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May I ask you, what meds you take for the bipolar disorder and does it make the crohns any worse - or is there no ill effect from the biopolar meds?

Welcome to the board. I am so sorry that Jake was diagnosed with Crohns. I know how frustrating it can be to watch your child not feel well. You have certainly come to the right place to find support and direction - and also to vent anytime you want to:) My child was on Remicade for many...

If it does turn out to be a stricture, a simple baloon dilation will give you immediate relief. Glad to hear that you are going to make an appointment - wise decision:)

I just read this entire thread, and it made my blood boil!!! The run around that you have been on is absolutely unacceptable! If I had read this earlier, I would have suggested that you call in and request an urgent appointment - due to new symptoms that have arisen! They would have no...

My child was also diagnosed with Crohns at the age of 12 (severe). I just read your blog and found it very interesting. I wanted to let you know how much you are helping people learn from you, by putting your story out there, and it is truly an inspiration to us. When you have your PICC line...

I hope all goes well for you! The balloon dilation is a very straight forward procedure and provides immediate relief - after a while it may have to be repeated. There are many patients who have dilations performed on strictures several times a year. Just make sure you do the prep before the...

Hi Suzanpaul, I just read your post, and wanted to say how sorry I am, and that I hope you have good results tomorrow. Are you in the hospital? Also, wanted to say that you should put your message in a different section - there is one called "my story". That way, more people will be able to...

Have any of you read up on a stricturplasty procedure? Its difficult to explain, but for persistant strictures, instead of doing a resection, they cut a horizontal slit in the intestine where the narrowing is, and then sow it up vertically if you know what I mean. Google it for diagrams - it...

Yes, it is very expensive - but my insurance company pays for the formula to be delivered to my front door. What health insurance do you have?

Kim, How frustrating!!! Is there any way you could get hold of his email address? I did this, and if I ever have a question, I just send him an email. Of course, I only do this if it is very urgent. I just wanted to let you know that in my past research, I corresponded with Dr. Ian Zagon...

Just a suggestion - instead of Boost and Ensure which is full of sugar, is there any way you could rather drink a high protein elemental drink when in a flare. Something like Peptamen 1.5 made by Nestle would be so much better for you.

I am so sorry that this has happened to you - that is awful!! If I were in your shoes, I would inform my doctor that when I was younger, I was sexually assaulted which has quite understandably, left me feeling very anxious when it comes to physical exams. Tell her you would appreciate her...

Hi, Welcome to the forum! I am so sorry to hear that your son is not feeling well. I believe the reason why you may not have had as much success with the liquid diet is what you are feeding him. Boost is full of sugar and is not elemental. You mentioned that you are looking for a chocolate...

I noticed quite a few online ads for disability lawyers who will get you on disability - and they do not charge you anything. They only take a certain portion of the initial check you get from disability - which normally includes a back pay portion - that is where they make their money. Why...

Hi Jessica, Welcome to the forum. Sorry to hear you have been going through such a bad time. If you have built up immunity to the Remicade, and failed to respond to the Humira, while waiting for the stem cell transplant, why don't they try you on Cimzia? It is in the same class of drugs as...

Thank you to everyone for your kind words - I cannot begin to tell you how much it means to me, to think that I might have helped other people who have followed in my footsteps. I am so thankful that we have each other to learn from, and to share in our experiences and our knowledge, and to...

Thank you so much for sharing Kat. It is stories like yours, that make me think my journey was not so futile, that somewhere along the way, we managed to make a difference.

I have a child who has had crohns disease for over 15 years now, and I can tell you that I have researched this disease SOOO much over these years. Everything from LDN to hookworms, from Remicade to stem cell transplants. Sitting at my computer until the wee hours of the morning, determined to...

I do know that after a stem cell transplant, all the meds you take post transplant is like taking them for the 1st time. Most patients who may need some meds post transplant, find that it works so well, they very quickly go into full remission, whereas before the stem cell transplant, they...