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I believe some of it is caused by the anemia…iron and b12 deficiency. I have a b12 injection every 3 months and I’m supposed to take iron tablets 3 times a day but they have an adverse effect on stomach, causing diarrhoea.

I did the same on a previous thread and had some valuable replies. thanks for your concern theOcean :hug:

I'd say your spot on. I'll ask about seeing a neurologist before coming off it, as I agree that I really need to get off the pred, and the methotrexate does work, but just with these added side effects. Thanks again for your reply. Peace:)

Hi Superzeeman, I can relate to the finding it pretty scarey. I did start out on the LDN but had it changed to Pentasa which is comfortable. I'm quite a complicated case where I have my crohns managed ok by the Pentasa but the auto-immune disease has spread to my aorta causing aortitis, and...

Thanks for your replies guys. The tension did stop after I stopped the methotrexate last time so it hasn't been much of a surprise for it to return this time. I've been on pred 18 months now and find it comfortable, the problems start when I try to come off it... hence the need to have...

Hello all, I'm a few weeks in to methotrexate for a second time. I took myself off them the first time as I started to get tense in the left hand side of my head, shoulder, and down the left handside of my body. I agreed to start them again on a lower dose and with daily folic acid but I've...

Hello all, I'm a few weeks in to methotrexate for a second time. I took myself off them the first time as I started to get tense in the left hand side of my head, shoulder, and down the left handside of my body. I agreed to start them again on a lower dose and with daily folic acid but I've...

I've just started Methotrexate. I've been taking 2000-4000mg of Vitamin C over the last year or two to help boost my immune system. Will it defeat the purpose of the immuno-supressents if I keep on taking the Vitamin C? Should I just stop taking the Vitamin C for the methotrexate to have it's...

Do you know if your iron and B12 levels are ok?

Hi Etan, I have suffered with chronic fatigue for years now. I just put it down to my Crohns. It's usually after I've eaten when I get more tired. Also I'd have a look at the side effects of the new meds if I was you. Hope you get more energy soon.

I've had the same experience after cutting out grains and high fibre foods.

Hi Highlandsrock, I didn't make it to India as I'd got too ill, the 3 weeks in hospital came just after I was supposed to have been there, so not going was definitely one of my wiser decisions in life(even though it was my ill health that made the decision). Yes they are definitely connecting...

When I'm flaring I get totally exhausted. I think the inflammation takes everything out of my body.

Hi Boozie, There is definitely nothing for you to be embarressed about. I would definitely suggest you tell your doctor. You never know it may just be an uncomfortable hemeroide. Whatever it is you will benefit from diagnosis as then you will be able to get it treated. Hope you manage to get...

Can you decribe what you mean by tightness? If you are refering to cramps or inflammation I can definitely identify with you. Hope you get some reprieve soon :hug:

Sounds like you've got quite a bit going on there. My indigestion was caused by an ulcer but I have never suffered from it again since being prescribed Lansoprazole. Although the effect this has had on my crohns is questionable. Hope your able to get some reprieve soon :hug:

Hi Jamie, I can relate to this as I have had two endoscopies, two colonoscopies, x-rays and MRI scan,non of which showed up anything that correlated with the pain/inflammation I was experiencing. It was only after a CT scan that they got to the bottom of things for me. Hope they manage to...

Hello Crohns family, I'm up in the night flaring a bit so it feels right to give a bit of an update as so much has happened since I wrote this thread 10 months ago. I found I was unable to come off prednisolone, the pentasa wouldn't hold me. I started Azathioprine but reacted badly with a...

The gastro team are working on controlling the crohns to try and reduce any more infection, I'm down to 10mg prednisolone at the moment which is probably the best its been. On the link it says about aortitis requiring aggressive treatment, do you know what aggressive treatment would consist of...

Hi Jennifer, Thanks for taking the time to reply, I really appreciate it, and thanks for the information you've found. I've got an appointment tomorrow with the Gastro team so I'll ask about what type of infection it is, but I'm now under the vascular team as well so it may be them I need to...