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My daughter’s friend has Crohn’s that has never really been well-controlled - she has mostly small bowel disease which is worst in her ileum. She was first put on 6MP, then took herself off meds in college (despite being told by a GI that she would eventually need surgery if she didn’t start...

Stelara Biosimilar - coming in Jan 2025

FDA OKs Risankizumab for Crohn's Disease — Approval marks the third indication for the IL-23 inhibitor in adults by Zaina Hamza, Staff Writer, MedPage Today June 17, 2022 The FDA has approved risankizumab (Skyrizi), an interleukin (IL)-23 inhibitor, for the treatment of moderately to severely...

My daughter just tested positive for COVID yesterday. She doesn't have terrible symptoms - a bad cough, a very sore throat, low grade fever of 100.0 F and pretty severe fatigue. After many phone calls with her specialists and PCP, she was told to stop her meds (thankfully she forgot to take her...

Anyone heard anything about this from their doctors?

My daughter (who has spondyloarthritis) was put on Entyvio a couple years ago. Her arthritis and enthesitis were just completely out of control - she became sicker than she was prior to starting Entyvio. At the time, there was no data suggesting a connection between Entyvio and an...

Good article about chronic/amplified pain - https://www.nytimes.com/2019/01/21/well/family/helping-children-conquer-chronic-pain.html

Thought this was very interesting. I want to add we have been told differently about adrenal insufficiency - it is rare only because it's not tested for often enough according to the many endocrinologists we saw (M did develop adrenal insufficiency).

Study on Entyvio and Arthritis

Found this pretty disturbing - my daughter's SpA really flared after she was put on Entyvio. We didn't have enough evidence to say it was from the Entyvio at that time, but we did suspect it.

My older daughter told me today that she met someone through a friend at the arthritis foundation who also has arthritis and is on Remicade. She has been on Remicade for 17 years!! 17!!! She started Remicade very close to when it first came out and is now in her 30s. I have never heard of...

Interesting study about stress and school! Anyone see a pattern with their kids? My kiddo's arthritis definitely flares around September but not sure about her IBD...

Meta-Analysis: Acetaminophen, NSAIDs Don't Consistently Worsen IBD But authors stop short of recommending change in guidelines by Diana Swift, Contributing Writer May 02, 2018 A systematic review and meta-analysis has found no consistent overall association between worsening inflammatory bowel...

Interesting study about FCP in pediatric Crohn's!

More research!

New study confirming that TNF inhibitors do not increase cancer risk in kids.

https://news.abbvie.com/news/media-statements/humira-adalimumab-formulation-update.htm VERY exciting :)!! My girls are no longer on Humira but I know they will be thrilled for all those who still are.

A good reminder to monitor carefully!

From Boston Children's:

Since there are so few kids on Cimzia, I figured I'd start a thread about M's experience. We are really hoping it will help both her Crohn's and AS. Her Crohn's has been flaring since this winter (after getting CDiff) and she has been on steroids for 5 months (and is VERY ready to get off...