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I have had 3 infusions so far. The first infusion I only had some fatigue the next day. The second infusion I had a low grade fever the next day. My most recent infusion didn't give me any side effects at all. Other people have experienced joint pain, which thankfully I haven't despite having...

Sorry to hear about your wife's struggles. I hope the surgery goes well for her fistulas. I haven't had surgery yet, but I don't think the ones I have will heal without doing something like surgery, unless it turns out Entyvio actually helps with them. I've had 3 infusions so far, and I...

I have had several abscesses before, two which developed into fistulas. One of the fistulas I have has seemed to have branched out and created two abscesses. The abscesses I've had before were so painful that I had to have them drained right away or else they burst on their own. The most...

I'm on Imuran with Entyvio. Imuran actually worked by itself for a while but then lost efficacy. I'm actually staying on the regular dose of Imuran (what I would be on if I were on it alone) while on Entyvio since I get arthritis as one of my symptoms, and I don't want that to flare. I had my...

Glad to hear it's working for you! I am on SCD right now and in conjunction with antibiotics, it really helped calm things down. Now hopefully that will help hold me off until the Enytvio kicks in. Good luck with the LDN. Did you doctor suggest the LDN with the Enytivio? I'm curious to see how...

Sorry to see you leave the entyvio group, but sounds like you have a good plan. I was on Remicade with methotrexate when I was first diagnosed. It worked great and right away. I hope you see long lasting success from that treatment.

Hi Littleshoes, Sorry for the late reply. I was out of town for a while. Yes, I originally tried the LOFFLEX after my first round of EEN, and I flared right away on that. I don't know why the elemental stopped working after the first round. But I completely know what you mean about how hard...

I'm on Imuran with Entyvio right now. I'm on the full dose since that's what I was trying to maintain on before I started Entyvio. I'm not sure if my GI will lower the dose once the Enytvio kicks in (I've only had 2 infusions). I am also on prednisone right now too, and I think the Imuran is...

Thanks, duh panda. I'm sorry to hear you were on 40mgs of prednisone for that long. I'm glad the methotrexate has been a help for you. I'm wondering if Imuran may also have similar effects as a combination therapy with Entyvio. I'm on Imuran right now but have been on Methotrexate in the past...

Hi littleshoes. I was wondering how your elimination diet is going? I did EEN for 6 weeks and it worked but then I flared right away when I added foods back. I'm on EEN again, but it doesn't seem to be working now. I was wondering if doing the elimination diet when you're not technically in...

I did exclusive enteral nutrition for 6 weeks about 2 months ago. It brought my CRP into normal levels after being in the 50s and got rid of my arthritis swelling and pain as well. Unfortunately when I added foods back in, I got symptoms back right away. I tried to go back to EEN for a couple...

Thanks for sharing your experience. It's interesting that you felt great during the loading doses. From what I've read it doesn't seem to be the norm. Were you at a higher dose of prednisone at the time? I'm sorry to hear your insurance won't approve a shorter dosing schedule. How frustrating...

Hi everyone. I started Entyvio a week and a half ago. I get my second infusion next week. Is the consensus that you don't notice a difference until about 12-14 weeks? Or is it that it doesn't reach its full potential until then? I'm on Imuran and prednisone, but neither are helping my gut at...

Hi Kimmidwife, I don't have a child with Crohn's but I have it myself and saw the post about your daughter in the entyvio thread. I'm sorry she has to go through all that. I was on TPN last summer. Because my discharge was happening over the weekend, it took a couple days, but from my...

Thanks, Happy. I actually do have the John Hunter book, and although it speaks about going back onto EEN if you have a reaction, it wasn't that specific about how to know how long you need to be on it. I'm not sure now if the issues I'm dealing with are structural or just from adding foods back...

Thanks for the input, 24601. I made an appointment with my GI. I'm really scared about potentially having a rectal or anal stricture. I guess I'll see what the tests say.

I have Crohn's colitis, and I had a flare recently where I have tried exclusive enteral nutrition to calm it, and I'm also on Imuran. Surprisingly the enteral nutrition worked brining my CRP down, and I've been in the process of trying to add foods back in, but keep having relapses. I have...

Hi Happy, Thanks for the link. I've actually looked through your thread several times, and I guess I wasn't sure how you decided whether or not you would go back to EEN for a few days or just back to your safe foods. I know you mentioned that as you progressed that you never had to go back to...

So I have completed 6 weeks on EEN, and thank God it actually worked for me! I tried to do the LOFFLEX diet but got symptoms back within a few days, so I went back onto EEN for a couple days and started the elimination diet where you add one food back at a time. I was doing OK but then tried...

Thank you, Happy. I really appreciate the link to your thread. It was helpful to read how you went through the process of reintroducing food. I'm amazed by your discipline to be on EEN for so long and then going through the slow process of reintroducing foods. I'm a little concerned that I...