bring it up with the dr to find out what is causing the problem
  14. KayleighMeek

    What else can i do???

    They should have emergency/urgent appointments that you can have if it is really bad. Don't let then fob you off it sounds like you need to see someone. Can you see an Ibd nurse they are sometimes a bit easier to get an appointment with and the one I see is brilliant. Hope you get some help soon x
  15. KayleighMeek

    Humors advise anyone??

    Sorry you are struggling with the injections they can be horrible I used to struggle with the loud click as it would make me jump nearly every time. Have you tried icing the area before injecting I know it helps a lot of people on the forum. Also leaving the medication out of the fridge for...
  16. KayleighMeek

    Be very wary of side effects when starting azathioprine/increasing dosage!!!

    It was pretty bad but it was a couple of years ago now and they gave me a lot of morphine so things are hazy lol. I'm glad you are still positive and keeping an open mind about the choices you have sometimes it can be hard to not let things get to you. I am on cimzia at the moment it took a...
  17. KayleighMeek

    Be very wary of side effects when starting azathioprine/increasing dosage!!!

    I had pancreatitis from aza and 6mp, with aza I thought it was bad indigestion to start with and just put it off I went home from work as it was bad but within a couple of hours I was non stop vomiting and in a lot of pain I was admitted to hospital for a week. I then tied 6mp I took one dose...
  18. KayleighMeek

    Work meeting about sick days

    In the end the meeting went ok they said about rest days instead of sick days where I could phone in and take it as unpaid/owed/annual leave so that takes a weight of my mind as I hate taking sick days and it doesn't help when I worry about it. They also said they would help in anyway they can...
  19. KayleighMeek

    Hunger pains

    It is strange how everyone is so different. I always feel hungry but as soon as I have that first bite of food I get pain I don't understand why at all.
  20. KayleighMeek

    Work meeting about sick days

    Thanks everyone for the advice. They have offered me to take a work colleague or a union rep but I don't really want either if it starts to get more serious then I think I will just ask the meeting to be paused whilst I sort out something like that. It would be hard to have more flexible work...
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