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I’ve been on Entyvio for 4 years now and haven’t had it affect my cycle. Have you recently lost a lot of weight or are you on prednisone? How long have you been flaring? I didn’t have a period for 3 years due to all the stress from flaring. Has your doctor tried a progesterone challenge where...

Hi MLP, Have your kids found anything to put their arthritis in remission previously? Anti-TNF put my Crohn’s arthritis in remission, but I know Stelara isn’t an anti-TNF, so I wonder how it would work for my arthritis. I appreciate your sharing that it doesn’t work that well for them though...

Did your daughter have any luck with EEN? I just saw that you had tried it.

Oh wow, I’m so sorry your daughter is or was in the ER, and I’m sorry to hear the Tacrolimus hasn’t helped her either despite her levels being so high. I had asked my Rheumatologist about where my elevates should be, and I believe she said between 2 and 4, so it must be a lower level for...

Are you on Stelara with Entyvio? Both my GI and rheumatologist have suggested Stelara (alone) to try and take care of everything, bowels, arthritis, iritis, skin issues, but I’m afraid it will only help some issues and leave others, and I’m especially worried about having my bowel flare again...

It’s hard to be patient when flaring, but yes, please try and be hopeful since it takes so long to kick in. It sounds like she has a more aggressive schedule since most infusions are 8 weeks apart so maybe that will help out too. So she hasn’t seen any improvement at all from Tacrolimus yet...

I’m sorry your daughter has been through so much and is still dealing with issues even in two biologics. My rheumatologist is pretty against two biologics since she said there really hasn’t been that much research on them and what there has been has shown life threatening infections, so she...

Thanks for sharing your daughter’s experience. Did she have to go on a low potassium diet on the Tacrolimus? Is she still on it with the Entyvio, and how long was she on it? How long did it take to help? I have Crohn’s colitis. Entyvio was slow to work but I’m so glad it does work. I think my...

Thanks for your reply. My GI tried to add Humira to my Entyvio but my insurance rejected it twice stating the risk of infection was too great. I’m kind of a difficult case because I really don’t want to get off Entyvio since it’s the only drug that has worked for my bowels long term, so my...

I did some searching and it doesn’t look like many people are on this, but I thought I’d check anyway. Can anyone share their experiences with this drug? Most importantly how long did it take to kick in and did you have high potassium levels on it? I’m actually on Entyvio which is working for...

Sorry to hear about your issues with tapering. How long had you been on prednisolone? Do you now just have to wait until your body adjust back to normal?

Thanks MLP and Maya. Maya, I’m glad your younger daughter hasn’t had any issues with more illnesses. I’m so sorry her disease has been so aggressive and at such a young age. I guess I’ll just try and wait it out with the MTX for another month or so. I’m on my 8th well so I’m hoping some...

Hi Maya, Thank you for your replies. I'm so sorry that your daughter has been through so many issues with her disease and drugs. Are her joints and Crohn's now in remission with the combined biologics? Have you noticed her being any more susceptible to picking up illnesses since being on them...

I've been in a flare that doesn't involve my gut (Entyvio is taking care of that) but involves arthritis and iritis. I started on a really high does of Prednisone, 80 mg and I was supposed to taper very slowly, 80 mg for 2 weeks, 60 mg for a month, but I couldn't handle the side effects and so I...

Hi Grandma McB, If you don't mind my asking, are you on Imuran with Enytvio only to prevent antibodies from forming or to help extraintestinal manifestations. I was on 150 mg/day but my arthritis and iritis flared, and my rheumatologist didn't feel comfortable putting me on more than 200...

Hi Maya, Thanks for the information and the link. I don’t think it’s that likely that the Entyvio caused the arthritis flare since I had been on it for 3 years, but I suppose it’s possible. Is there any way to know if it’s the Entyvio causing the arthritis flare besides stopping Entyvio? I...

I’ve read that Methotrexate can take from 6-12 weeks to work, and I’m wondering for those who are on it, how long did it take for you to notice a difference. I’ve been in a flare for 9 months with the main symptom arthritis with intermittent iritis, but this last iritis flare seems to becoming...

My first anal fistula showed up after an abscess I had in 2011. Since then the abscesses seem to keep moving up my left butt cheek to where I've had 4 abscesses now all stemming or connected to the same fistula. None of mine have never healed up. I am feeling fine otherwise and seem to be in...

I haven't been getting my email updates, so I lost track of this thread. I've been on Entyvio since May and have had 5 infusions so far. I'm wondering, has anyone else experienced constipation with this? I've never had constipation before, and the only thing I can think could be causing it would...

Hi Idlebrain, Thank you for your reply. I ended up going to see my GI's physician's assistant today, since I couldn't get into to the colorectal surgeon until July. I'm going to try a round of antibiotics to tide me over and then see what the surgeon says. I'm not sure how much he'll be able...