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I have been on Remicade just about one year. Still have symptoms, and I am waiting for my Dr to add a second medication. I just wan to feel better. The longer I am out of remission the hard to regain it. Good luck, I know these decisions are not easy to make. Lauren

And this is the place for it! You can get a lot of great information, support and get a feel for what other people go through. Lauren

I have- last year they said there were some "nice" sizr holes in my back. Due to steroid use. Prednisone, I don't know about the Entocort and bone loss. I just had another one and they said its "not much different" than last year. I am not sure what all that means. Lauren

I hope they can get a handle on it quickly for you! Lauren

Well I sure did, on top of that the contrast made me need to go to the bathroom really bad! I was so glad to have had it though, it was the results that made my Dr start taking this a bit seriously again. Lauren

Your terminal allium is up pretty high. So you can rule out that you could have done something to yourself. Possibly the stress? All sorts of people get diagnosed with CD. At all sorts of ages. I was 28. Pretty late I was told. Although I am very aware of what my body feels, so I probably...

I am on my feet all day long and within the last two years, I have had a to ore lower back pain. Even when I sit down I fee like I have a deep bruise. My bone density showed some issues. And I am having a flare up. Remicade had been helping some. lauren

Is it still really remission? My Dr asked me what I expected from remission, I said a salad and a bowl of Cherrios. His answer? We all have diet restrictions, my response- then why are we doing the Remicade and calling it CD? Lauren

Personally there has been nothing in your post to make me think you were not a Christian. Believer or not these diseases are terrible, and can get very overwhelming. This is a great place to find people who know exactly what your going through. I hope things level out and you feel better soon...

My next infusion will be the second time I am at a 6 week interval. Hoping for the best. Lauren

I am on it. I am pretty sure the same dose. I still get severe cramping and diarrhea. Lauren

I signed up for it for Remicade but, my ins co pays 100%. Never heard of such a thing and i am just so very thankful. Otherwise I couldnt afford it. Lauren

I am so sorry your having all this trouble! I hope you get relief soon. Lauren

I caught the flu at work, I had to call in sick on a Wed. and my DSM gave me thur off and until 3pm on friday to get better a! Being on Remicade and now prednisone again I really don't like being sick like that and having to be at work. I am in retail and you would be amazed how many people...

EvieBaby- Boy, do i understand! My husband made Chili and a pot of homemade soup on sunday. I worked all day on my feet with no breaks, Working retail is not easy job its a very physical job! Anyway, he wanted me to clean the kitchen! My husband needed to use no more than two pots yet he is...

I am on what seems to be a ton of medication for my CD. Just added Prednisone again last week. The last two days I have had starp pain "along" my right shoulder blade. Hurts enough that I tried a pain pill and that didn't even take all the pain away. Also a lot more nauseated in the last few...

I am sorry your having such a hard time! I am also having a hard time being able to pull myself through the day. Its all gotten to be to much. I am glad it looks like you found something to help. Good luck until your next Drs appt! Lauren

Good luck, hope you get better soon. Just remember always take it seriously. I didn't push my Drs hard enough and my CD spread and I have been out of remission for 6 years. Even if we can't see it or feel It. It's there Lauren

I have always had good luck with the ER docs. Your GP can call your GI and ask that you be seen sooner. I used to do that when I worked for a Drs office. If I couldn't get the patient in sooner, I would put my dr on the phone and he would Get the job done. It's very common for Drs to do that...

I would say CD is enough out of the ordinary of a find on a colonoscopy! Its a good idea to go to the ER, your disease can progress with out you knowing it. I guess think about it like Cross-stitch gal, how bad is the pain and are you ok with the about bleeding your having? Personally...