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Welcome to the forum! It's super supportive here, even though we're all sorry you had to join us :) I was diagnosed with Crohn's just after my 9th birthday - I'm 18 now - and honestly I think the best advice I can give you is to remember to take care of yourself. It's really important to look...

This is a really interesting thread! I wonder why there's such inconsistency? I had two enemas before my surgery - one at midnight the night before (before which I could eat as I wanted, but hadn't since about 4pm that day) and one at 6am on the morning of the procedure. Absolutely horrific...

Thanks everyone for your advice - I don't know how I missed replying to it, but I read both posts and took them to heart. I also decided that I'd resurrect this thread instead of starting a new one, since it'd be better to have everything in order. So I think I've mostly reconciled myself to...

Don't worry about the questions! I'm happy to help :) I remember my bowels being a little bit sore (not too clear on this, though, since my last obstruction was at the start of this year) but it felt more like muscle ache after a workout, maybe because of all the vomiting. After the obstructions...

I've had three bowel obstructions caused by adhesions over the last year or so. They typically took about a day or two before they resolved (never thought I'd feel so relieved to vomit) once I stopped eating anything so it's pretty much become a routine for me to just lie in the foetal position...

Hi, everyone! I hope you're all okay at the moment. I realised that I've not been posting very much as of late so I wanted to give you an update as to where I've been over the last few months. A lot has happened so I'm also hoping that typing it out will let me sort it out in my head! So I...

Oh PixieGirl, I'm so sorry that you're going through this, and I'm sorry I didn't see this post sooner! I had exactly the same issue a few years ago, and I'm really sorry that I don't have much good advice to give, but I can really only offer you my support. My appetite didn't come back until my...

In the UK Remicade used to be known as simply infliximab, the nonproprietary name. Now in the EU two biosimilars, Remsima and Inflectra, have been approved, both with the active ingredient of infliximab, which makes referring to Remicade as just infliximab all the more confusing so I suppose...

I was on 75mg initially for maybe 6 months before I noticed any difference, but my doctor upped my dose to 100mg in January and I've been feeling great. I understand your frustration about the weight thing - I'm 5'0 and about 93lbs and I've been told exactly the same thing, "put some more weight...

I agree with Bubblemint - friends that don't support you and claim you're just making excuses are not the type of friends you need. That said, I'm not super popular myself, so I know how isolating it feels! But I just wanted to back up that there are the right people for you out there, it might...

I agree with Jennifer - 6MP and azathioprine take a long time to start working and it's way too common for GIs to have their patients wean off their course of steroids too early, so it's not bridging the gap until the long-term meds start working. I was on azathioprine (and off prednisone) for...

Hi CanadianCrohnie! I'm in a similar boat to you - I'm 17, diagnosed at 9, and I'm off to university in September (hopefully, if nothing goes drastically wrong during exam season...). I don't really know how I'm going to handle it, to be honest, I'm just going to give it a go and deal with any...

Hiya cmack! Welcome to the forum, although I'm sorry to hear about your diagnosis. Please try not to worry too much about your ability to take part in sport with Crohn's. As has already been said: there are SO many sportspeople with Crohn's or UC and so many of them are currently healthy and...

Hiya Sumayya! Sorry you have to be here, but welcome! It's really supportive here, I've found myself checking it as much as I do Facebook :) I can't speak much about experience with abscesses/fistulas or stomas since I've had neither. It sounds like so much to go through in one year though! Is...

Hi Ravioli! Congratulations on your exams and getting to sixth form, and I'm glad you're doing well! I know what you mean about teachers being nicer to you than usual - but I'd just look at it like this: they know about your illness, which means that when things get bad they'll be accommodating...

I take it at night, because I figured I'd sleep through any side effects. It works well - I sleep perfectly fine, no disturbances at all, and no pain either!

A little bit of an update - next month I'll be 17, and I'm still barely 5'0! My GI says he'll do a bone age scan once I'm 21, but won't my growth plates have already closed by then???? It seems so counter-intuitive.

Hi danialys! Welcome to the forum, though I'm sorry you have to be here ): I don't have lymphocytic colitis, I have Crohn's, but I wanted to send you my support anyway. I read your other thread - what medication are you on, and how long have you been on it? It does seem odd that your doctors...

I was 9 when I was diagnosed! I think the young age was definitely a factor in my independence. From the start I always wanted to be the one in control of my treatment - I'm the kind of person that hates not knowing what's going on. I was a really shy kid, though, (to be honest I still am!) so...

I normally go alone nowadays. Since I was diagnosed as a child my parents always came with me, but now I'm able to go alone (our hospital requires children under 16 to always have a parent with them for outpatient appointments + phlebotomy) so I do! I don't need them to be my advocate any more...