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sfgirl I tell everyone it's like sunburn inside, (nearly everyone has had sunburn) then watch them grimace! xx

Hiya Mary I've stopped the Humira, the side effects far outweighed the benefits, and I was told it can't penetrate my scar tissue anyway, so I'm waiting for surgery instead. I've recently had so many reactions and side effects from all meds, it's a shame, I've tried my best, but my body has had...

Hiya Kero and welcome Poor you, I totally empathise. I was misdiagnosed for over 15 years, had endos, had them removed, had a total hysterectomy, still had the symptoms, docs said I was mental and neurotic, etc, etc I hope your new doc will suss it all out and you get a firm diagnosis and...

Jag23 Sometimes when you taper the Pred too quickly, the symptoms gradually come back too, discuss your options with your doc, depending where your Crohns is located, a non systemic steroid such as Entocort may be more beneficial. Entocort works in the small bowel and the start of the large...

Ihurt, and I bet you do! Canesten is ok for thrush and the pill that comes with it, but for the inflammation and irritation (and I get loads of it, it must be a crohnie thang) Canesten HC is the best, it's on prescription only and contains 1% Hydrocortisone. xx

Good Luck Yvette, I'm due for surgery too, but they said after Christmas xxx

Thanks Jennifer, I will xxx

Aw cheers Yvette, I'll be ok, gotta be careful what I eat tho, I'm not on any meds, don't need a stay in hospital over the festivities! Hope you're doing ok? xxx

Hiya everyone I've not been on for ages, I've been so ill! Summary I was told to come off Humira, it wasn't working, and I've been referred for surgery, waiting for an appt and an MRI I was told I've got high blood pressure, it was alternating between 175/122 and 168/110, so the GP said it could...

Hiya everyone Still poorly, and off the Methotrexate, Thank God, toxic ****. The only way I can describe this pain is sunburn, maybe someone can relate. So I saw the consultant on the 23rd and we talked for ages, the conclusion is surgery. I have scar tissue that won't go no matter what gets...

Good luck UnXmas, here's to a speedy recovery and back home quickly xxx

Yeah, or the low residue diet, or BRAT, bananas, rice, apple sauce and toast. My favourites are mash potatoes, butter, salmon and broccoli, rice krispies, plain biscuits and cups of tea http://www.hhsc.ca/documents/Patient%20Education/LowResidueDietFoods-trh.pdf

Poor you Paccha, been there, done that! Remicade, and in my case Humira, decreases the ability to fight infection and can/maybe increase the risk of getting an infection, either viral, bacterial or fungal that can/maybe spread throughout the whole body cos you can't fight it, hope that makes...

I had my first loading doses late afternoon, stayed for about an hour after, then went home to rest. I went to work the next day, it was ok but I was very tired. I now do my shots about 6pm on a Friday, so I can chillax all weekend. Good luck xxx

Bloody Hell's Bells Jennifer! Your **** mirrors mine, lol, will we ever get an answer, prolly not, just more toxic crap! Feel better soon and good luck xxx

Thank you Jennifer xxx I do have a lot to consider, I don't want surgery, and if it's down to choice, I'd choose Entocort. I have had horrendous diarrhea since the Methotrexate so it's gotta be the cause. I started taking Pentasa again today. Thing is, every time I have a consultation I have a...

Thank you so much CrohnsChicago xxx

Thanks Cat, girl after my own heart! I remember the consult with the surgeon last year who said no. He wouldn't operate on something that's been in situ for 50 years! He reckons it causes more complications such as loops, kinks, narrowing etc. Maybe I just need to be a patient patient and give...

I haven't been on the forum for a while, I just feel so depressed! I have been on Humira fortnightly since January and 6 weeks ago the doc added Methotrexate 25mg once a week with Folic acid 5mg. I also was told to stop the Pentasa after 8 years. I have been feeling terrible ever since! Constant...

Sorry Jennifer & valleysangel92, I didn't reply to the tag, not feeling so good lately, glad you got the referral tho, good luck xxx